Cerebral Palsy Foundation

Cerebral Palsy Foundation CPF's mission is to be a catalyst for change for the 50 million people w/ cerebral palsy in the world This page is managed by CPF staff
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Most people have never heard of CMV, yet it may affect 30,000 babies in the United States every year. In fact, congenita...
06/03/2026

Most people have never heard of CMV, yet it may affect 30,000 babies in the United States every year. In fact, congenital CMV is the most common infectious cause of birth defects and developmental disabilities in the U.S.

This CMV Awareness Month, we’re raising awareness about a preventable infection that can impact a child's brain development and contribute to lifelong disabilities, including cerebral palsy.

We'll be sharing more about CMV and CP this month, but if you want to dive right in, you can find more info at nationalcmv.org and follow along National CMV Foundation

06/03/2026

Last chance to enroll! Enrollment for our APPLES-tele clinical trial will be ending at the end of JUNE 2026.

If your baby is between 4-13 months corrected with cerebral palsy or at high risk, they may be eligible to join. This early intervention protocol is delivered remotely, with the goal of improving hand and arm function.

Comment “yes” below or DM us to learn more. Please note this trial is only open to families in the U.S.

Come Try Frame Running on June 13th from 12PM-2PM in Ireland!We are delighted to be partnering with DERG AC and Clare Sp...
06/01/2026

Come Try Frame Running on June 13th from 12PM-2PM in Ireland!

We are delighted to be partnering with DERG AC and Clare Sports Partnership to bring this brilliant free event to Midwest Ireland! Come Try Frame Running is a fantastic opportunity for children and adults with disabilities aged 6 and over to get out on the track and give frame running a go.

You'll be in great hands - the session is led by Finn Dempsey, a leading advocate for frame running in Ireland and a truly inspiring athlete. Finn secured a silver medal at the World Ability Sport International Frame Running Cup 2024 in Denmark, and went on to win four gold medals in 2025. His story is one of determination, courage, and joy in sport.

This is a free event, open to all. Come along, have a go, and meet others in the community! Register here: https://docs.google.com/forms/d/e/1FAIpQLScJBUKzDywMHZjzo9vtVtHPoO1042cofqEc0pjH_QupZxQHVw/viewform

With May being National Physical Fitness and Sports Month, we're resharing a community story from Isabella:"I was diagno...
05/31/2026

With May being National Physical Fitness and Sports Month, we're resharing a community story from Isabella:

"I was diagnosed with left-sided hemiplegic CP in my second year of nursing school...I was told that I cannot tell the school about my CP as my limitations could be cause for them to dismiss me from the program. So I struggled to hide that part of me during school. It was really difficult and hurtful being in clinicals and navigating through school without support.

That’s when I decided I wanted to train for a marathon. I didn’t do it to prove anyone wrong, but to prove myself right. Most people don’t associate CP with long-distance running. And I realized that every mile I ran took more from me than someone without CP. My gait isn’t smooth, my balance is off, but step by step I ran without letting my body shut me down... Running the marathon was more than a race for me. It was a way for me to say, 'Yes, I have cerebral palsy. But cerebral palsy doesn’t have me.'"

Thank you, Isabella, for sharing your story of resilience through both difficult periods and big accomplishments. We're sending you many congratulations for completing a marathon as a para-athlete with cerebral palsy!

Drooling is a common concern for many people with cerebral palsy (CP) and your perspective can help shape future care an...
05/30/2026

Drooling is a common concern for many people with cerebral palsy (CP) and your perspective can help shape future care and treatment priorities. This short survey is for people with CP and their caregivers and takes less than 10 minutes to complete. Your responses will help clinicians better understand the real-life impact of drooling and what matters most when it comes to treatment.

This project is led by Dr. Laurie Glader, Complex Care physician, Lisa Letzkus APN, developmental nurse practitioner, and Kayla Petkus PharmD, pharmacist, along with a team of experts from several countries.

To complete the survey, head to

05/29/2026

May is National Physical Fitness and Sports Month, and we’re resharing a past CPF LIVE! with Byron Lai, PhD, on exercise and fitness for individuals with cerebral palsy.

From adaptive sports and active gaming to everyday movement, exercise isn’t one-size-fits-all. Finding movement that feels enjoyable and sustainable can make all the difference.

Watch the full video and see more at https://cpresource.org/media/cpf-live/cpf-live-byron-lai-phd

On May 27th, we had the opportunity to meet with Minister for Education Hildegarde Naughton at Leinster House to discuss...
05/29/2026

On May 27th, we had the opportunity to meet with Minister for Education Hildegarde Naughton at Leinster House to discuss the key issues affecting our community within the education system. We highlighted the importance of inclusive education and the supports required to create a truly holistic and inclusive environment — one that focuses on the education of every individual in our community.

A key area of discussion was ensuring equitable access to the curriculum, particularly in relation to assistive technology and the vital role of teachers in ensuring that all children in the classroom are not simply cared for, but fully educated and included. We also emphasised the importance of co-design in the rollout and implementation of the findings from the recently launched WHO Assistive Technology Capacity Report.

In addition, we discussed the benefits of adopting a Universal Design for Learning (UDL) model that would support all children and adults, including those with Cerebral Palsy. The meeting was very promising, and we look forward to continued engagement and collaboration going forward.

Department of Children, Disability and Equality
An Roinn Oideachais agus Óige - Department of Education and Youth

One month from today on June 28, Yes We Can Cycling will head to the starting line in Steamboat Springs, Colorado for SB...
05/28/2026

One month from today on June 28, Yes We Can Cycling will head to the starting line in Steamboat Springs, Colorado for SBT GRVL, a world-class gravel race experience.

Now in its sixth year, Yes We Can Cycling is still riding and showing up to support people with cerebral palsy, epilepsy, and other developmental disabilities. This year, 22 cyclists will take on the challenge with a goal of raising $600K!

Since its founding by Brad Serot in 2020, Yes We Can Cycling has raised more than $2.4 million, with a goal of reaching $3 million this year in support of the Cerebral Palsy Foundation, Epilepsy Foundation of Greater Chicago and Easterseals DuPage & Fox Valley

We’re so grateful for their continued partnership and impact, and excited to cheer them on toward another finish line! Follow along and show your support for the team at Yes We Can 💚

05/27/2026

📢 There are only a couple more weeks of recruitment left for APPLES-tele!

If your baby is between 4-13 months old with cerebral palsy or at high risk, they may be eligible to join APPLES-Tele, a groundbreaking study to improve arm and hand function! Send us a DM or comment “yes” below if you’re interested.

Our free live Cerebral Palsy Connect webinar is tomorrow! Join us for an informative session featuring clinical experts ...
05/26/2026

Our free live Cerebral Palsy Connect webinar is tomorrow!

Join us for an informative session featuring clinical experts alongside individuals with lived experience, offering both professional insight and practical perspectives.

Register for FREE and join us tomorrow, May 27th at 2PM ET/11AM by signing up here: https://cerebralpalsyfoundation.regfox.com/cp-connect-orthotic-management

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