Oligo Nation

Oligo Nation OligoNation is dedicated to helping Oligo families get involved and help themselves and others by fundraising to support research.

Oligo Nation is the community of Oligodenroglioma brain tumor survivors committed to raising money and awareness for medical research to develop effective treatments and eventually a cure. Five years ago, funding for research on Oligodendroglioma was non-existent. In the past few years, we have started to move the needle—we have made 5 grants so far and will announce 5 more in the January 2018. But we need your help to identify and accelerate new, more effective treatments.

Thank you to the more than 350 people that attended the annual Oligo Nation Inspiring Hope New York gala. You helped cre...
05/28/2026

Thank you to the more than 350 people that attended the annual Oligo Nation Inspiring Hope New York gala. You helped create an evening full of progress, community and impact, and more than $720,000 was raised to advance oligodendroglioma brain cancer research.

A special thank you to our committee members and our honorees, Alyse Mandel, Dr. Lauren Schaff, and Maureen O'Donnell Vignola, for their commitment to accelerating a cure for Oligo.

Together, we will find a cure. 🧡

05/17/2026

Today is . (Oligo Nation) The name Oligo is the rare type of brain cancer from which I suffer. It's also the four year surgiversary of my, er, surgery to have the tumor removed. Here I am at my dear friends', April Simpson and Dr. Terry Simpson, house between surgeries and being watched over by their dog appropriately named "Lucky".

⭐Today, May 17, is the 6th Annual International Oligodendroglioma Day. ⭐We created   so the Oligo community could tell t...
05/17/2026

⭐Today, May 17, is the 6th Annual International Oligodendroglioma Day. ⭐

We created so the Oligo community could tell the world we are here, and we matter.

What started as a simple call to share photos and stories has grown into a movement. More survivors, families, clinicians, and researchers are now connected through Oligo Nation than ever before.

Since the first Oligo Day in 2021, our community has driven an unprecedented wave of progress:
✅Accelerated the first FDA-approved drug for Oligo through clinical trial participation
✅Launched the first-ever Oligo-specific clinical trial in Florida
✅Supported momentum for new trials opening this year, including a Neuron inhibitor and three others: Safusidenib, CED, and Zotiraciclib
✅Expanded Oligo research efforts globally to Spain, Vienna, and through the POLA Network in France

This is why Oligo Day matters: research for this rare brain cancer can't wait.

Please visit oligoday.org to support the mission. Thank you. 🧡

Support our cause by donating to Oligo Nation Giving Tuesday 2025.

05/15/2026

Leading the charge for Oligo brain cancer research is Brock Greene, Founder of Oligo Nation.

When Oligo Nation was started 12 years ago, there was zero research focused on Oligo. Today, our mission is driving progress, including the first-ever Oligo immunotherapy trial, the Oligo Working Group, and an upcoming Clinical Trial Network with 10 leading brain tumor centers.

This is why Oligo Day matters. It’s a day to tell the world that we exist, we matter, and that research for this rare brain cancer cannot wait.

Together, we can expand research, launch clinical trials, and move closer to better treatments— and a cure. Share your story using and visit oligoday.org to support our mission.

05/12/2026

Meet Eliza Caplan .

In 2023, while moving into a new home with her family, Eliza received a call that changed everything. She was diagnosed with oligodendroglioma.

Three years later, Eliza is using her voice to raise awareness and funds to accelerate research, and find a cure for Oligo.

"What I learned over the last few years is that there's so little research about brain tumors and oligodendrogliomas. And so we really need to fund it. We need people to speak out. We need people to speak for us."

Stories like Eliza’s show why Oligo Day matters. Together, we can fund research, raise awareness, and move closer to better treatments— and a cure.

Share your story using and visit oligoday.org to support the mission.

Oligo Nation thanks you for supporting the second annual Inspiring Hope Denver event. Our community helped create an eve...
05/11/2026

Oligo Nation thanks you for supporting the second annual Inspiring Hope Denver event. Our community helped create an evening defined by progress, connection, and impact, and together we raised more than $165,000 in support of oligodendroglioma brain cancer research!

A special thank you to our honorees Angie Villenauve, The Roper Family, and Dr. Peter Fecci for their commitment to accelerating a cure for Oligo.

🧡

05/08/2026

Meet Kristy and Josh Bottini. In December 2024, Josh was diagnosed with grade II oligodendroglioma. Since then, they’ve shared their journey with the community on Instagram at .

“Just being connected with so many people who know exactly what we’re going through has been crazy in the best way possible. We’re so happy to be part of Oligo Nation—and, funny enough, Oligo Day falls on Josh’s birthday, May 17.”

Stories like theirs show why Oligo Day matters. Together, we move closer to better treatments and a cure.

Thank you, Kristy and Josh, for sharing your story. Share yours using and visit oligoday.org to support our mission.

We are only one week away from Inspiring Hope New York on May 13th at The Lighthouse in New York City! 🧡Join us as we ...
05/06/2026

We are only one week away from Inspiring Hope New York on May 13th at The Lighthouse in New York City! 🧡

Join us as we celebrate oligodendroglioma survivors, inspire those newly diagnosed, and support friends and family at one of New York's most iconic venues. To date, we've raised more than $9 million to advance promising research focused on delivering new, more effective treatment options for Oligo brain cancer.

Get your tickets! NewYork2026.givesmart.com

05/01/2026

Meet Julie and Corey Wilson. Corey was diagnosed with oligodendroglioma in 2016. After connecting with Oligo Nation last year, they quickly stepped in to serve on the committee for our first annual Inspiring Hope Houston event. This year, the Wilsons were named Vision of Hope honorees in recognition of their dedication to the mission of finding a cure.

Oligodendroglioma is a rare and under-researched form of brain cancer with limited treatment options. At Oligo Nation, we are working every day to change that by accelerating research and building a community committed to advancing better outcomes for patients and families.

As we begin and look ahead to Oligo Day on May 17th, stories like Julie and Corey’s remind us why this work matters. Share your story using and visit oligoday.org to support our mission.

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