The Caregiver Space

The Caregiver Space Visit our website for online support groups, community forums, and other resources for caregivers. We're a registered nonprofit.

Not everyone has access to a panel of experts with caregiving experience, but as a member of The Caregiver Space you do. We're a community of experienced caregivers and experts who've been there, done that. You’re a caregiver if you…

- are supporting a loved one through an acute illness, like cancer
- are supporting a loved one in recovery after an accident
- provide support for a loved one who has a chronic illness or disability, like diabetes, mental illnesses, or autism
- help an elderly relative or friend with household chores, the bills, and other tasks
- are a professional caregiver in a home, nursing home, hospital, or other facility
- volunteer to support the ill, disabled, or elderly
- have ever done any of the things mentioned above

This is a community of caregivers supporting each other. People who respond to the sharing of personal experiences with attacks and political commentary will be removed.

When a Friend Becomes a Caregiver"Eldercare, typically considered a family obligation, is evolving to adapt to demograph...
10/06/2026

When a Friend Becomes a Caregiver

"Eldercare, typically considered a family obligation, is evolving to adapt to demographic shifts that make reliance on spouses and children less assured. “The number of older adults who have never married or are divorced has been increasing, so we have more people aging alone,” said Deborah Carr, a sociologist at Boston University who has investigated these trends. “The proportion who are childless, by choice or not, is also growing,” she added, and families with children have fewer of them than in past generations....

“Eldercare, typically considered a family obligation, is evolving to adapt to demographic shifts that make reliance on spouses and children less assured. “The number of older adults who have never…

Loving someone doesn't magically make it not exhausting to have your life revolve around managing a chronic illness
10/02/2026

Loving someone doesn't magically make it not exhausting to have your life revolve around managing a chronic illness

I am typing this into a blank text box on an anonymous forum because if I said any of it out loud to the people in my life, they would mistake my exhaustion for a lack of love. I am in my mid-30s…

When You Feel Lonely in Your Relationship (and Feel Like You Aren’t Allowed To)There is a very specific, heavy kind of i...
09/30/2026

When You Feel Lonely in Your Relationship (and Feel Like You Aren’t Allowed To)

There is a very specific, heavy kind of isolation that happens when you share a life with someone who has significant physical or mental health needs. It’s the feeling of sitting in a room right next to the person you love most, feeling completely, utterly alone... and then beating yourself up for feeling that way. Because the voice in your head kicks in real quick, doesn't it?...

There is a very specific, heavy kind of isolation that happens when you share a life with someone who has significant physical or mental health needs. It’s the feeling of sitting in a room right next…

My mum has died – and every decision I make about her belongings feels wrongYou hear the term “sadmin” bandied about, yo...
09/23/2026

My mum has died – and every decision I make about her belongings feels wrong

You hear the term “sadmin” bandied about, you understand there’s paperwork to do after somebody dies – but until it’s you who has to do it, you don’t realise how much, what it entails or how encompassing it is. My mum’s death has basically become my full-time job. The hours are terrible, the pay is worse and the promotion prospects sobering, to say the least....

You hear the term “sadmin” bandied about, you understand there’s paperwork to do after somebody dies – but until it’s you who has to do it, you don’t realise how much, what it entails or how…

How to Talk About Hard Truths Without Making It About BlameSometimes the math in a relationship stops adding up. You fin...
09/23/2026

How to Talk About Hard Truths Without Making It About Blame

Sometimes the math in a relationship stops adding up. You find yourself carrying the physical, mental, and emotional load for two, while your partner — spouse, long-term partner, or whoever you’ve built your life with — seems to take up all the air in the room. The advice out there assumes that your partner was an absolute angel who unexpectedly got sick, and now you’re both gracefully holding hands through the storm....

Sometimes the math in a relationship stops adding up. You find yourself carrying the physical, mental, and emotional load for two, while your partner — spouse, long-term partner, or whoever you’ve…

Rizpah and the Power of PresenceThe story of Rizpah, from 2 Samuel 21, helps caregivers go on in hopeless situations. Wh...
09/16/2026

Rizpah and the Power of Presence

The story of Rizpah, from 2 Samuel 21, helps caregivers go on in hopeless situations. When we cannot save the people we love, we can preserve their dignity, keep their story, and be there with them....

The story of Rizpah, from 2 Samuel 21, helps caregivers go on in hopeless situations. When we cannot save the people we love, we can preserve their dignity, keep their story, and be there with them.

When every appointment adds one more task, caregivers end up drowning in details instead of focusing on what truly matte...
09/09/2026

When every appointment adds one more task, caregivers end up drowning in details instead of focusing on what truly matters. This piece explores how modern care systems create endless busywork, why it leads to burnout, and what gets lost when real care is replaced by fake work.

I was reading Jonathan Rady’s book on the Hapsburgs and he described an aristocrat as a flimflitter. The flimflitter obsessively maintained daily records, while completely missing the significance of…

When My Father’s Canary Flew Away"Eventually, he was diagnosed with vascular dementia, which is most often caused by str...
09/07/2026

When My Father’s Canary Flew Away

"Eventually, he was diagnosed with vascular dementia, which is most often caused by strokes. For five years after that, my parents lived with my family outside Boston, and we learned firsthand how brain injury affects behavior. My father recovered in some ways, but he became chaotic, his thoughts broken into mirror shards. The biggest problem was that he had no idea where he was....

“Eventually, he was diagnosed with vascular dementia, which is most often caused by strokes. For five years after that, my parents lived with my family outside Boston, and we learned firsthand how…

Canada’s quiet crisis in sibling caregiving"As people with intellectual disabilities and autism live longer, families ar...
09/07/2026

Canada’s quiet crisis in sibling caregiving

"As people with intellectual disabilities and autism live longer, families are expected to absorb the gap between need and support. When parents age or die, the responsibility does not disappear. It shifts — almost automatically — to brothers and sisters. This transfer of care is rarely planned, rarely supported and almost never acknowledged by public policy. Sibling caregiving is not incidental....

“As people with intellectual disabilities and autism live longer, families are expected to absorb the gap between need and support. When parents age or die, the responsibility does not disappear.

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