Endometriosis Excision for All

08/28/2026

A reminder for anyone who needs it today... 💛

You are stronger than your diagnosis.

You are more than your pain.

You are not alone.

Some days are about surviving, and that's okay. Keep taking things one step at a time. We're cheering you on every step of the way.

💛 TAG someone who could use this reminder today.

08/27/2026

Advances in specialized MRI and expert transvaginal ultrasound now allow many cases of deep infiltrating endometriosis (DIE) to be diagnosed before surgery.

However, a normal MRI or ultrasound does not rule out endometriosis, especially s
superficial disease, which often cannot be seen on imaging. Surgery remains the gold standard for confirming superficial endometriosis and may still be necessary in many situations.

Our latest patient resource explains:
✨ When imaging can diagnose endometriosis
✨ Why a normal scan doesn't rule it out
✨ When surgery is still recommended
✨ What current guidelines say

Read the full article 📖 https://endoexcisionforall.org/patient-resources/surgery-diagnose-endometriosis-2026

💛 SAVE this post and SHARE it with someone who has been told, "Your scan is normal, so you don't have endometriosis."

08/26/2026

08/26/2026

While endometriosis often begins in the pelvis, research increasingly recognizes it as a chronic, inflammatory, whole-body disease that can affect multiple organ systems and impact every aspect of daily life.

This broader understanding helps explain why symptoms can extend beyond pelvic pain and why many people benefit from care from more than one specialist.

Read more 📖 https://endoexcisionforall.org/patient-resources/full-body-reality-of-endometriosis

💛 SAVE this post and SHARE it to help others understand the full reality of living with endometriosis.

08/25/2026

Two weeks ago, I found myself in the emergency room and a few hours later was having my second endometriosis excision surgery before turning 30. They removed 32 lesions, just three years after my first surgery in May 2023, when 73 were removed.

But the numbers are only a small part of what this disease actually looks like.

In the month before surgery, I could barely eat. I lost 12 pounds. I couldn’t stand for long periods of time. By the end, I was just trying to get through each day.

That is the part of endometriosis people don’t always see. It’s an invisible illness that can slowly take pieces of your life away while, from the outside, you may still look completely fine.

It’s missing being a maid of honor in your childhood friend’s wedding because you suddenly need surgery. It’s trying hormone after hormone and dealing with what they can do to your mind and body. It’s wondering what your fertility will look like. It’s planning your life around flare-ups. It’s never knowing if or when you’ll need another surgery.

And then there is what was actually happening inside my body. My re**um was stuck to my cervix. Endometriosis was involving my bowel, bladder, ureters, cervix, abdominal wall, uterine artery area, hypogastric nerve area, and multiple areas throughout my pelvis.

So many people with endometriosis are trying to work, show up, make plans, have relationships, build families, and live normal lives while fighting something inside their bodies that no one else can see.

I am beyond grateful to Lora Liu , Yaniv Larish , Dr. Valery Dronsky and their teams for taking such good care of me. 🙏 Endometriosis can cross organs and medical specialties, and my surgery is exactly why multidisciplinary care matters. Having the right specialists working together meant they could address the disease wherever they found it while protecting the organs, nerves, and structures around it.

Thank you everyone who has checked in, prayed, or sent a get well surprise. This happened so quickly I couldn’t tell everyone beforehand, but every bit of love has meant so much. ❤️‍🩹

08/25/2026

📣 It’s time to FIX THE SYSTEM.

Endometriosis excision surgery is the gold standard, but without an insurance code JUST for excision (outdating ablation), or proper provider training, patients are left suffering—or bankrupt.

We’re demanding:
✅ A specific insurance code for excision surgery (dissolving CPT code 58662)
✅ Mandatory excision training for providers

Women deserve more than outdated treatments and out-of-pocket bills. They deserve real care.

SIGN THE PETITION today and help us fight for coverage, competence, and compassion 🔗 https://www.change.org/p/establish-an-insurance-code-for-endometriosis-excision-surgery-and-mandate-proper-training?recruiter=1341945388&recruited_by_id=edffda50-31c9-11ef-a510-bf2e9350b34c&utm_source=share_petition&utm_campaign=share_petition&utm_medium=copylink&utm_content=cl_sharecopy_490110751_en-US%3A4&redirect_reason=deprecated-url

08/24/2026

Take action now. 📣

Endometriosis Excision for All, Women’s Health Advocates, and the American End of Endo Project 🎗️ Endometriosis Advocacy Nonprofit are working together with Rep. Nikema Williams’ office on this effort to push for clearer FMLA guidance for people living with Endometriosis & Adenomyosis.

You can send a letter directly to your Representative in just a few minutes using the template 🔗 https://win.newmode.net/endoexcisionforall/urgeyourrepresentativetoprotectworkerswithendometriosisadenomyosis

The deadline for Members of Congress to sign on is Wednesday, August 26th!

Add your voice. Help us get this across the finish line. 💛

EndometriosisAdvocacy FMLA WorkersRights WomensHealth WomensHealthAdvocacy EndoCommunity EndoExcisionForAll

08/24/2026

Every donation helps provide financial assistance for life-changing excision surgery today while supporting the advocacy needed to improve access for tomorrow.

We believe no one should have to choose between financial hardship and the care they need. Until policy catches up, we're committed to helping patients access treatment while working toward lasting change.

Make a difference today 💛 https://endoexcisionforall.org/donate

Together, we can help more patients access care and build a future where excision surgery is accessible to everyone.

08/23/2026

Bananas can be a nutritious snack for some people living with endometriosis. 🍌💛

They provide:
🍌 Fiber to support digestion
🍌 Potassium for muscle function
🍌 Vitamin B6, which supports normal hormone function
🍌 Antioxidants that support overall health

Everyone's body is different, so pay attention to what foods make you feel your best.

Disclaimer: This post is for educational purposes only and is not medical advice. Nutritional needs vary from person to person, so speak with a qualified healthcare professional before making dietary changes.