The Coalition for Hemophilia B

The Coalition for Hemophilia B The Coalition for Hemophilia B, Inc.
880 Third Avenue, 5th Floor
New York, NY 10022
212-520-8272 The Coalition for Hemophilia B is a 30-year-old nonprofit.

Our mission is to make quality of life the focal point of treatment for people with hemophilia B and their families through education, empowerment, advocacy, and outreach.

Regístrese Hoy- Foro Latino de Hemofilia B: 13 julioCada sesión de conversación de Foro Latino comenzará con la particip...
06/18/2026

Regístrese Hoy- Foro Latino de Hemofilia B: 13 julio
Cada sesión de conversación de Foro Latino comenzará con la participación de un Guía de Conversación, quien ayudará a presentar el tema y compartirá perspectivas e información durante aproximadamente 30 minutos. El enfoque del programa no es una presentación formal, sino una conversación de apoyo en la que los participantes puedan compartir experiencias, hacer preguntas, aprender unos de otros y crear conexiones significativas.
https://www.hemob.org/upcoming-events/07-13-2026
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Register today: Foro Latino de Hemofilia B: July 13
Each Foro Latino Rap Session will begin with a Conversation Guide who will help introduce the topic and share insights for approximately 30 minutes. The focus of the program is not a presentation, but a supportive conversation where participants can share experiences, ask questions, learn from one another, and build meaningful connections.

We are so excited to have you join us!

Apply by June 30 for the Men's Retreat: All selected applicants will receive a travel scholarship that includes airfare ...
06/17/2026

Apply by June 30 for the Men's Retreat: All selected applicants will receive a travel scholarship that includes airfare or mileage, lodging, and meals provided as part of the official event agenda.

FOR MEN WHO GET IT
• Men with hemophilia B
• Dads of children with hemophilia B
• Partners of women living with hemophilia B

A safe space for real conversations, genuine connection, and a community that understands.

NEW! Built for Real-Life Schedules

Come in Thursday for an optional chill evening meetup, arrive Friday night, or roll in Saturday morning, whatever works best for your life and schedule. This experience was designed to meet you where you are, with meaningful conversations, interactive sessions, real connection, and time to recharge alongside other men who get it.

Selected participants receive a full travel scholarship, including airfare or mileage, hotel accommodations, and meals included as part of the official event experience.

The Hemophilia B Men’s Education & Empowerment Program is more than a retreat, it’s a space to connect, laugh, learn, and talk openly with other guys navigating similar experiences in a supportive, judgment-free environment.

Attendees build genuine camaraderie, explore new perspectives, stay informed, and gain practical tools for navigating life, health, relationships, work, and the future with confidence.

The connections made here don’t end when the weekend is over. Men leave feeling supported, empowered, and part of a community that continues to show up for one another long after the program ends.

Apply by June 30: https://www.hemob.org/upcoming-events/10-25-2026

Women's Education & Empowerment Program: Save the date: Sept 17-20, 2026 IN PERSON LOCATION TBDAll selected applicants w...
06/17/2026

Women's Education & Empowerment Program: Save the date: Sept 17-20, 2026 IN PERSON LOCATION TBD

All selected applicants will receive a travel scholarship that includes airfare or mileage, lodging, and meals provided as part of the official event agenda.

The Hemophilia B Women’s Education & Empowerment Program is a unique three-day experience, during which women are given a safe space to share their journey with others and gain support.

All women attending benefit from the connections and learn strategies for managing hemophilia B through all life stages. Attendees continue to stay on the cusp of innovation through the education and resources provided. They are empowered by the journey they take together, provide each other with support not only during the retreat but on an ongoing basis, and stand ready to deal with life’s challenges!

Apply by June 30: https://www.hemob.org/upcoming-events/09-17-2026

Join us on July 10, 8PM ET/5PM Pacific for Voices of Her Bloodline: For women living with hemophilia and those still on ...
06/17/2026

Join us on July 10, 8PM ET/5PM Pacific for Voices of Her Bloodline: For women living with hemophilia and those still on the journey to diagnosis.

Each Voices of Her Bloodline, Women's Rap Session will begin with a Conversation Guide who will help introduce the topic and share insights for approximately 30 minutes. The focus of the program is not a presentation, but a supportive conversation where women can share experiences, ask questions, learn from one another, and build meaningful connections.

Register Today: https://www.hemob.org/upcoming-events/07-10-2026

It is with great sadness that we learned of the passing of Matthew Compton.Matthew was a well-known and beloved member o...
06/17/2026

It is with great sadness that we learned of the passing of Matthew Compton.

Matthew was a well-known and beloved member of the bleeding disorders community whose kindness, friendship, and presence touched the lives of so many. This is a very sad loss for our community.

He will be remembered not only as a dedicated member of our community, but as a loving husband, father, son, and friend.

The Coalition for Hemophilia B extends our heartfelt condolences to Matthew’s family, friends, and all who had the privilege of knowing him. During this difficult time, we hold his loved ones in our thoughts and prayers and hope they find comfort in the many lives he touched and the memories he leaves behind.

Matthew’s impact on our community will not be forgotten, and he will be deeply missed.

Matthew Compton
February 16, 1971 – June 13, 2026

For those wishing to celebrate Matthew’s life, funeral services will be held on Saturday, June 20, at 11:00 a.m. in Queen Creek, Arizona. The family will share a Zoom link available for those unable to attend in person.

Please join us in keeping Matthew’s family and loved ones in your thoughts and prayers.

It's time to register for Fall Meetings on the Road! Meetings on the Road are educational, supportive, and free for all ...
06/16/2026

It's time to register for Fall Meetings on the Road! Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.

Connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

This is a family-friendly event, so bring your loved ones and create new memories with your community. Whether you're new or a veteran, this gathering is for you.

Each meeting takes place on a Saturday and features a full day of exciting activities and interactive learning sessions. You'll have the chance to learn from distinguished speakers and share your experiences with other attendees on living with hemophilia B. We also have fun games and special experiences planned to keep us entertained and engaged.

There are field trips for tweens and teens in every city, as well as a childcare playroom for babies, toddlers, and young children. If you are traveling over 2 hours to attend you are invited to apply for one hotel room the Friday night before to make your trip more comfortable.

Don't miss out on this incredible opportunity to build connections, make friends, learn new things, and have a blast. We can't wait to see you and your family in person!

Register today: https://www.hemob.org/meetings-on-the-road

Introducing Living B: The Virtual Men’s Collective on June 30, 8PM ET/5PM Pacific.Session Topic: Men's Health: Investin...
06/16/2026

Introducing Living B: The Virtual Men’s Collective on June 30, 8PM ET/5PM Pacific.

Session Topic: Men's Health: Investing in Your Well-Being with Seth Miller

A space built for men living with hemophilia B and dads raising the next generation. No fluff. No pressure. Just real conversations with people who get it.

Whether you’re managing your own journey or showing up for your kid, this is where you can talk straight, learn what matters, and connect with guys who understand the day-to-day.

Real talk
Solid connections
Practical insight

Because doing this alone isn’t how it’s meant to be.

Men are often taught to push through pain, stay busy, and put their own needs last. In this interactive session, Seth Miller will explore the physical, emotional, and lifestyle factors that influence men's health and longevity. Together, participants will discuss common barriers to seeking care, the importance of preventive health practices, stress management, and practical strategies for building healthier habits. Whether you're looking to improve your overall wellness or simply start paying closer attention to your health, this session offers encouragement, insight, and actionable tools for every stage of life.

Seth Miller is a transformational speaker, coach, author, and retired United States Air Force veteran with more than 21 years of military service and over a decade of experience helping individuals and organizations achieve lasting growth. A native of Detroit, Michigan, Seth is passionate about equipping people with the tools, mindset, and resilience needed to navigate challenges and lead with confidence.

Register Today: https://www.hemob.org/upcoming-events/06-30-2026

For men 18 and over with Hemophilia B, join us for our next Virtual Gene Therapy session TOMORROW, June 16If you’re cons...
06/15/2026

For men 18 and over with Hemophilia B, join us for our next Virtual Gene Therapy session TOMORROW, June 16

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided!

Register Today: https://www.hemob.org/upcoming-events/06-09-202

Join us TODAY at 8PM ET/5PM Pacific for The Caregiver Thread - A Virtual Space for Caregivers Across Generations.Whether...
06/15/2026

Join us TODAY at 8PM ET/5PM Pacific for The Caregiver Thread - A Virtual Space for Caregivers Across Generations.

Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand. We are stitched together by love, endurance, and compassion. Because what you do matters, and you’re not alone.

Each Caregiver Thread rap session will begin with a Conversation Guide who will help introduce the topic and share insights for approximately 30 minutes. The focus of the program is not a presentation, but a supportive conversation where caregivers can share experiences, ask questions, learn from one another, and build meaningful connections.

Session Topic: Compassion Fatigue- Caring deeply for a loved one can be both meaningful and exhausting. In this supportive session, Lucretia Jelks will explore the often-overlooked topic of compassion fatigue, the emotional, mental, and physical toll that can develop when caring for others through ongoing challenges. Participants will learn how to recognize the signs and symptoms of compassion fatigue, understand the difference between compassion fatigue and burnout, and discover practical strategies for self-care, emotional resilience, and recovery. Through reflection, validation, and real-world tools, caregivers will be encouraged to care for themselves with the same compassion they so freely give to others.

Community Co-Hosts: Leisa M & Melissa P

Lucretia is a motivational speaker, financial educator, mental health coach, and ordained minister who is passionate about helping others move from simply existing to truly living. With more than 30 years of public speaking experience, she has dedicated her career to empowering individuals and families through education, encouragement, and practical tools for personal growth.

Register today: https://www.hemob.org/upcoming-events/06-15-2026

June 17: Virtual Deep Rest Sound Bath: Let Your Body Exhale, Featuring Sonia Cobos, 8pm ET/5pm Pacific✨ Take a moment to...
06/15/2026

June 17: Virtual Deep Rest Sound Bath: Let Your Body Exhale, Featuring Sonia Cobos, 8pm ET/5pm Pacific

✨ Take a moment to slow down, breathe, and quiet your mind.

A deeply relaxing experience where you can sit or lie comfortably while listening to calming sounds designed to help your body fully unwind. There’s nothing to do, just rest and receive. ✨

Sonia Cobos is a clinical counselor specializing in emotional regulation, trauma-informed care, and addiction recovery. Trained in CBT, DBT, and ACT, she facilitates engaging workshops that support resilience, connection, and personal growth. She holds a medical degree from UABC and a Master’s in Addictions and Rehabilitation Counseling from St. Cloud State University.

Join in the B-Hub: https://www.hemob.org/upcoming-events/06-17-2026

Address

880 Third Avenue 5th Floor
New York, NY
10022

Telephone

+12125208272

Website

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