The Endometriosis Foundation of America

The Endometriosis Foundation of America Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The Endometriosis Foundation of America, Charitable organisation, 872 Fifth Avenue, New York, NY.
(626)

The EndoFound is a non-profit organization focused on increasing disease recognition, providing advocacy, facilitating expert surgical training, and funding landmark endometriosis research.

06/17/2026

“Her organs were glued together.”

When Kara O'Malley learned the extent of her daughter Krissy O’Malley Duenkel’s endometriosis, it put years of unexplained symptoms into heartbreaking perspective.

In this special two-part episode of EndoTV, host Diana Falzone sits down with Kara and Krissy of Our Daughters Foundation to discuss their family’s experience with and . From delayed diagnosis and infertility to life as a Division I athlete whose health was steadily declining.

It’s an honest conversation about what happens when symptoms are dismissed, the devastating impact of diagnostic delays, and what it means to finally have answers.

Listen to part one of their story wherever you get your podcasts. 🎧 https://open.spotify.com/episode/2SrCXKZwuiEWVhMpU8tTTr?si=yUsBoKJZTMCA_SWf0_X3Kg

525 students. 21 classroom presentations. One unforgettable day 💛Last week, the ENPOWR Project reached a milestone at Be...
06/15/2026

525 students. 21 classroom presentations. One unforgettable day 💛

Last week, the ENPOWR Project reached a milestone at Benjamin Cardozo High School in Queens, NY, educating 525 sophomore health students about in what became our largest single-day school outreach effort to date.

What made the day especially meaningful wasn’t just the numbers, it was the engagement.

Students asked thoughtful questions, shared personal experiences, and stayed after class to continue conversations about symptoms, self-advocacy, and reproductive health.

As Endo Educator Zoë Pribula shared, “I got to be the person I wish I had 15 years ago.”

That’s exactly why ENPOWR exists: to ensure young people have the information, language, and confidence to recognize symptoms, advocate for themselves and their loved ones.

Thank you to our incredible staff, volunteer Endo Educators, and the students and faculty at Benjamin Cardozo High School for making this record-setting day possible!

06/14/2026

What if changing the future of endometriosis didn't require one big gesture, but a community of people showing up month after month?

That's the idea behind EndoCircle, EndoFound's monthly giving community.

As Leslie Mosier shares, small acts, when multiplied by many people over time, can create extraordinary change.

Monthly support helps fuel the work that happens every day, not just during awareness month or moments of urgency, but all year long. It helps us invest in research, education, advocacy, awareness, and support for the millions affected by endometriosis.

No contribution is too small. When we come together, every gift becomes part of something bigger.

💛 Join EndoCircle and help create lasting change, one month at a time: https://give.endofound.org/campaign/805677/donate

"I was convinced that nobody would ever figure out what was wrong."For years, Maggie was told her debilitating pain was ...
06/12/2026

"I was convinced that nobody would ever figure out what was wrong."

For years, Maggie was told her debilitating pain was normal. Even after her sister was diagnosed with stage IV endometriosis, her concerns were dismissed.

It wasn't until surgery in 2024 that she finally received the answer she'd spent more than a decade searching for: aggressive stage IV endometriosis and adenomyosis.

Maggie's story is one of resilience, advocacy, and refusing to give up on herself when the healthcare system repeatedly failed her.

💛 Swipe through and read her full story: https://www.endofound.org/my-endometriosis-symptoms-were-dismissed-even-after-my-older-sister-was-diagnosed-with-stage-iv

If you've ever questioned your own pain because someone else dismissed it, this story is for you.

Summer is supposed to be carefree.But for many people with , it’s navigating pain during vacations, worrying about flar...
06/11/2026

Summer is supposed to be carefree.

But for many people with , it’s navigating pain during vacations, worrying about flares during long-planned events, dealing with fatigue in the heat, hiding bloating under summer clothes, and wondering if they’ll have to cancel yet another outing.

If this feels familiar, you’re not alone. And if someone in your life lives with endometriosis, this is a glimpse into what summer can really look like.

Share this to help others better understand the realities of 💛

06/09/2026

What happens when, after years of pain, confusion, and unanswered questions, you finally feel seen?

In this clip from Part 2 of our latest EndoTV Podcast episode, actress Fọlákẹ́ Olówófôyekù shares how reading Dr Seckin’s book helped her make sense of experiences she had carried for years. For so many people living with endometriosis, validation can be life-changing.

Host Diana Falzone, Seckin Endometriosis Center, and Folake discuss the realities of diagnostic delay, the historical dismissal of women's pain, the importance of education and self-advocacy, and the hope emerging from ongoing research.

🎧 Listen to Part 2 of the EndoTV Podcast wherever you stream your podcasts: https://open.spotify.com/episode/5yxUsI76iN0uY3Spz9Xwhj?si

Dr. Seckin's newly updated 2nd edition of “The Doctor Will See You Now” is now available. All proceeds from book sales benefit EndoFound's mission to advance education, awareness, advocacy, and research: https://a.co/d/03Km38kz

It’s chronic pelvic pain.It’s fatigue that doesn’t go away with rest.It’s back pain, hip pain, leg pain, and nerve pain....
06/09/2026

It’s chronic pelvic pain.
It’s fatigue that doesn’t go away with rest.
It’s back pain, hip pain, leg pain, and nerve pain.
It’s painful s*x.
It’s bloating, nausea, and GI symptoms that are often mistaken for something else.

It’s canceled plans.
It’s sleepless nights and heating pads.
It’s missed school, missed work, and missed opportunities.
It’s anxiety about when the next flare will hit.
It’s years spent searching for answers.
It’s being told your symptoms are “normal.”
It’s feeling dismissed, doubted, or misunderstood.
It’s wondering if anyone believes you.

It’s carrying the emotional weight of a disease that so often goes unseen.

Endometriosis is a whole-body disease that affects every aspect of a person's life.

“Through everything, I was still thinking this was normal, that it was okay.”Taylor Johnson spent years living with pain...
06/04/2026

“Through everything, I was still thinking this was normal, that it was okay.”

Taylor Johnson spent years living with pain so severe she would vomit, pass out, crawl on the floor, and pray for relief. She was told to "toughen it out." She was told it was normal. She was told her pain might be in her head.

She wasn't diagnosed with stage IV endometriosis until adulthood.

Now, Taylor is turning her experience into something bigger. A screenwriter whose work was selected for Sundance Institute's Development Track Program, she's revising her screenplay to include the diagnosis that changed her understanding of her own story—and hopes it will help other women see themselves, too.

Her journey is heartbreaking, inspiring, frustrating, and ultimately filled with purpose.

Read Taylor's full story:
https://www.endofound.org/with-recognition-from-sundance-screenwriter-taylor-johnson-seeks-a-home-for-her-script-on-life-with-

Sometimes research begins with a question that a family can't stop asking:Why are so many of us affected?For Kara O’Mall...
06/03/2026

Sometimes research begins with a question that a family can't stop asking:

Why are so many of us affected?

For Kara O’Malley, and have touched multiple generations of her family. What started as a search for answers became the Our Daughters Foundation and now, a commitment to helping uncover answers for others.

We're proud to share that the Our Daughters Foundation has partnered with EndoFound and the Seckin Endometriosis Research Center at Cold Spring Harbor Laboratory to launch the Our Daughters Foundation Endometriosis Genomics Initiative, which will explore the genetic and hereditary factors that may play a role in endometriosis.

Thank you to Kara and the entire O'Malley family for turning their experience into action.

Read their story: https://www.endofound.org/a-new-endometriosis-research-initiative-dedicated-to-genomics

06/02/2026

Ten years can change everything.

In this special two-part EndoTV episode, EndoFound co-founder Dr. joins host to discuss the newly updated edition of his book “The Doctor Will See You Now” and how our understanding of endometriosis has evolved over the past decade.

From recognizing endometriosis as a whole-body disease to advances in excision surgery, fertility preservation, and the growing awareness of thoracic, sciatic, and neurocentric endometriosis, this conversation explores both how far we’ve come… and how far we still have to go.

Whether you’re a patient, caregiver, advocate, or healthcare professional, this is a conversation you won’t want to miss.

🎧 Stream Part 1 now on Spotify and wherever you get your podcasts: https://open.spotify.com/episode/1anqKiGYG2iapl0ZbSIGRH?si=Onb7TM_cQweRcXemqWNWfg

Address

872 Fifth Avenue
New York, NY
10017

Website

Alerts

Be the first to know and let us send you an email when The Endometriosis Foundation of America posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Featured

Share

Category