The Endometriosis Foundation of America

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The Endometriosis Foundation of America

Nation's leading nonprofit for endometriosis. Trusted news, education, advocacy & resources for women's health. Founded in 2006.
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08/19/2026

One week and look at what you’ve done!

Registration for the 2026 has been open for just ONE week, and the endo community is already showing up BIG:

🏃‍♀️ 80+ participants registered
👯 17+ teams created
💰 Nearly $4,500 raised toward our $100,000 goal

And Julie said it best: Y’ALL ARE AMAZING!

The End Endo 5K is more than a 5K, it’s thousands of people across the country moving for a future where gets the research, care, and attention it deserves.

You can walk it. Run it. Roll it. Dance your way through it. Do it solo or bring your people. There’s no wrong way to .

The 2026 End Endo 5K takes place September 14–20, wherever you are.

And registration is just $25—which includes a donation to EndoFound. You don’t have to fundraise, but if you do, that $25 counts toward your goal.

We’re only one week in. Let’s see how far we can take this.

👉 Register HERE: https://give.endofound.org/event/2026-end-endo-5k/e807339

08/18/2026

No interview. No pay. No sick days.

The job: appointments that never really stop, insurance battles that become their own full-time gig, researching what doctors should already know. Somewhere along the way you become your own medical record, because no one else was keeping track.

None of this shows up on a resume and all of it is work. We see you 💛

08/17/2026

New York City went purple for endo 💜

On Aug. 14, the Empire State Building Observation Deck lit up in our awareness color to celebrate the release of Ayra Starr’s new album “Starrgirl,” in partnership with EndoFound. Ayra took one of the biggest moments of her career to raise awareness for , flipping the switch herself at a special ceremony before touring the Observation Deck.

Every lit building, every artist who says the word “endometriosis” out loud, every endo warrior who shares their story: it all adds up.

Thank you, Ayra, for shining a light (literally) on the endometriosis community💛

08/14/2026

"You got out of bed and were able to come here. I don't believe you're in the pain you've just described."

That's what a doctor told mimiimillerr when she was 16, mid-cycle, describing pain she'd later compare to fiery barbed wire scraping her insides.

Mimi had symptoms since sixth grade. Was told it was stress. Was put on birth control, then more birth control. Was told by another doctor, while she cried in his office, "I feel hopeless for you and hope you can find a way to deal with the pain for the rest of your life."

She was right the whole time. Surgery at 17 found eight lesions, all .

Her message to anyone still fighting to be believed: "Most of the time, we are underreacting and have learned to mask it. Please, just listen."

Read Mimi's full story: https://www.endofound.org/mimi-miller-teen-endometriosis-diagnosis-surgery

08/13/2026

“Over marketed.”

Tell that to the person whose organs feel glued together while something tries to rip them apart. Tell that to the person who says giving birth hurt less than a normal day with this disease.

These are real descriptions from real patients because words like “cramps” and “period pain” don’t even come close. affects roughly 1 in 10, and yet people wait an average of 7+ years for a diagnosis, often after being told it’s all in their head.

So no, we’re not overselling it. If anything, we’ve been begging people to believe patients for decades 💛

08/10/2026

You can be living your biggest career moment and be in agony at the same time.

At Cannes Lions, Leslie Mosier was doing exactly what she had worked so hard to do: standing on an international stage, talking about her career as a creator and the future of her industry. Behind the scenes, she was managing an flare.

Her period started just hours before her overnight flight. The record-breaking heat made her symptoms worse. She relied on pain medication, heating patches, and a portable fan just to get through the trip.

Then came the panel. And then, the hotel bathroom.

Leslie shared a vulnerable glimpse of what was happening beyond the polished photos and career highlights, a moment of pain, exhaustion, and the reality of living with a disease that doesn't care what's on your calendar.

“In the morning, you can be having this career high and at night, you can be sobbing in agony.”

But Cannes is only one chapter of Leslie's story.

After years of being dismissed, she found something she didn't know she was looking for: a community that understood. She found connection through sharing her own experience, turned her pain into music, and eventually found a new way to use her platform, as an advocate for the millions of people living with .

Today, she continues to share the parts of her life that don't make the highlight reel, because she knows what can happen when someone finally sees a story that looks like their own.

That is the full picture of endometriosis. A career high. A health low. A community found. A voice discovered. And a decision to keep sharing the reality, even when it's not pretty.

Read Leslie's full story on Blossom: https://www.endofound.org/showing-the-full-picture-of-pain-leslie-mosier-on-navigating-cannes-lions-during-an-endometriosis-fl

08/09/2026

🚨 FINAL DAY. We’re not at our goal yet.

Today is the last day of EndoFound’s ENPOWR Back-to-School Campaign and we still have a long way to go.

The good news? $15 can sponsor one school’s ENPOWR educational materials.That means one small gift can help put trusted endometriosis information into the hands of school nurses and students as a new school year begins.

And those materials matter.

They can help a student recognize symptoms that deserve attention.
They can give a school nurse the information to ask the right questions.
They can help someone understand what to bring to a doctor.
They can start a conversation that might otherwise never happen.

We have until midnight tonight to get these resources into more schools.

If you’ve been meaning to give, today is the day.

$15. One school. More students reached.

Sponsor a school before midnight here: https://give.endofound.org/campaign/828156/donate

And thank you to everyone who has already given, shared, encouraged, and helped us get this far. We’re incredibly grateful 💛

08/07/2026

“Fight for yourself. And on the days you can't, find people who will fight for you."

Kara Tersigni spent years believing her pain was simply part of being a woman.

Painful periods. Heavy bleeding. Pain with tampons. Debilitating back pain. Cyclical re**al bleeding. Infertility. One by one, her symptoms were explained away, minimized, or treated without anyone asking the bigger question: Could this be endometriosis?

It wasn't until surgery revealed extensive disease, including stage IV deep endometriosis, organs stuck together, and advanced adenomyosis, that Kara finally began getting the care she had needed all along.

Her journey didn't end there. It included multiple surgeries, a hysterectomy, and the grief of losing the future she imagined.

Today, Kara is sharing her story for everyone still searching for answers.

💛 Read Kara's full story: https://www.endofound.org/kara-tersigni-stage-iv-endometriosis-surgery-story

08/06/2026

$15 can put education into an entire school.

And with our fundraising deadline this Sunday, we’re asking: Will you sponsor just one school?

It may seem like a small gift, but here’s what it makes possible.

These are real, anonymous responses from students after completing EndoFound’s ENPOWR program:

“I thought I had endometriosis since I was young. I will bring it up to my OB/GYN at my next annual exam.”

“It helped me really understand what is actually going on with my body.”

“Learning what the diagnostic process looks like makes it feel a lot less intimidating.”

This is exactly why ENPOWR exists.

When students learn what endometriosis looks like—and what it doesn’t—they’re better equipped to recognize symptoms, advocate for themselves, and seek care sooner. Those conversations have the power to shorten diagnostic delays and change lives.

This year, more than 1,600 additional schools requested ENPOWR educational materials. With your help, we can get these resources into classrooms and school health offices before the new school year begins.

Just $15 sponsors one school 🎗️

If you’ve been looking for a meaningful way to make a difference, this is it.

Our campaign ends Sunday, and every school sponsored brings us one step closer to reaching a student who finally realizes their pain deserves answers.

Sponsor a school here: https://give.endofound.org/campaign/828156/donate

08/04/2026

If you needed this reminder today, it’s for you.

Never stop believing you deserve answers, better care, and a future that’s bigger than this disease.

Address

872 Fifth Avenue
New York, NY
10017

Website

http://www.endofound.org/

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