The Endometriosis Foundation of America

The Endometriosis Foundation of America Nation's leading nonprofit for endometriosis. Trusted news, education, advocacy & resources for women's health. Founded in 2006.
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Out of thousands of runners in the TCS NYC Marathon, only 26 are chosen for New York Road Runners's Team Inspire. Our ve...
10/07/2026

Out of thousands of runners in the TCS NYC Marathon, only 26 are chosen for New York Road Runners's Team Inspire. Our very own runner Sarah Sleva is one of them.

Team Inspire highlights runners with especially transformative stories, each representing one mile of the 26.2-mile course. Sarah's selection puts endometriosis in front of one of the biggest audiences in running.

Diagnosed with stage IV endometriosis in 2024, Sarah went through two major surgeries, including a total hysterectomy and bowel resection, and wondered whether her endurance sports journey was over. On November 1, she runs her first marathon at the race's 50th anniversary, alongside a record 70 Team EndoStrong runners.

"A diagnosis does not have to define our limits."

We couldn't be prouder, Sarah đź’›

Read her story and support her run: https://www.endofound.org/sarah-selva-runs-her-first-marathon-for-endometriosis-as-one-of-nyrrs-26-team-inspire-runners

Before World Mental Health Day this Saturday, October 10th, we want to talk about the part of endo that doesn’t show up ...
10/06/2026

Before World Mental Health Day this Saturday, October 10th, we want to talk about the part of endo that doesn’t show up on a scan.

The constant math of whether you can make it. The quiet grief. The worry that people will stop asking. So many of you carry this alone, and many have been told it isn’t real.

If you’re living in survival mode right now, you are not failing. You’re doing something incredibly hard, every single day.

This weekend, try to carve out one small moment that’s just for you. A slow morning, a walk, a call with someone who gets it. You’ve been carrying so much, let yourself set some of it down.

Our biggest Team EndoStrong ever is heading to the NYC Marathon. After 11 years of up to 50 spots in the TCS New York Ci...
10/02/2026

Our biggest Team EndoStrong ever is heading to the NYC Marathon.

After 11 years of up to 50 spots in the TCS New York City Marathon, New York Road Runners has given us 70, a 40% jump. Last year the team raised nearly $300,000. This year, we're going for $400,000+ for endometriosis awareness, education, and research.

Among the newcomers are Abbie and Eva, both told for years that their pain was normal.

Abbie danced through nearly two decades of symptoms before a six-hour surgery found stage IV endometriosis. Her husband Tyler, who got her through the worst of it, will be on the course cheering her on. "She's not a different person since the surgery," he said. "She's the person she was always meant to be."

Eva's pain started in sixth grade. A doctor told her, "I don't think you have that." She did. A week after her excision surgery, she applied to join the team.

Read their stories and support Team EndoStrong: https://www.endofound.org/70-strong-endofounds-team-endostrong-expands-its-presence-at-the-2026-new-york-city-marathon

"It's definitely not thoracic endometriosis."After nearly a week in the ICU with air in her chest that only appeared dur...
10/01/2026

"It's definitely not thoracic endometriosis."

After nearly a week in the ICU with air in her chest that only appeared during her periods, Alexandra Henry was called a medical mystery and told she was "one-of-one." It happened again exactly one month later.

It took more than ten years and a doctor who recognized the pattern before surgery found endometriosis in her chest. Not one X-ray, CT, or MRI ever showed it.

Swipe to learn the symptoms, then read Alexandra's full essay, "Overlooked, Not Rare," on The Blossom: https://www.endofound.org/overlooked-not-rare-thoracic-endometriosis-outside-the-textbook

Mood
09/28/2026

Mood

"As a law student with endometriosis, I've learned that zealous advocacy also applies to yourself. You know your body be...
09/25/2026

"As a law student with endometriosis, I've learned that zealous advocacy also applies to yourself. You know your body better than anyone else. Don't let anyone ever tell you otherwise."

Isabelle Garino’s pain started at 14. For six years, she was moved from one birth control pill to the next. None of them worked.

She kept going anyway, graduating magna cm laude and starting law school, until she decided she wasn't taking another pill.

That's when she became her own client.

Read how Isabelle fought for her diagnosis: https://www.endofound.org/isabelle-garino-law-student-endometriosis-story

09/24/2026

We want to hear from YOU!

What brands or products make a difference in your life, ? Please tell us by commenting & tagging them below đź’›

Students, before this new school year gets any busier, add one more thing to your list: learning to tell when your pain ...
09/23/2026

Students, before this new school year gets any busier, add one more thing to your list: learning to tell when your pain is more than just a bad month.

Missing class, practice, or plans because of pain isn't something you're meant to push through. It could be endometriosis, a chronic inflammatory disease that affects more than 1 in 10 people assigned female at birth, with symptoms that often begin around puberty.

And endo isn't just a painful period. It's a full-body disease that can show up as bloating, nausea, painful bathroom trips, and exhaustion that sleep doesn't fix, and it can affect your nervous system, immune system, and mental health too.

This guide was written by a teen, for teens. High school student Aishwarya Sundarmurthy advocates for endometriosis awareness and healthcare equity through EndoFound's ENPOWR Project, Flow Forward NJ, and Advancing With Healthcare, organizes menstrual product drives for those in need, and volunteers at St. Joseph's Medical Center.

Thank you, Aishwarya, for helping make this school year a little easier for someone who needs it đź’›

Read the full guide here: https://www.endofound.org/a-back-to-school-guide-to-endometriosis-in-teens

As of today, the 2026 has raised an incredible $136,600!Our original goal was $100,000. You blew past it. So we raised...
09/22/2026

As of today, the 2026 has raised an incredible $136,600!

Our original goal was $100,000. You blew past it. So we raised it to $120,000. You blew past that. So we raised it AGAIN to $130,600. And you blew past that, too.

Honestly, we’re running out of ways to tell you how incredible you are. And we’re not done! That’s only our initial total. Additional donations, matching gifts, and 5K merch proceeds are still being added.

Meant to give but didn’t get the chance? The campaign page is open through Friday, September 25. You can still support an individual fundraiser, a team, or the overall campaign here: https://give.endofound.org/event/2026-end-endo-5k/e807339

We’ll be back the first week of October with final results. But today, we just want to say THANK YOU.

Thank you for moving. Thank you for giving. Thank you for fundraising. Thank you for sharing your stories. Thank you for cheering each other on. Thank you for making this community what it is. Together, we moved for millions đź’›

Your surgeon should be earning your trust, not just your appointment slot.Choosing who operates on you is one of the big...
09/21/2026

Your surgeon should be earning your trust, not just your appointment slot.

Choosing who operates on you is one of the biggest decisions in your journey, and many patients walk into a consult without knowing what to ask (or feeling like they even can ask). This isn’t about being difficult. It’s about knowing your body deserves someone who’s asked and answered these questions a hundred times before.

Swipe through the questions every patient should feel empowered to ask before surgery, because you’re not just being interviewed as a patient. You’re interviewing them too.

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