Familial Dysautonomia Foundation, Inc.

Familial Dysautonomia Foundation, Inc. Providing treatment & research for Familial Dysautonomia, a rare genetic disorder. More info at http

Mark your calendars - FDMatch 2026 is coming October 1st!
09/14/2026

Mark your calendars - FDMatch 2026 is coming October 1st!

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on ...
03/10/2026

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on Monday, June 22nd, 2026.

Join us for a day of golf, great food and drink and a raffle and live/silent auction, with all proceeds benefiting the FD Foundation.

Register, Sponsor or Donate here: https://bit.ly/2026fdgolf

To honor Rare Disease Day and our 75th year, we invite you to tell us (on social media) one way the Foundation has helpe...
02/28/2026

To honor Rare Disease Day and our 75th year, we invite you to tell us (on social media) one way the Foundation has helped you along your FD journey.

Thank you to Dr. Clawson for sharing their powerful and deeply moving post in recognition of Rare Disease Day, and for so eloquently highlighting your family’s experience with the FD Foundation.

We are truly grateful for your contribution and inspired by your willingness to share your story. Your voice helps raise awareness, strengthen our community, and bring greater visibility to the rare disease journey.

Today is Rare Disease Day! 💙This year is especially meaningful as we celebrate the 75th Anniversary of the Familial Dysa...
02/28/2026

Today is Rare Disease Day! 💙

This year is especially meaningful as we celebrate the 75th Anniversary of the Familial Dysautonomia Foundation.

To honor this day, we invite you to share one way the Foundation has supported you on your FD journey. Post a favorite photo, short video, or written message about a meaningful moment, milestone, or gratitude.

Our goal: 75 posts — one for each year — to raise awareness for Familial Dysautonomia and highlight our incredible community.

On February 28:
📸 Share a favorite photo,
🎥 Post a short video, or
✍️ Write a caption about one way the Foundation has supported you on your FD journey.

Use , , and and tag the FD Foundation so we can reshare :)

Together, we honor the past and inspire hope for the future.

Only 3 days until Rare Disease Day on February 28 💙This year is extra special as we celebrate the 75th Anniversary of th...
02/26/2026

Only 3 days until Rare Disease Day on February 28 💙

This year is extra special as we celebrate the 75th Anniversary of the Familial Dysautonomia Foundation. For 75 years, our community of families, individuals, clinicians, researchers, and supporters has shaped the fight against Familial Dysautonomia together.

To honor Rare Disease Day, we’re aiming for 75 posts — one for each year of impact.

On February 28:
📸 Share a favorite photo,
🎥 Post a short video, or
✍️ Write a caption about one way the Foundation has supported you on your FD journey.

Use and tag us so we can share your story.

Let’s raise awareness, celebrate our strength, and inspire hope for the future — together. 💙

🏃‍♀️💙 Run With Purpose. Join Team FD! 💙🏃‍♂️Looking for a meaningful way to challenge yourself in 2026?Join Team FD and r...
02/20/2026

🏃‍♀️💙 Run With Purpose. Join Team FD! 💙🏃‍♂️

Looking for a meaningful way to challenge yourself in 2026?
Join Team FD and run the United Airlines NYC Half Marathon while raising critical funds for the Familial Dysautonomia Foundation.

✨ Be part of an incredible team
✨ Make a real impact for families affected by FD
✨ Experience one of the most iconic races in the world

📅 Race Day: March 15, 2026
🌆 Brooklyn ➡️ Manhattan ➡️ Central Park
❤️ Every step supports research, awareness, and hope

👉 Sign up and join Team FD today:
https://p2p.onecause.com/fdhalf26

Run for something bigger than yourself. We’d love to have you on Team FD!

Address

315 W 39th Street, Rm 701
New York, NY
10018

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12122791066

Website

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