Familial Dysautonomia Foundation, Inc.

Familial Dysautonomia Foundation, Inc. Providing treatment & research for Familial Dysautonomia, a rare genetic disorder. More info at http

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on ...
03/10/2026

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on Monday, June 22nd, 2026.

Join us for a day of golf, great food and drink and a raffle and live/silent auction, with all proceeds benefiting the FD Foundation.

Register, Sponsor or Donate here: https://bit.ly/2026fdgolf

To honor Rare Disease Day and our 75th year, we invite you to tell us (on social media) one way the Foundation has helpe...
02/28/2026

To honor Rare Disease Day and our 75th year, we invite you to tell us (on social media) one way the Foundation has helped you along your FD journey.

Thank you to Dr. Clawson for sharing their powerful and deeply moving post in recognition of Rare Disease Day, and for so eloquently highlighting your family’s experience with the FD Foundation.

We are truly grateful for your contribution and inspired by your willingness to share your story. Your voice helps raise awareness, strengthen our community, and bring greater visibility to the rare disease journey.

Today is Rare Disease Day! 💙This year is especially meaningful as we celebrate the 75th Anniversary of the Familial Dysa...
02/28/2026

Today is Rare Disease Day! 💙

This year is especially meaningful as we celebrate the 75th Anniversary of the Familial Dysautonomia Foundation.

To honor this day, we invite you to share one way the Foundation has supported you on your FD journey. Post a favorite photo, short video, or written message about a meaningful moment, milestone, or gratitude.

Our goal: 75 posts — one for each year — to raise awareness for Familial Dysautonomia and highlight our incredible community.

On February 28:
📸 Share a favorite photo,
🎥 Post a short video, or
✍️ Write a caption about one way the Foundation has supported you on your FD journey.

Use , , and and tag the FD Foundation so we can reshare :)

Together, we honor the past and inspire hope for the future.

Only 3 days until Rare Disease Day on February 28 💙This year is extra special as we celebrate the 75th Anniversary of th...
02/26/2026

Only 3 days until Rare Disease Day on February 28 💙

This year is extra special as we celebrate the 75th Anniversary of the Familial Dysautonomia Foundation. For 75 years, our community of families, individuals, clinicians, researchers, and supporters has shaped the fight against Familial Dysautonomia together.

To honor Rare Disease Day, we’re aiming for 75 posts — one for each year of impact.

On February 28:
📸 Share a favorite photo,
🎥 Post a short video, or
✍️ Write a caption about one way the Foundation has supported you on your FD journey.

Use and tag us so we can share your story.

Let’s raise awareness, celebrate our strength, and inspire hope for the future — together. 💙

🏃‍♀️💙 Run With Purpose. Join Team FD! 💙🏃‍♂️Looking for a meaningful way to challenge yourself in 2026?Join Team FD and r...
02/20/2026

🏃‍♀️💙 Run With Purpose. Join Team FD! 💙🏃‍♂️

Looking for a meaningful way to challenge yourself in 2026?
Join Team FD and run the United Airlines NYC Half Marathon while raising critical funds for the Familial Dysautonomia Foundation.

✨ Be part of an incredible team
✨ Make a real impact for families affected by FD
✨ Experience one of the most iconic races in the world

📅 Race Day: March 15, 2026
🌆 Brooklyn ➡️ Manhattan ➡️ Central Park
❤️ Every step supports research, awareness, and hope

👉 Sign up and join Team FD today:
https://p2p.onecause.com/fdhalf26

Run for something bigger than yourself. We’d love to have you on Team FD!

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on ...
02/13/2026

It’s time for the Familial Dysautonomia’s 29th Annual Golf Classic, hosted at the Old Westbury Golf and Country Club on Monday, June 22nd, 2026.

Join us for a day of golf, great food and drink and a raffle and live/silent auction, with all proceeds benefiting the FD Foundation.

Register, Sponsor or Donate here: https://bit.ly/2026fdgolf

🎉 75 years of hope, progress, and community.What began in 1951 as a small group of determined parents has grown into a g...
02/03/2026

🎉 75 years of hope, progress, and community.

What began in 1951 as a small group of determined parents has grown into a global effort to improve the lives of individuals living with Familial Dysautonomia. From advancing medical care to fueling groundbreaking research, every step forward has been possible because of you.

Thank you to our donors, families, researchers, and advocates for being part of this journey. Here’s to the next chapter — and all the hope ahead. 💙

Join Team FD and run the United Airlines NYC Half Marathon while raising critical funds for the Familial Dysautonomia Fo...
01/23/2026

Join Team FD and run the United Airlines NYC Half Marathon while raising critical funds for the Familial Dysautonomia Foundation.

📅 Race Day: March 15, 2026
🌆 Brooklyn ➡️ Manhattan ➡️ Central Park
❤️ Every step supports research, awareness, and hope

👉 Sign up and join Team FD today:
https://p2p.onecause.com/fdhalf26

Run for something bigger than yourself. We’d love to have you on Team FD!

🎉 WE DID IT! 🎉 raised over $300K—and it’s all thanks to YOU!Your support is fueling gene therapy research, medical care...
01/22/2026

🎉 WE DID IT! 🎉

raised over $300K—and it’s all thanks to YOU!

Your support is fueling gene therapy research, medical care, education, and essential services for the FD community. 💙

Together, we’re building a brighter future—one gift at a time.

https://p2p.onecause.com/fdmatch25

Deadline Extended: Reserve Your 2026 FD Journal Ad by Feb. 1st! Visit https://familialdysautonomia.org/2026journalThis y...
01/15/2026

Deadline Extended: Reserve Your 2026 FD Journal Ad by Feb. 1st!

Visit https://familialdysautonomia.org/2026journal

This year, we commemorate the Foundation’s 75th Anniversary--looking back at its humble beginnings as one of the first rare disease advocacy groups when it was founded by FD parents in 1951; and looking ahead with great hope for impactful new treatments that may soon be available for our community.

The 2026 FD Journal marks the FD Foundation’s 75th Anniversary—honoring our past, celebrating our community, and looking...
01/06/2026

The 2026 FD Journal marks the FD Foundation’s 75th Anniversary—honoring our past, celebrating our community, and looking ahead with hope for new treatments.

📅 Deadline: January 15, 2026
📞 To participate: Visit our Journal page https://familialdysautonomia.org/2026journal
or call (212) 279-1066

Thank you for honoring our past, supporting our present, and helping shape the future of the FD Foundation. Together, we continue to make history.

Address

315 W 39th Street, Rm 701
New York, NY
10018

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12122791066

Website

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