Lymphatic Education & Research Network

06/08/2026

June is National Lipedema Awareness Month!

AT LE&RN, we stand alongside the millions of individuals living with lipedema, a condition that remains frequently misunderstood, misdiagnosed, and underrecognized.

While important scientific questions remain regarding the relationship between lipedema and the lymphatic system, growing research continues to explore the role lymphatic dysfunction may play in disease progression and associated complications.

What is clear is that people living with lipedema deserve greater awareness, better access to care, and increased research investment.

06/02/2026

Big thanks to Palvella Therapeutics, one of our key sponsors for the 2026 National LymphWalk!

We’re grateful for your support and can’t wait to see everyone in Philadelphia on June 28th for a meaningful day of movement, connection, and hope.

Learn more and register: https://2026-national-lymphwalk-in-philadelphia-to-fight-l.runtheday.com/

05/26/2026

“We are witnessing a historic moment for lymphatic disease research,” said William Repicci, President & CEO of The Lymphatic Education & Research Network.

Stanford University is among the leading research centers that received ARPA-H funding to fast track diagnostics and cures for lymphatic diseases.

This is what advocacy makes possible: bold federal investment, translational research, and new hope for millions living with or at risk for lymphatic disease.

Read more:

Stanford researchers receive ARPA-H funding to develop an implantable device aimed at preventing lymphedema after cancer surgery.

05/21/2026

Save the date for a landmark conversation on the future of lymphatic science!

LE&RN and Dr. Stanley Rockson of Stanford University will host a Virtual Summit featuring the research teams leading two groundbreaking ARPA-H lymphatic research initiatives: LIGHT and GLIDE.

The field of lymphatic research is at a turning point, with more than $300 million committed to advancing diagnosis, imaging, monitoring, and new therapies for lymphatic dysfunction.

This marks the first large-scale federal investment dedicated to lymphatic science and is the result of LE&RN’s community advocacy.

Early bird registration is available for $30 through May 31. View the full agenda and register today: https://lymphaticnetwork.org/virtual-lymphatic-summit-2026

05/20/2026

Some conditions are easy to overlook on the surface, but their impact can be profound. Microcystic lymphatic malformations (mLM) may appear as small marks on the skin, yet many patients live with chronic leaking, recurrent infections, pain, and significant emotional strain that often remain unseen.

To help uncover the hidden realities of this rare genetic lymphatic disease, Palvella Therapeutics recently launched BEYONDmLM, a new awareness campaign and resource hub designed to educate, engage, and empower patients, caregivers, and healthcare professionals.

The BEYONDmLM campaign includes educational tools and tailored resources for both providers and patients. LE&RN is proud to partner with Palvella to provide expert review of these materials and support ongoing awareness efforts. Look beyond the surface and learn more at www.BEYONDmLM.com.

05/14/2026

Join the Lymphatic Education & Research Network on June 28 in Philadelphia for the Run/Walk to Fight Lymphedema & Lymphatic Disease.

This meaningful event brings together patients, caregivers, families, clinicians, advocates, and supporters to raise awareness and advance research, education, and advocacy for lymphatic diseases.

📍 Lloyd Hall, Philadelphia�👕 Register by May 22 to receive a complimentary event t-shirt.

Together, we can move research forward and support the millions impacted by lymphatic disease. Register today: https://2026-national-lymphwalk-in-philadelphia-to-fight-l.runtheday.com/

05/12/2026

One year ago, we lost Deb Carey. Before she passed, she asked her husband Jim to not forget about LE&RN. He hasn’t.

After Deb’s breast cancer diagnosis in 2018, Jim and Deb turned to LE&RN for education, guidance, and hope. Through the resources they found, they learned how to advocate for better care and ask the right questions when concerns about lymphedema were dismissed.

That knowledge changed everything. With the help of LE&RN, they found specialized care in New York City that helped Deb avoid developing lymphedema and gave her seven more meaningful years with the people she loved — years spent golfing, celebrating grandchildren, and living life fully.

“LE&RN taught us how to speak up. It made all the difference,” Jim shared. Today, Jim continues to honor Deb’s legacy through his ongoing support of LE&RN, helping ensure other families have access to the same life-changing education and care. Read Deb and Jim’s full story here: https://mailchi.mp/lymphaticnetwork/inspiring-ny-mets-exec-overcomes-lymphedema-1050268?e=[UNIQID]

If Deb’s story moves you, you can also make a donation through the article to help more families find hope, answers, and specialized care.

05/11/2026

Join us next Wednesday, May 20, for an important symposium featuring Professor Håkan Brorson, one of the world’s leading experts in lymphedema treatment and research.

Professor Brorson’s presentation will explore the role of adipose tissue deposition in lymphedema — groundbreaking research that changed the understanding of how the disease progresses and why swelling can become resistant to traditional therapies over time.

Attendees will learn:
✔️ Why fat accumulation becomes a major component of chronic lymphedema
✔️ When liposuction may become an effective treatment option
✔️ How liposuction combined with compression therapy can achieve complete volume reduction with long-term success

This symposium is designed for patients, caregivers, healthcare professionals, researchers, and policymakers interested in advancing lymphedema care and treatment.

Don’t miss this opportunity to learn from a global leader in the field. Register now: https://us06web.zoom.us/webinar/register/8117774653037/WN_IsAphOcQRRyb2rRkOnwoQg #/registration

05/04/2026

Join us for the 2026 National LymphWalk in Philadelphia and be part of a powerful movement advancing research, education, and advocacy for lymphatic diseases. Whether you’re walking for yourself, a loved one, or the broader community, every step helps bring visibility and momentum to this important cause.

Register by May 22 to receive your free LymphWalk t-shirt and wear it proudly as you walk alongside others who are making a difference.

Sign up, show up, and let’s move this mission forward together:

Walk 5K or 1 Mile on June 28, 2026 at Lloyd Hall, Philadelphia to fight lymphedema and lymphatic diseases. Register and fundraise for LE&RN.

04/27/2026

We’re proud to have had strong participation and support last week at our Advocacy Day in Washington, D.C.

Advocates, patients, families, clinicians, and researchers came together for a powerful day focused on advancing policy solutions that will lead to treatments and cures for lymphatic diseases.

The energy in the room during our morning training session was inspiring as attendees prepared to share their stories and make their voices heard on Capitol Hill.