MDS Foundation, Inc.

MDS Foundation, Inc. The MDS Foundation is building critical awareness of MDS, a rare, often undetected blood cancer.
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Living with myelodysplastic syndromes (MDS) can feel overwhelming, but no one should have to navigate the journey alone....
06/10/2026

Living with myelodysplastic syndromes (MDS) can feel overwhelming, but no one should have to navigate the journey alone. The MDS Foundation is dedicated to empowering patients and families through trusted education, compassionate support, valuable resources, and meaningful connections within the MDS community.

From diagnosis through treatment and beyond, we are committed to helping those impacted by MDS feel informed, supported, and hopeful every step of the way. 💙

Find education and support at mds-foundation.org

A diagnosis of myelodysplastic syndromes (MDS) impacts not only patients, but also the families, caregivers, and loved o...
06/08/2026

A diagnosis of myelodysplastic syndromes (MDS) impacts not only patients, but also the families, caregivers, and loved ones who support them throughout their journey. The MDS Foundation is proud to bring the MDS community together at our Patient & Family Forum on July 11 in Jacksonville.

This special event offers trusted education, meaningful support, and an opportunity for patients, families, and caregivers to connect, share experiences, and learn from others who understand the challenges of living with MDS. Together, we are building a stronger community filled with hope, compassion, and support. 💙

Register today: https://bit.ly/4wVhl0C

06/04/2026

A diagnosis of myelodysplastic syndromes (MDS) impacts not only patients, but also the families, caregivers, and loved ones who walk alongside them every step of the way. The MDS Foundation is proud to support the entire MDS community by providing trusted information, compassionate support, and a platform where individuals can share their stories, find encouragement, and connect with others who truly understand the journey. Together, we are building a stronger, more connected community filled with hope and support. 💙

Rigel Pharmaceuticals, Inc. is conducting a study with R289, an oral IRAK ¼ inhibitor on patients who are relapsed/refra...
06/03/2026

Rigel Pharmaceuticals, Inc. is conducting a study with R289, an oral IRAK ¼ inhibitor on patients who are relapsed/refractory/resistant to prior LR-MDS therapies (NCT05308264).

Participants must:
-Have definitive diagnosis of very low to immediate risk of MDS
-Be relapsed, refractory to or ineligible for ESAs and have received one or more approved therapies for LR-MDS
-Be RBC transfusion dependent, however no history of autologous/allogeneic stem cell transplantation

You will take the medication either once a day or twice a day. Every participant will receive R289. There is no placebo in this study.

Interested in Learning More? To determine eligibility visit https://bit.ly/IRAKRigel or contact the MDS Foundation:
Lisa Liskey
[email protected]

Cancer immunotherapy is changing the way cancer is treated by helping the body’s own immune system recognize and fight c...
06/02/2026

Cancer immunotherapy is changing the way cancer is treated by helping the body’s own immune system recognize and fight cancer cells more effectively. During Cancer Immunotherapy Awareness Month, The MDS Foundation is proud to support continued education, research, and awareness surrounding innovative treatment options that bring hope to patients and families worldwide. 💙

Acute Myeloid Leukemia (AML) can impact anyone, at any age, and awareness is a vital step toward earlier diagnosis, bett...
06/01/2026

Acute Myeloid Leukemia (AML) can impact anyone, at any age, and awareness is a vital step toward earlier diagnosis, better support, and improved outcomes. This AML Awareness Month, join The MDS Foundation in helping educate, advocate, and support patients and families navigating AML.

Together, we can make a difference through awareness, education, and hope. 💙

Learn more about AML symptoms, treatment options, patient resources, and support services by visiting our website today: https://bit.ly/4uIvWv0

Living with myelodysplastic syndrome (MDS) and MDS-related anemia from myelodysplastic syndrome (MDS) means constant blo...
05/29/2026

Living with myelodysplastic syndrome (MDS) and MDS-related anemia from myelodysplastic syndrome (MDS) means constant blood transfusions, unpredictable fatigue, and shortness of breath that can make every day challenging. Consider participating in clinical research exploring potential options for adults with MDS and MDS-related anemia.

Those who qualify will receive:
✅ Study-related medication at no cost
✅ Study-related care and support from research doctors and their study teams
✅ Possible reimbursement for travel and/or expenses

Learn more: https://bit.ly/RENEWTakeda

Today is  .Your story matters. Whether you're living with MDS, caring for someone, or working in the field - we want to ...
05/28/2026

Today is .

Your story matters. Whether you're living with MDS, caring for someone, or working in the field - we want to hear from you.

Visit the Voices of MDS page and join the conversation on the MDS Exchange.
It’s free to join today.

https://www.mds-foundation.org/support/voices-of-mds/

Have You Been Diagnosed with myelodysplastic syndromes?Servier is conducting a phase III clinical trial investigating a ...
05/26/2026

Have You Been Diagnosed with myelodysplastic syndromes?

Servier is conducting a phase III clinical trial investigating a new treatment option for IDH1-mutated myelodysplastic syndromes (MDS) that has not been treated by a class of drugs called hypomethylating agents (HMAs).

To learn more about the PyramIDH clinical trial, please
➡️ Contact Servier at [email protected]
➡️ Speak with your doctor, or
➡️ Visit https://bit.ly/PyramIDH

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228 Park Avenue S, PMB 118983
New York, NY
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