MDS Foundation, Inc.

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MDS Foundation, Inc.

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The MDS Foundation is a global organization dedicated to raising awareness of MDS, a rare and often undetected blood cancer, through education, advocacy, and support.

08/15/2026

Rigel Pharmaceuticals, Inc. is conducting a study with R289, an oral IRAK ¼ inhibitor on patients who are relapsed/refractory/resistant to prior LR-MDS therapies (NCT05308264).

Participants must:
-Have definitive diagnosis of very low to immediate risk of MDS
-Be relapsed, refractory to or ineligible for ESAs and have received one or more approved therapies for LR-MDS
-Be RBC transfusion dependent, however no history of autologous/allogeneic stem cell transplantation

You will take the medication either once a day or twice a day. Every participant will receive R289. There is no placebo in this study.

Interested in Learning More? To determine eligibility visit https://bit.ly/IRAKRigel or contact the MDS Foundation:
Lisa Liskey
[email protected]

08/14/2026

Join The MDS Foundation on September 12, 2026, at 12:00 PM ET for Caregiver Training 101, a webinar designed to support family members, partners, and caregivers of those living with MDS.

Hear from Brittany McCoy, MPAS, PA-C, who brings more than 10 years of experience in malignant hematology, cellular therapy, and bone marrow transplantation, as she shares practical guidance to help caregivers feel more confident throughout the MDS journey.

Register today and join a community dedicated to supporting patients and caregivers every step of the way. 💙

Register today: https://bit.ly/4ejF2bT

08/13/2026

Can't make it to an in-person Move for MDS Walk? You can still make a difference by participating virtually. 👟💙

Join the Virtual Move for MDS Walk from anywhere, at any time. Whether you take a stroll through your neighborhood, explore your favorite trail, or log your miles on a treadmill, every step helps raise awareness of myelodysplastic syndromes (MDS) and supports those impacted by this rare blood cancer.

No matter where you are, your participation helps bring hope, build community, and advance the mission to improve the lives of those affected by MDS. Every step counts!

Register today and join the movement: https://bit.ly/4e3aoDQ

08/12/2026

What happens behind the scenes when MDS is diagnosed? 🎙️

In the newest episode of the MDS Patient & Family Report podcast, host Dr. Nikolaos Papadantonakis is joined by Dr. Sanam Loghavi of The University of Texas MD Anderson Cancer Center to take listeners inside the hematopathology lab.

Learn how bone marrow biopsies, microscopic evaluation, and advanced molecular testing help physicians diagnose and classify myelodysplastic syndromes (MDS). This insightful conversation breaks down the science behind the diagnostic process in a way that's informative and easy to understand.

Listen today: https://bit.ly/4eDTydn

08/11/2026

Understanding MDS is an important step toward feeling more confident and prepared. That's why The MDS Foundation created our Journey of Empowerment (JOE), an online educational platform designed for patients, caregivers, and loved ones. 💙

JOE features engaging, easy-to-understand learning modules that help explain myelodysplastic syndromes (MDS), answer common questions, and provide the knowledge needed to make informed decisions along the way.

Wherever you are on your MDS journey, JOE is here to support you with trusted information every step of the way. Start learning today.

Learn more about JOE and start your journey today: www.mdsJOE.com

08/07/2026

The MDS Foundation’s Patient & Family Forums are coming to Crown Point, IN, and Kansas City, MO, in 2026.

📍 Crown Point, IN - September 26, 2026
📍 Kansas City, MO - October 24, 2026

These special events bring together patients, caregivers, families, and members of the MDS community for opportunities to learn, connect, and find support. Hear from experts, gain valuable insights about MDS care and treatment, and connect with others who understand the journey.

We look forward to welcoming you and the MDS community at these meaningful events.

Register today: https://bit.ly/4vXqVPc

08/05/2026

Living with myelodysplastic syndrome (MDS) and MDS-related anemia from myelodysplastic syndrome (MDS) means constant blood transfusions, unpredictable fatigue, and shortness of breath that can make every day challenging. Consider participating in clinical research exploring potential options for adults with MDS and MDS-related anemia.

Those who qualify will receive:
✅ Study-related medication at no cost
✅ Study-related care and support from research doctors and their study teams
✅ Possible reimbursement for travel and/or expenses

Learn more: https://bit.ly/RENEWTakeda

08/04/2026

Aileen was no stranger to cancer and the pain of watching it affect someone you love. A survivor of Non Hodgkin's Lymphoma, Aileen's father met the diagnosis of MDS with bravery and hope. His perspective on life and the person he was inspired each and every one he met.

The loss of such a tremendous man drove Aileen to do more. She realized that awareness and education in MDS were critically needed, and she chose to use her voice and her influence to "shine a light on a disease that is often overlooked".

Each of us has a story. Every story matters - and using our stories to inspire and connect one another ensures that no one has to face MDS alone. We are building a community - and we want you in it. One voice inspires, many voices transform. Help us transform the future of MDS by joining this meaningful community today!

Read more about Aileen's MDS story and share your own story by visiting our Voices of MDS page: https://bit.ly/4wraNGo

08/03/2026

Save the date! Join us on September 27, 2026, for the Move for MDS 5K in Los Angeles, CA. 👟💙

Whether you run, walk, or wheel, every step helps raise awareness and support for those affected by myelodysplastic syndromes. This inspiring event brings together patients, families, friends, and advocates, all united in making a difference.

Together, we can inspire hope, advance research, and strengthen the MDS community. 🌟

Register today and join the movement: https://bit.ly/3QdMeNn

07/29/2026

Join The MDS Foundation for our Patient & Family Forum in Crown Point, IN, on September 26 from 9:00 AM-2:00 PM.

For many patients and caregivers, these forums provide the first opportunity to connect with others who truly understand life with MDS. Hear from leading experts about current treatments and emerging therapies, gain practical tips and strategies for daily living, and find the answers, support, and hope that can make a difference.

Register today: https://bit.ly/4vXqVPc

Address

228 Park Avenue S, PMB 118983
New York, NY
10003

Telephone

+18006370839

Website

http://www.mds-foundation.org/

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