HDSA's National Youth Alliance - NYA

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HDSA's National Youth Alliance - NYA The National Youth Alliance is a group of youth and young adults from around the USA, who are affected by Huntington's disease.

Help for Today, Hope for Tomorrow. HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Still reminiscing on our amazing retreat in Salt Lake City, Utah! Counting down the days until we see you in Florida! Wh...
10/08/2026

Still reminiscing on our amazing retreat in Salt Lake City, Utah! Counting down the days until we see you in Florida!

While at retreat we worked together to create the best playlist ever! Click the link in our bio to find it on Spotify! What songs do you think we should add? 🤔

Community begins when someone reaches out, and you say, "You are not alone".  Today, we honor HDSA's founder, Marjorie G...
09/18/2026

Community begins when someone reaches out, and you say, "You are not alone". Today, we honor HDSA's founder, Marjorie Guthrie, by doing what she showed us was possible. Reach out. Connect. Speak up. Advocate. And support every person and family impacted by HD & JHD. Peace & Love, Marjorie.

Su***de is a sensitive, but important, topic we need to acknowledge within the HD community. You are not alone and you n...
09/10/2026

Su***de is a sensitive, but important, topic we need to acknowledge within the HD community. You are not alone and you never will be, no matter how heavy your days feel. Please reach out to one of the numbers below if you are in need of support

HDSA Helpline: 1-800- 345-4372
Su***de and crisis hotline: 988
Text crisis line: Text HOME to 741741

We are here for you Ohana 💜

09/03/2026

Click the link in our bio to sign up for our retreat in Orlando, Florida on November 6–9th! We’ll see you on the beach 🌺

Many of us already know the weight of grief and don’t need reminders, but today we honor that weight even more. I hope y...
08/30/2026

Many of us already know the weight of grief and don’t need reminders, but today we honor that weight even more. I hope you feel seen, heard, and validated in our Ohana. If you need support please call our hotline at 1-800- 345-4372 or email [email protected] for ongoing support. We love you

08/24/2026

Looking for a Team Hope Walk near you! Click the LinkTree in our bio to search for events in your area! We hope to see you there!

Not everyday is sunny and bright, some have clouds that weigh over us. Here’s some reminds in hopes to clear the clouds ...
08/21/2026

Not everyday is sunny and bright, some have clouds that weigh over us. Here’s some reminds in hopes to clear the clouds and help you see. Take care of yourself Ohana

08/17/2026

Thank you for letting us in Ohana, we love you 💙💜

08/03/2026

What’s your elevator speech when people ask about HD?

Address

505 8th Avenue, Ste 902
New York, NY
10018

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