HDSA's National Youth Alliance - NYA

HDSA's National Youth Alliance - NYA The National Youth Alliance is a group of youth and young adults from around the USA, who are affected by Huntington's disease.

Help for Today, Hope for Tomorrow. HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

06/17/2026

Today, uniQure announced that the FDA will allow the 3-year Phase 1/2 trial data to serve as the primary basis for a Biologics License Application (BLA) for accelerated approval. The FDA will also work with uniQure on a study design to including alternatives to a sham brain surgery.
Your voices made a difference. The FDA listened. YOU did this

New to convention? Have some questions? Just want to hang out! Join us tomorrow Wednesday June 17th at 7pm EST for a vir...
06/17/2026

New to convention? Have some questions? Just want to hang out! Join us tomorrow Wednesday June 17th at 7pm EST for a virtual meet up and “things you should know” chat about convention which, according to the HDSA Convention App, is in just 8 days!

06/17/2026

First time coming to convention? Have some questions? Just want to hang out? Join us tomorrow at 7pm EST for an NYA meet up and things to know for convention which is in just 8 days, 17 hours, and 45 mins (according to the HDSA Convention App countdown). https://www.heypeers.com/meetings/56745

Be sure to download the HDSA Convention app before you head to Phoenix, Arizona! If you have an issues please message us...
06/16/2026

Be sure to download the HDSA Convention app before you head to Phoenix, Arizona! If you have an issues please message us so we can help you navigate it!

*Be careful to not download the old app, HDSA annual convention, by mistake!

Only 12 more days until we see you, Ohana! Still need to sign up for NYA Day? Click the link tree in our bio to register...
06/13/2026

Only 12 more days until we see you, Ohana! Still need to sign up for NYA Day? Click the link tree in our bio to register!

You’ve met the Advisory Board, now let’s meet the Youth Social Workers! These are the amazing ladies who run our support...
06/12/2026

You’ve met the Advisory Board, now let’s meet the Youth Social Workers! These are the amazing ladies who run our support groups, NYA day, and are here to help anyone in need! If you’d like to get in touch with one of them, click the link in our bio! You’ll see all these beautiful faces in just 14 days at Convention!

With convention coming up, we want you to meet our NYA Advisory Board Members so you’ll know some familiar faces when yo...
06/10/2026

With convention coming up, we want you to meet our NYA Advisory Board Members so you’ll know some familiar faces when you arrive! Kendall, Paul, Jenna C, Jenna M, Ali, Gia, and Anna work so hard alongside the youth social workers to make sure convention is as great as it can be! If you see one of them make sure to say hi, they’d love to meet you!

19 more days until NYA Day at our annual Huntingtons Disease convention hosted by in Phoenix, Arizona! Not registered? ...
06/06/2026

19 more days until NYA Day at our annual Huntingtons Disease convention hosted by in Phoenix, Arizona! Not registered? Click the link in our bio to sign up! We can’t wait to see you Ohana 💙💜

As Huntingtons Disease Awareness Month has come to an end, we want to honor the organizations who work tirelessly to edu...
06/05/2026

As Huntingtons Disease Awareness Month has come to an end, we want to honor the organizations who work tirelessly to educate and advocate year round, but especially during May. We know this post does not include every organization, so tag an hd organization you think advocates for our community well below! ⬇️

Address

505 8th Avenue, Ste 902
New York, NY
10018

Telephone

+12122421968

Website

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