RTW Foundation

RTW Foundation RTW Foundation works to power community initiatives and provide scientific advising to improve the health of underserved populations.

Through partnerships with local organizations and rare disease foundations, we advance health equity in New York City.

This , we’re proud to support the for Rare Disease Research and Treatment.By funding research to advance platform-base...
02/23/2026

This , we’re proud to support the for Rare Disease Research and Treatment.
By funding research to advance platform-based lentiviral treatments, improving access to care, and empowering families, Styrke is helping drive meaningful progress in rare disease. We’re grateful to partner with organizations working to accelerate innovation and expand opportunity for patients.

We’re grateful to work with , a family-led organization advancing research for Christianson syndrome, a rare and life-li...
02/12/2026

We’re grateful to work with , a family-led organization advancing research for Christianson syndrome, a rare and life-limiting genetic condition. Through this partnership, RTW Foundation is supporting their efforts to strengthen research strategy, explore viable therapeutic pathways, and move promising science closer to patients and families who urgently need hope.
We’re honored to stand alongside Lachie’s Wish 4 CS as they work to accelerate progress and build a brighter future for the Christianson syndrome community.

02/01/2026

February is Rare Disease Month, and RTW Foundation is grateful to raise awareness of the huge burden that rare and ultra-rare diseases represent to families and patients. Ultra-rare diseases are often neglected by the pharmaceutical industry owing to the small number of patients who live with these conditions. Throughout the month, we will highlight key challenges in the rare disease space, our rare disease partners, and share how our team is working to streamline the path to therapies for patients.

Our BioQuest Ambassadors recently took part in a specialized workshop with Científico Latino on how to make the most of ...
01/30/2026

Our BioQuest Ambassadors recently took part in a specialized workshop with Científico Latino on how to make the most of their journey in the sciences! During an interactive panel, BioQuest students heard personal stories and advice from graduate students at Harvard Medical School, Johns Hopkins University, and Rockefeller University.

The session included breakout discussions, where students received live feedback on their summer research personal statements and explored topics like choosing the right major, building community in college, navigating undergraduate research, and finding summer opportunities. We're grateful to do workshops like this to equip our ambassadors with real insight, mentorship, and tools to confidently navigate their futures in STEM.

We’re excited to continue our partnership with Hamilton-Madison House in expanding mental health services for NYC’s Asia...
01/29/2026

We’re excited to continue our partnership with Hamilton-Madison House in expanding mental health services for NYC’s Asian American community! The grant will support training for a postdoctoral fellow to deliver culturally adapted care and grow a pipeline of mental health professionals dedicated to serving this community. This work will bring specialized care to 30-40 more individuals with complex mental health needs.

We are excited to share RTW Foundation has launched a partnership with the Perelman School of Medicine at the University...
01/27/2026

We are excited to share RTW Foundation has launched a partnership with the Perelman School of Medicine at the University of Pennsylvania (PSOM) to power the reimagination of medical education. The PSOM team, led by Drs. Lisa M. Bellini, MD, and Jennifer R. Kogan, MD, will develop a competency-based, time-variable curriculum within a world class technology environment to best prepare students for the future of medicine and medical innovation. This initiative contributes to Penn Forward, Penn's strategic vision to reshape education, research, and service for a rapidly changing world. Read more here: https://www.rtwf.org/news-and-resources/news/rtw-foundation-donates-8-million-to-reimagine-physician-training-in-penn-s-perelman-school-of-medicine/.
University leadership has called this effort a once-in-a-generation opportunity to change the face of medical education—and we’re honored to be part of it.

11/18/2025

At the New York Structural Biology Center, BioQuest students from Futures Ignite got to use chemistry principles to create their own ice cream while learning about molecular reactions and the science behind freezing points! Students also explored the microscopic world through immersive virtual reality, visualizing complex molecular structures up close.

Last week, our Director of Research, Joe Katakowski, PhD, joined fellow leaders Dr. Panteli Theocharous, Charlene Son Ri...
11/12/2025

Last week, our Director of Research, Joe Katakowski, PhD, joined fellow leaders Dr. Panteli Theocharous, Charlene Son Rigby, Brad Watts, and John Aguilar at the Evolution of the CGT Sector conference to discuss how the field can scale innovation and reach more patients worldwide.

Over two days, researchers, regulators, clinicians, and patient advocates explored the future of cell and gene therapy, from industrializing CGT manufacturing to advancing patient access and regulatory innovation. The panelists highlighted the importance of collaboration across science, policy, and patient communities to accelerate the delivery of life-changing therapies. We’re grateful to be part of this important conversation shaping the future of advanced medicines.

At Taystee Labs, BioQuest students from Mott Hall High School Harlem WBL rolled up their sleeves for a day of hands-on s...
11/11/2025

At Taystee Labs, BioQuest students from Mott Hall High School Harlem WBL rolled up their sleeves for a day of hands-on science! They explored microorganisms under microscopes at BioBus, toured Harlem Biospace to learn how lab incubators work, and discovered how scientists test and analyze samples at different lab stations.

We’re excited to share that Nicole Litt from our Rare Disease Advising Program will be attending the Foundation for Ange...
11/05/2025

We’re excited to share that Nicole Litt from our Rare Disease Advising Program will be attending the Foundation for Angelman Syndrome Therapeutics —the largest science and drug development event devoted to Angelman syndrome! The summit brings together families, researchers, and industry leaders from around the world to share the latest breakthroughs and progress toward a cure. We’re proud to join this passionate community driving innovation and hope for individuals and families affected by Angelman syndrome.

Our middle school BioQuest students were able to spend a full day at the American Museum of Natural History! They partic...
11/05/2025

Our middle school BioQuest students were able to spend a full day at the American Museum of Natural History! They participated in an evolutionary genetics lab using real bones, toured the Hall of Human Origins, and explored the museum through an interactive mentor-led session.

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