Jack's Tomorrow

08/21/2026

Some special moments from Swing For A Cure 2025 with our Scientific Advisory Board members Benjamin Cocanougher, Andrew Steinsapir, PURA Dad and Board member, Xander Farnum, his wife Kim, their sweet daughter Colette & Cat Lutz of The Jackson Laboratory Rare Disease Translational Center. We can’t wait to see this crew again in October and we’d love to see you too! Ticket availability is limited, so be sure to grab yours today if you haven’t yet at the link below:

https://jackstomorrow.org/swing-for-a-cure

08/20/2026

We are grateful for the generous commitment of our newest Putting Green Sponsor for Swing For A Cure 2026! Bloomberg Philanthropies has sponsored this event since its launch and their generosity has helped to fund critical research towards a treatment for PURA Syndrome.
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If your company is interested in supporting this impactful event, you can learn more and become a sponsor at the link below.

https://jackstomorrow.org/swing-for-a-cure⁠
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08/18/2026

Jack & his sweet 4-year-old friend, Thomas, who also lives with PURA Syndrome! He & his mom, Priscilla, always go out of their way to come visit us when we're at SMILE Therapy For Kids in Canada! Cultivating friendships with other families has been such an important part of our journey. ✨We can't wait to connect with other families and researchers at our upcoming flagship fundraiser, Swing For A Cure on October 1st; the link to grab your ticket is below if you haven't signed up yet!

https://jackstomorrow.org/swing-for-a-cure

08/14/2026

We’re so grateful when other families living with PURA Syndrome pour their own time and energy into planning events that fuel the research we fund to find a treatment. 🤍 If you'd like to host an event to help us find a treatment for PURA Syndrome, we'd love to get in touch!

Greg Lambert Elizabeth Lucy

08/11/2026

Throwback to our Swing For A Cure Fundraiser in 2025 with fellow PURA parent Xander Farnum from our Executive Board, Dr. Benjamin Cocanougher of our Scientific Advisory Board (who diagnosed Xander's daughter), Andrew Steinsapir of our Scientific Advisory Board, and his colleague Von from Apertura! Our community is the heartbeat of Jack’s Tomorrow and we can’t wait to connect at our Swing For A Cure Fundraiser on October 1st. Head to the link below to grab your ticket (or sponsor a hole) today!

https://jackstomorrow.org/swing-for-a-cure

08/06/2026

We are proud to have funded and developed new tools for research on PURA Syndrome. Thank you to The Jackson Laboratory Rare Disease Translational Center for creating these tools that the entire research community can utilize!⁠ ⁠
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This is the type of impactful work you support when you attend our flagship fundraiser, Swing For A Cure, on October 1st. Ticket availability is limited, so be sure to grab yours today at the link below! We can’t wait to see you there. ⁠

https://jackstomorrow.org/swing-for-a-cure
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08/05/2026

So thrilled for our partner Cat Lutz and the teams at The Jackson Laboratory (JAX), Boston Children’s Hospital and Broad Institute of MIT and Harvard as they launch the Center for Therapeutic Genetics. We’re thankful to Tim Yu and Wendy Chung at Boston Children's Hospital for their words of advice when we first launched and look forward to seeing this collaboration unfold.

Cat is pictured here speaking at our Swing For A Cure fundraiser last year; join us on October 1st in Long Island by grabbing your ticket (or sponsoring a hole!) at the link below.

https://jackstomorrow.org/swing-for-a-cure

07/30/2026

Thank you, The Jackson Laboratory (JAX), for your commitment to researching PURA Syndrome and other rare diseases. We’re so thankful for our partners at The JAX Rare Disease Translational Center for championing the importance of PURA Syndrome research and working with us to create scientific tools that make studying it more easily accessible.

If you believe in the work we’re doing at Jack’s Tomorrow, we invite you to grab a ticket for Swing For A Cure coming up on October 1st in the Hamptons! This event is our flagship fundraiser and how we fund the critical research toward a treatment for PURA Syndrome. You can learn more by clicking the link below!

https://jackstomorrow.org/swing-for-a-cure

07/28/2026

We're grateful for the commitment of these generous sponsors of our 2026 Swing For A Cure fundraiser! Our event sponsors are crucial to our efforts; they're directly helping to fund research to identify a treatment for PURA Syndrome.⁠
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If you believe in the research we are funding and want to see more, head to the link below to browse our many sponsorship opportunities, including our hole sponsorships starting at $500 dollars.

https://jackstomorrow.org/swing-for-a-cure
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07/21/2026

We are so proud to partner with The Jackson Laboratory and inspiring leaders like Cat Lutz ! An enormous thank you to The Jackson Laboratory Rare Disease Translational Center for taking an interest in PURA Syndrome when we first developed our mouse model, partnering with us to create our iPSC lines, and being a steadfast partner ever since as we work towards developing a therapeutic. Thank you to The New York Times for telling this important story and other trailblazers like Wendy Chung and Tim Yu who took our calls in the early days and were interested to learn more about PURA Syndrome.

The new collaboration aims to develop precision medicines, including base and prime editing, to treat patients with rare diseases, using infrastructure and repeatable practices the center will share with others. div.hero-section__author { display:none;}