Project Lyme

Project Lyme Project Lyme’s mission is to eradicate the epidemic of tick-borne diseases through awareness and education, support of cutting-edge science, and advocacy.
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Project Lyme is a global awareness organization dedicated to making Lyme disease a household name and tick prevention commonplace. Started by Heather Hearst, a mother, who was diagnosed with Lyme disease in 1986, Project Lyme was founded to raise awareness for prevention and early diagnosis of Lyme. Through her personal story, Hearst advocates the critical importance of talking about ticks and Lym

e by demystifying, uniting and advocating for victims and organizations around the world. Help the Project Lyme awareness movement spread the word about Lyme prevention faster than ticks spread the disease. Talk about Ticks. For more information, visit projectlyme.org

05/31/2026

📢 DON’T MISS THIS IMPORTANT RESOURCE!

Lyme and tick-borne diseases can be isolating as well as physically painful. Support groups can offer a safe space to connect with others who understand what you’re going through.

Project Lyme had a special guest drop into our recent Men’s Support Group, hosted by Lyme survivor and advocate David Butler — Dr. Bill Rawls. Dr. Rawls is one of the most trusted voices in the Lyme community and the author of ‘Unlocking Lyme’ and ‘The Cellular Wellness Solution.’

Dr. Rawls shared his personal experience with tick-borne diseases and the treatments that have helped him and the patients he works with. With the permission of the other group participants, we are posting a video to help spread awareness and valuable healing tips for those who are in need of them.

Watch it now: https://youtu.be/zD9siS7k3OU

Bill Rawls, MD

🚨 ✨BIG NEWS FOR THE LYME COMMUNITY ✨The U.S. Department of Health and Human Services (HHS) has just announced a series o...
05/30/2026

🚨 ✨BIG NEWS FOR THE LYME COMMUNITY ✨

The U.S. Department of Health and Human Services (HHS) has just announced a series of major new initiatives aimed at tackling Lyme disease and other tick-borne illnesses. Some of the key changes include:

👉 A multi-million-dollar program to reduce tick populations and help prevent disease transmission

👉 Up to $2.5 million in new LymeX innovation challenges focused on awareness, treatment, and patient care

👉 Expanded research into alpha-gal syndrome, a tick-related condition that can trigger allergic reactions to red meat and other mammalian products

👉 A new partnership with ILADS to help patients connect with experienced Lyme-literate providers and educational resources

For too long, many people affected by Lyme disease have struggled to get answers and access care. These new efforts reflect growing recognition at the federal level that Lyme disease is a serious and urgent public health issue.

We are encouraged to see increased attention, resources, and urgency directed toward Lyme disease and the patients and families impacted by it every day.

Read more: https://www.hhs.gov/press-room/hhs-unveils-plan-to-combat-lyme-disease.html

HHS.gov ILADS

10 years behind us. A future BRIGHT ahead of us. 💚For the past 10 years, Project Lyme has worked to bring more awareness...
05/29/2026

10 years behind us. A future BRIGHT ahead of us. 💚

For the past 10 years, Project Lyme has worked to bring more awareness, education, support, advocacy, and research to the Lyme community.

Now we’re building the next 10 years.

This Fundraise Friday, we’re asking our community to give what they can —
$5, $10, or $20 can help move this mission forward.

👉 More education.
👉 More advocacy.
👉 More support.
👉 More research.
👉 More hope.

Every donation matters, no matter the size. Together, we can help shape the future for the Lyme community.

Donate today and help us build what comes next. 💚

In the Lyme community, we know that any win — big or small — is still a win. Some days, your win is making it to an appo...
05/28/2026

In the Lyme community, we know that any win — big or small — is still a win.

Some days, your win is making it to an appointment. Some days, it’s eating a good meal or getting out of bed. And some days, your biggest win is asking for help.

Healing isn’t always loud or visible. But every step forward matters, and every hard day you make it through deserves recognition.

Celebrate your small wins. They count more than you think. ✨

What’s one win you’re proud of lately?

TWO MILESTONE PROCLAMATIONS:Project Lyme extends a heartfelt thank you to Maryland Governor Wes Moore and West Virginia ...
05/28/2026

TWO MILESTONE PROCLAMATIONS:

Project Lyme extends a heartfelt thank you to Maryland Governor Wes Moore and West Virginia Governor Patrick Morrisey for officially declaring May 2026 as Lyme and Tick-Borne Disease Awareness Month statewide for the second year in a row!

These proclamations mark an important step forward in recognizing the growing impact of tick-borne diseases.

We also want to recognize Ashley Baker, former Project Lyme Emerging Leaders Board Chair, for her tireless work behind the scenes making these proclamations possible. Ashley is a patient activist, TED speaker, feature documentary activist, and musician who has been battling chronic neurological Lyme and immune deficiency since 2018.

Together, we are making a difference!

Wes Moore Patrick Morrisey

📢 DON’T MISS OUR NEW WEBINAR ON THE RELATIONSHIP BETWEEN LYME AND ALZHEIMER’S DISEASE TOMORROW!As part of Lyme Disease A...
05/27/2026

📢 DON’T MISS OUR NEW WEBINAR ON THE RELATIONSHIP BETWEEN LYME AND ALZHEIMER’S DISEASE TOMORROW!

As part of Lyme Disease Awareness Month, Project Lyme is hosting a new webinar with Dr. Richard Horowitz, a leading clinician and researcher in tick-borne illness, TOMORROW (Thursday, May 28th) at 7:00 p.m. ET.

Dr. Horowitz will share emerging evidence that chronic infections like Lyme may play a role in cognitive decline—and what that could mean for testing and treatment. He will draw on his newly published research, walking us through a clinical case showing measurable improvements in Alzheimer’s-related biomarkers after treating Lyme and associated infections with his double-dose dapsone combination therapy.

Participants will learn about:

👉 How Lyme disease and other chronic infections may contribute to neuroinflammation and cognitive decline

👉 The role of biomarkers such as phosphorylated tau and amyloid beta in assessing Alzheimer’s risk

👉 Advances in testing that may help identify underlying drivers of neurological symptoms

👉 How combination therapies targeting infection and inflammation may influence disease progression

👉 The MSIDS model and its application to complex chronic illness

Join us to learn what this could mean for patients, caregivers, and the future of treatment.

🔗 Register now: https://projectlyme.org/event/the-relationship-between-lyme-and-alzheimers-disease-testing-and-treatment-breakthroughs/

Dr. Richard Horowitz

10 years of impact, and it’s only the beginning. Because of this incredible community, here’s what we’ve accomplished to...
05/26/2026

10 years of impact, and it’s only the beginning. Because of this incredible community, here’s what we’ve accomplished together:

1) Funded critical Lyme disease research to advance diagnostics, treatment, and understanding of chronic illness

2) Supported the next generation of awareness and advocacy leaders within the Lyme community

3) Launched national awareness campaigns reaching millions across digital and in-person platforms

4) Educated patients, families, and healthcare providers through webinars, sponsored scientific conferences, events, social media, website, PSAs, and other accessible resources

5) Supported thousands of patients with guidance, tools, and online support groups

6) Advocated for improved testing, earlier diagnosis, and better treatment protocols

7) Partnered with mission-aligned organizations to amplify impact and accelerate progress

8) Expanded educational outreach into schools, communities, and medical networks nationwide

9) Elevated patient stories to reduce stigma and bring visibility to invisible illness

10) Built a powerful community of donors, advocates, and change-makers driving the mission forward

Every one of these milestones represents real people helped, real progress made, and real hope created.

Now, let’s build milestone #11 together. 💚

Help us fund the next breakthrough.

Donate $10 now to help us power the next 10 years (link in bio).

Isabel Rose is a member of Project Lyme’s Board who runs free online support groups for moms affected by tick-borne illn...
05/26/2026

Isabel Rose is a member of Project Lyme’s Board who runs free online support groups for moms affected by tick-borne illnesses. For decades, she struggled with mysterious symptoms that no one could fully explain — from chronic pain and brain fog to autoimmune issues and pregnancy complications. It wasn’t until later in life that she began connecting the dots between her own Lyme disease, her children’s health struggles, and a larger pattern she was seeing across generations of families.

Many families still have no idea that Lyme disease can be passed from mother to child during pregnancy. Too often, parents spend years searching for answers while dealing with unexplained fatigue, neurological symptoms, immune dysfunction, psychiatric symptoms, chronic pain, and other complex health challenges that seem to run through their whole family.

“Multi-generational chronic illness is everywhere, and few people are calling out congenital Lyme disease as a potential cause. So, as May — which is officially Lyme Disease Awareness Month — draws to a close, the urgency of discussing the role congenital Lyme disease may be playing feels greater than ever,” explains Isabel in her powerful essay.

We thank Isabel for sharing her story and raising awareness on this important topic. Knowing the facts about congenital Lyme and tick-borne diseases can help families make more informed decisions and better protect themselves from long-term adverse effects. No one should have to spend decades fighting to be believed.

Read Isabel’s full story on her Substack: https://beyondtherx.substack.com/p/why-are-so-many-families-sick

Check out Isabel’s support groups on the Project Lyme website: https://projectlyme.org/event/mothers-against-lyme/

05/25/2026

Support can be simple and powerful 💚

Here are 10 ways to support someone with Lyme disease:

✅ Listen

✅ Believe them

✅ Check in

✅ Offer rides

✅ Be flexible

✅ Learn more

✅ Bring meals

✅ Include them

✅ Be patient

✅ Donate

Donate to fuel research, improve diagnosis and care, and ensure Lyme patients are seen, believed, and supported.

Visit https://projectlyme.org/donate/

Small actions make a big difference. Share this to help educate friends and family.

Address

229 E. 85th Street #38
New York, NY
10028

Opening Hours

7pm - 8pm

Telephone

+12073709313

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