Heath's Heroes

09/13/2026

Celebrating 6 with a weekend full of favorite things and favorite people!! 💦💦💦🥰🥳

08/10/2026

Off to a new adventure!! First day of kindergarten at Spruce Creek Elementary School!! 🎒✏️🖍️

05/17/2026

The Hoffmans are !!! Some of us walked, some of wore shirts, we all joined in honoring Heath and all those living with Angelman Syndrome for the Angelman Syndrome Foundation walk!

05/15/2026

💙 THE POWER OF 15 💙

Today, May 15, we are launching a special 15-hour fundraising blitz for Angelman Strong 2026. YOU can help us unlock an incredible $15,000 matching gift!

Why 15?
Angelman syndrome is caused by a loss of function on the 15th chromosome, making this number deeply meaningful to our community.

⏰ From 8AM to 11PM EST, every donation made during our Power of 15 campaign will help us work toward unlocking a $15,000 matching gift from a generous donor.

🎯 Our Goal:
Raise $15,000 in 15 hours to unlock the match and turn it into $30,000 for the Angelman Syndrome Foundation.

Here’s how you can help:
✅ Donate on May 15th
✅ Share this campaign with family & friends
✅ Ask others to give just $15 in honor of the 15th chromosome
✅ Help us spread awareness for Angelman syndrome

Every gift matters. Every share matters. Every dollar gets us closer to critical research, support, and hope for families impacted by Angelman syndrome.

02/15/2026

Happy International Angelman Day!!! 💙🧬🎊

02/11/2026

💙 International Angelman Day is coming up on February 15 💙

This day honors individuals with Angelman Syndrome celebrates their joy, resilience, and the families and communities who support them every day. Justice for Kids proudly advocates for children with disabilities who have been injured—working to protect their rights, hold responsible parties accountable, and secure the care and support they need to thrive.

Every child deserves safety, dignity, and justice. 💙

Hope has a name—and for one incredible family, it’s Heath. 💛

In honor of International Angelman Day (Feb. 15), we’re sharing the story of one of our own: Lisa M. Hoffman, Justice for Kids Partner, devoted mother, and passionate advocate for children with disabilities both in and out of the office. Her son Heath was diagnosed with Angelman Syndrome at age two. And since then, Lisa has turned grief into purpose—and purpose into action.

Learn more about Lisa, Heath and Angelman Syndrome on the blog: https://justiceforkids.com/hope-has-a-name-lisa-hoffman-angelman-syndrome-and-the-fight-for-a-brighter-future/

02/05/2026

👏👏👏

Big wins for the Angelman syndrome community!

Congress has passed key Fiscal Year 2026 (FY26) funding bills - all three Angelman priorities were included. Thank you to our incredible advocates and bipartisan champions for making this possible.

Because of your advocacy, Angelman syndrome remains eligible for federal research funding through the DOD, and Congress has directed NIH and FDA to take concrete steps to advance research and drug development. 🎉🤩

Included in the funding package were also key healthcare provisions FAST and ASF have been advocating for alongside partner organizations. These provisions included: extending the FDA's Rare Pediatric Priority Review Voucher (PRV) program to incentivize rare pediatric drug development, reducing Medicaid barriers for children who must travel across state lines for specialized care, and continuing Medicare coverage of telehealth services.

Read more: https://angelmanadvocates.org/news/f/angelman-community-delivers-big-wins-in-fy26-fund-bill

💙 Let’s keep the momentum going - Join us this March 3-4th for the 2026 AS Congressional Advocacy Day.
Register now: https://angelmanadvocates.org/advocacy-day

12/25/2025

Merry Christmas!!! 🎄❤️🎅💚 2️⃣0️⃣2️⃣5️⃣