Share & Care Cockayne Syndrome & Trichothiodystrophy Network

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Share & Care Cockayne Syndrome & Trichothiodystrophy Network (Progeria) Cockayne syndrome is a rare rapid aging disease.

https://www.facebook.com/groups/care4rare
Join our private Facebook group for parents of kids with CS and TTD
Mission: Supporting families affected by Cockayne syndrome, TTD, XP, and related rare disorders through connection, education, research and hope. There are approximately 100-200 known cases in the United States and 400 in the world and there are likely many more who have not been diagnosed. Through our network we support families who have children with this condition and work to create awareness and help families obtain an earlier diagnosis.

Dad’s virtual meeting tonight 🍕💫⭐️🌓🦜🫈🦖🕷️🦉🐦‍⬛🐸🐭🐹🦊🐶 Join Trey Allen and other days for dads of kids w TTD & CS. Please see...
10/15/2026

Dad’s virtual meeting tonight 🍕💫⭐️🌓🦜🫈🦖🕷️🦉🐦‍⬛🐸🐭🐹🦊🐶 Join Trey Allen and other days for dads of kids w TTD & CS. Please see dial in info below.

Zoom is the leader in modern enterprise cloud communications.

🎬 “Who does Number Two work for?” 😂Who knows what movie that line is from?And speaking of Number Two… Dads Meetup #2 is...
09/10/2026

🎬 “Who does Number Two work for?” 😂

Who knows what movie that line is from?

And speaking of Number Two… Dads Meetup #2 is TONIGHT! 💛

Dads, check your messages for the meeting time and link. Hope you can join us!

Check this forwarded message for meeting time and link. See you tonight!

TTD/CS Dads!! Don’t forget tonight is the monthly virtual Dad’s meeting! Link to the zoom meeting below:

https://us06web.zoom.us/j/84278775740?pwd=m3CNb4kmxizMzDdeZwxHeLpFwb2QZR.1

Meeting ID: 842 7877 5740
Passcode: 377659

Can we get some birthday wishes for Charlotte and Augusta! 🎉💛 We have TWO birthdays to celebrate! 💛🎉Sweet Charlotte turn...
08/29/2026

Can we get some birthday wishes for Charlotte and Augusta! 🎉💛 We have TWO birthdays to celebrate! 💛🎉

Sweet Charlotte turned 6 years old a few days ago, and today Augusta is celebrating her 24th birthday! 🎂🎈

In our rare community, birthdays are extra special. We aren’t just celebrating another year older—we’re celebrating another year of your story, your journey, and the joy you bring to our Share & Care family. 💛🦋

Happy 6th Birthday, Charlotte, and Happy 24th Birthday, Augusta! We are so happy to celebrate both of YOU!

🎉💛🎂🎈

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New Port Richey, FL
34652

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