Rare Trait Hope Fund

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Rare Trait Hope Fund Funding and facilitating treatments to cure Aspartylglucosaminuria (AGU) We are filing documents with the FDA to start AGU gene replacement clinical trial.

Rare Trait Hope Fund focuses on development of treatments an ultra-rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults. We still need ~1.7 MM$ to pay for the drug that can be given to AGU kids. To learn more, go to www.raretrait.com

04/16/2026

AGU gene therapy clinical trial is starting soon:

04/08/2026

Investigational New Drug application has been approved for AGU gene therapy by the FDA. Clinical trial and patients' enrollment will start soon in the USA.

03/22/2026

Monthly parents' meeting will be help tomorrow, Sunday March 22. Please, check the correct time for the meeting. Some places changed clock to the summer time, others not yet. Time of the meeting is 11 am New York time. The link is posted in the AGU parent Slack group. Let me know if you cant access the invite.

02/22/2026

Monthly parents' meeting will be help tomorrow, Sunday February 22. Usual time and place. Let me know if you need an invite.

Address

PO Box 741155
New Orleans, LA
70174

Telephone

+15044081126

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