06/19/2026
As you celebrate Father’s Day this Sunday, we hope you’ll take a moment to think about the dads spending the day at their child’s hospital bedside.
Meet Braydon’s dad.
This Father’s Day, he will be at Children’s Hospital of Philadelphia with his five-year-old son, Braydon, who is courageously battling very early onset IBD and X-linked chronic granulomatous disease—a rare genetic disorder that prevents certain white blood cells from fighting infection. Braydon is now also facing a bone marrow transplant.
Like so many rare disease families, Braydon’s parents are doing everything they can to keep their family afloat. Both mom and dad work, yet the financial strain continues to grow. Because Braydon’s complex condition cannot be managed locally, the family must travel more than three hours to CHOP for specialized care. Between travel, lodging, meals, lost work time, and other uncovered medical expenses, the burden is overwhelming.
Despite these challenges, Braydon’s family remains incredibly strong and resilient. They are caring not only for Braydon, but for their other children as well—all while navigating a difficult and uncertain road.
This Father’s Day, let’s show Braydon’s dad—and the many fathers spending the holiday beside a hospital bed—that they are not alone.
A donation of any size can help ease the financial burden and provide support when it’s needed most.
Thank you for , and for standing with families like Braydon’s.
