Adenoid Cystic Carcinoma Research Foundation

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Adenoid Cystic Carcinoma Research Foundation

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The Adenoid Cystic Carcinoma Research Foundation (ACCRF) supports research into ACC

10/16/2026

ACCRF grantees Drs. Dahlstrom, Wang, Sturgis updated statistics on the incidence and survival of ACC patients, finding a higher rate at non-salivary sites than previously.

https://pubmed.ncbi.nlm.nih.gov/42762772/

10/13/2026

ACCRF and Brave Like Gabe are co-sponsoring Tempus to fund a Rare Cancer Research Collaboration in Adenoid Cystic Carcinoma.

10/08/2026

ACCRF grantees Drs. Alan Ho, Rich Wong, and colleagues analyzed data from more than 2,000 patients with major salivary gland ACC in the National Cancer Database and found that postoperative radiation therapy (PORT) was associated with improved overall survival compared with surgery alone. This benefit was seen in patients with early-stage disease, large tumors without lymph node involvement, and negative surgical margins, but not in patients with large tumors and positive surgical margins. These findings support the use of PORT in non-metastatic major salivary gland ACC patients and highlight a high-risk subgroup that may benefit from intensified treatment in the adjuvant setting.

https://pubmed.ncbi.nlm.nih.gov/42570497/

10/04/2026

ACCRF awards Dr. Samir Hanash (MD Anderson Cancer Center) a pilot grant to validate an ACC-specific cell surface target for ADC therapy. You can learn more about all ACCRF grantees at accrf.org/research/grants/funded-grants/

10/01/2026

Phase 2 trial testing Puxitatug Samrotecan (AZD8205) - also known as P-Sam - opens to ACC-I patients. The trial is open at MD Anderson Cancer Center in Houston, TX, USA. You can find full trail information below.

09/23/2026

Please join us Saturday, November 14 from 1pm - 4pm PT in Los Angeles, CA, USA for a day of community, connection, and education at the the 2026 ACCRF Patient Meeting - Los Angeles.

This in-person event provides a forum for ACC patients to meet, discuss their journeys, and hear about the latest in ACC research and treatment options. Family, friends, and care givers are welcome and encouraged to attend. Please Note: This is an in-person only event with no virtual participation.

You can register using the link below:
https://lp.constantcontactpages.com/ev/reg/9xhx7uy

The event will include:
A presentation from Executive Director Dr. Nicole Spardy Burr, PhD

Remarks from Co-Founders Jeff & Marnie Kaufman

Patient Discussion and Q&A

Light refreshments will be provided

09/18/2026

ACCRF grantee Dr. Alan Ho and colleagues analyzed NCDB data and found that lung-only metastases had the most favorable long-term survival while bone and liver metastases independently predicted poor prognosis. These results may improve patient counseling and clinical trial design.

https://pubmed.ncbi.nlm.nih.gov/42570497/

09/15/2026

When Amanda (Mandy) Kedaigle learned of her mother’s ACC diagnosis, she didn’t know anything about the rare cancer, but she knew she wanted to make a difference not only for her mom, but for the ACC community.

During her postdoctoral work at MIT, Mandy created a genomic database that continues to be a vital resource for many ACC researchers in understanding how the disease functions and identifying drug targets for better treatments. You can read more about Mandy's incredible story and work in our latest Patient Champion feature!

https://accrf.org/mandy-kedaigle/

09/09/2026

Register Today for the Next ACCRF Patient Webinar!

Join us Saturday October 24 from 12-1pm ET for the Fall ACCRF Patient Webinar:

Lung Radiology for ACC: Understanding Your CT Scans and Reports.

If you've ever wondered how to make sense of your lung CT scans, you're not alone. We often hear questions from patients and caregivers about what the findings mean.

To help answer these questions, Dr. Florian Fintelmann, Medical Director of Thoracic Radiology at Massachusetts General Hospital will join our upcoming webinar to explain how scans are interpreted, what information is most important, and how the reports may guide the planning of your care.

You can register through the link below:
https://us02web.zoom.us/webinar/register/WN_JpuNAR4aRiCgIjeyx44P8A #/registration

09/01/2026

A Phase 2 trial testing Becotatug Vedotin (an EGFR-targeted antibody-drug conjugate (ADC)) and Stereotactic Body Radiation Therapy (SBRT) is now open for patients with recurrent/metastatic ACC in Shanghai, China.

Address

60 Dedham Avenue, Suite 204
Needham, MA
02494

Telephone

+17812489699

Website

http://www.accrf.org/

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