09/03/2026
A while ago I realised I’d started judging my days differently.
I wasn’t asking, “Was today good?”
I was asking things like:
Did we get through the school run without a crisis?
Did I manage to stop things escalating?
Did everyone get to the end of the day safely?
Did I keep it together enough to do it all again tomorrow?
And that became the benchmark.
That’s the part of disability parenting people don’t always see.
You can adore your child and still dread what the next few hours might bring.
You can be doing an incredible job and still feel like your body is permanently waiting for the next thing.
That constant state of readiness is exactly why so many carers end up burnt out.
This level of care asks a lot from a human nervous system.
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