Tennessee Prader-Willi Association, Inc.

07/23/2026

🧡 Exciting news for PWSTennessee! 🧡

We’re thrilled to officially welcome Lucy Sinsheimer as our new Vice President!

Lucy is mom to the adorable Olive, and like so many in our community, she understands the joys, challenges, and unique journey of raising a child with Prader-Willi syndrome. Her heart for families, passion for advocacy, and willingness to serve make her a wonderful addition to our leadership team.

Over the coming year, Lucy will be working alongside our board as she becomes more familiar with the incredible families we serve. We are excited for all that lies ahead!

✨ Meet your PWSA Tennessee Board:
• Ashley White, President
• Lucy Sinsheimer, Vice President
• Misti Love, Secretary
• Steve Asbury, Treasurer
• Terry Davis, Board Member

Take a moment to check out Lucy’s “About Me” graphic below, then join us in giving her a warm Tennessee welcome in the comments! 🧡

Welcome to the team, Lucy! We’re so grateful you’re here.

05/15/2026

https://www.facebook.com/share/p/1BNVHKDTuG/

Today is PWS Awareness Day - a moment for our global community to come together and shine a light on the rare genetic condition. 🌎

All year round, we provide free access to genetic screening and useful information so that people with PWS and their families receive the support they need to fulfil their potential and achieve their goals.

Check the comments to find out more about how we help.👇

05/14/2026

https://www.facebook.com/share/p/1B6NLKhZE7/

1 DAY TO GO!

TOMORROW the global PWS community will join together and GO ORANGE FOR PWS!

Are you ready to help us break the internet and turn cyberspace Orange for PWS?
Tell your friends, tell your family, tell your work colleagues, tell the postman!

The event is open all weekend to accommodate our global PWS community and the different time zones, so if you can't post on Friday in the southern hemisphere, you still have the chance to do it Saturday and Sunday.

Join us on Friday 15th May on this page, tag us, and share your pics with the global PWS community.

For more information: pwsavic.org.au