Cause The Wave Pearl Jam Fan Movement

Cause The Wave Pearl Jam Fan Movement Pearl Jam Fan Movement is a Wishlist Foundation division honoring individuals and families affected by EB (Epidermolysis Bullosa).

EB—or Epidermolysis Bullosa—is devastating, and currently without a cure. EB is a group of life-threatening skin conditions that affects children from birth. An individual with EB lacks a critical protein that binds the layers of skin together. Without this protein, the skin tears apart, blisters and sheers off, leading to severe pain, disfigurement, and wounds that never heal. EB affects the body

inside and out. Blisters occur all over the body, as well as in the eyes, mouth, esophagus, and other internal organs. EB causes severe pain, disfigurement, and in too many cases, an early death from an aggressive form of skin cancer. It is estimated that EB affects at least one in every 20,000 births. EB is not specific to any ethnicity or gender. Given that EB affects only 30,000 people in the US, advancing this research relies on the generosity of individuals and corporations. EB Research Partnership (co-founded by Jill & Eddie Vedder, Jamie & Alex Silver and Heather & Ryan Fullmer) have raised over $10.5 million for research grants and has been instrumental in securing an additional $35 million for critical EB research.

Pearl Jam Fan Movement is dedicated to raising awareness and helping to find a cure to . These incredible faces have stories to be told that deserve to be heard. Join us to to ! EB Research Project (EBRP)
Website: http://ebresearch.org/
Website: http://causethewave.org/

Global Valentine's Fundraiser:
https://www.facebook.com/events/1527203470885466/

Cause The Wave: Eddie Vedder and the EB Research Partnership:
https://youtu.be/QSJvD6msRoo

Pearl Jam fans wish Eddie Vedder Happy Birthday :
https://youtu.be/oBFTo6SGKkI

Eddie spoke about EBRP at the St. Paul show - check out the videos:
http://youtu.be/T4jzMedOIBw
http://youtu.be/otg5Yyg_-SE

He later mentioned HealEB and the fan efforts at the Milwaukee show:
http://youtu.be/tNp6pEqXzwE

Check out some photos of fans helping to :
http://youtu.be/tNp6pEqXzwE

10/07/2021

EB warrior, Mikey owning The Ohana Fest encore weekend celebrating his 15th birthday like a rockstar!

You can help us to by donating to EB Research Partnership. We appreciate you! 🦋

Many thanks to our friend, Tiffany, who captured these special moments!

Happy, happy birthday Mikey! Have the BEST time at The Ohana Fest! 🥳1️⃣5️⃣❤️ with ・・・If anyone sees my buddy Mikey at ...
10/03/2021

Happy, happy birthday Mikey! Have the BEST time at The Ohana Fest!
🥳1️⃣5️⃣❤️

with
・・・
If anyone sees my buddy Mikey at tonight be sure to wish him a HAPPY 15th BIRTHDAY 🥳 and please check out to learn more about Mikeys condition and donate so we can 🙏🏼💙🙏🏼

08/20/2021
08/19/2021

A co-founder of the campaign, Lucy Beall is an inspiring young woman living with EB who seeks to change how society views differently-abled individuals. Lucy has defied stigmas surrounding disabilities by graduating from University of St. Andrews and pursuing a Masters Degree at the Courtald Institute of Art, working in London auction houses, and by modeling and writing for publications such as Vogue Italia. Through her work, Lucy hopes to develop the discussion on visible disabilities and how those with disabilities are portrayed by the media. Joined by EBRP Ambassador Olivia Vedder, the campaign was launched last summer in an effort to raise EB awareness and combat society's harmful standards of beauty. Inspired? Post a photo that makes you feel beautiful to social media using the hashtag and tagging us so we can see how far the message goes 💖🦋

07/30/2021

Always superoheroes in our eyes. 👋🦋❤️🙌

EB Research Partnership's annual 5K starts TODAY! Please join us to help by walking or running to find a cure. Regi...
07/23/2021

EB Research Partnership's annual 5K starts TODAY! Please join us to help by walking or running to find a cure.

Registration for the event includes an EBRP-branded water bottle to keep you hydrated and your own personal fundraising page to share with your network. You'll have the chance to win the following awesome incentives along the way as you hit fundraising milestones:

- $250: EBRP Portable Charger
- $500: EBRP Tote Bag
- $1,000: EBRP x Nike Half Zip Sweatshirt

Last year, 250 runners joined EBRP to run a collective 11,000 miles and raise over $65,000 to heal EB. Let's smash those numbers this year! Register today and .

Help us Take Flight! Pearl Jam Fan Movement is a Wishlist Foundation division honoring individuals and families affected by EB that raises awareness and funds to benefit EB Research Partnership since 2014.

LIVE NOW!
11/19/2020

LIVE NOW!

Join us on November 18, 2020 at 8pm EST for a first-of-its-kind digital event led by our Co-Founders Jill and Eddie Vedder. The show will feature uplifting s...

11/18/2020

Less than 24 hours until EB Research Partnership’s epic event ! We are blown away by all the love and support being shown to the EB community.

A special thank you to everyone who donated to our campaign. Hope you will join us to and ! ❤️🦋🙏

Did you RSVP yet? It’s going to be an epic night!
11/16/2020

Did you RSVP yet? It’s going to be an epic night!

The event poster is designed by MUNK ONE and available through the end of the event on Wednesday: http://pj.lnk.to/VICPosterTP

Artists, musicians, scientists, activists, actors, actresses, comedians, rock stars, and the EB community have all come together so we can raise awareness and funds for research aimed at finding a cure for EB. We'll be LIVE with Jill and Eddie Vedder and more. RSVP at ventureintocures.org !

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P. O. Box 3868
Naperville, IL
60567

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