Better Future 4 U

10/21/2025

10/20/2025

October 20 is HNRNPU Awareness Day 💜

HNRNPU is one of the HNRNP-Related Neurodevelopmental Disorders (HNRNP-RNDDs), a rare group of genetic conditions that affect brain development and function. Fewer than 350 individuals are known worldwide.

Together with Better Future 4 U and the HNRNP Family Foundation, we're raising awareness and driving research forward for families around the world.
Swipe to learn more and visit BF4U.org or HNRNP.org to get involved.

10/20/2025

Today we honor the HNRNPU community — families, researchers, and advocates who are driving progress and hope for those living with HNRNPU-related neurodevelopmental disorders.

We are grateful for experts like Dr. Meena Balasubramanian, whose groundbreaking research and collaboration with families continue to advance understanding and care.

Together, we’re building a better future for rare — one discovery, one connection, and one story at a time.

10/18/2025

October 20th is HNRNPU Awareness Day! 💜
Better Future 4 U is proud to stand with the HNRNP Family Foundation and families around the world raising awareness for all HNRNP-related neurodevelopmental disorders.
Every gene has a story and every story matters.

09/02/2025

🎃👻 Get ready for Bites, Brews, Boos & BF4U! 🍻✨

Join us for a spooktacular night of music, food, drink specials, a costume contest, and more — all while supporting Better Future 4 U and our mission to fund research and treatment for HNRNPU. 💜

🗓️ Friday, October 24, 2025
⏰ 4:00 PM
📍 EasySpeak - 586 Milford Harrington Hwy, Milford, DE 19963

Your Halloween fun fuels HOPE for families impacted by this rare genetic disorder. 🕷️🦇

08/18/2025

🌍💜 Community Connect is back! We enjoyed meeting so many of you in person last month in Ponte Vedra, and we’re excited to continue the conversations online. Join HNRNPU parents the last Friday of each month to connect live with our community.
✨ We’re offering both a Daytime and an Evening option so families across time zones can participate:
🕛 Daytime
11–12 PM PT | 12–1 PM MT | 1–2 PM CT | 2–3 PM ET
👉 Register here: Daytime Link: https://us02web.zoom.us/meeting/register/z4PWaAIrTpOrgp5yhJT4cQ
🌙 Evening
5–6 PM PT | 6–7 PM MT | 7–8 PM CT | 8–9 PM ET
👉 Register here: Evening Link: https://us02web.zoom.us/meeting/register/TPLWjv_aQfyESYC7wkBSTg
After registering, you’ll receive a confirmation email with all the details to join.
Let’s Unite | Uplift | Understand 💜
HNRNPU

06/30/2025

Mary’s upcoming journey stretches 4,444 miles, but her impact reaches so much farther. From New Jersey to Colorado to Florida and back again, Mary is carrying more than luggage—she’s carrying hope for nearly 300 others around the world with HNRNPU. Her cross-country trip is powering life-changing research. One mile and one donation at a time. 💜 Donate $40 (4,000 pennies) to honor her 4,444 miles of advocacy and fuel the road to treatment. This isn’t just a trip. It’s a movement. It’s Mary in motion.

🌐 www.BF4U.org/MilesWithMary

06/25/2025

✈️ Better Future 4 U is proud to sponsor Dr. Meena Balasubramanian’s international travel to the 2025 HNRNP Gene Family Meeting in Ponte Vedra, FL! Hosted by and

Dr. Meena’s presence is vital—not just as a leading HNRNPU researcher, but as someone who listens to and learns from our families. 💜 Her connection to our community helps ensure that research is shaped by the real lives behind the science.
We can’t wait to welcome her—and keep driving this work forward, together. 💫


06/10/2025

Let’s reconnect! Our Community Connect Zoom call has been rescheduled from last month and will now take place on Thursday, June 12th! 💜
Join us to connect with other HNRNPU families and hear updates from our amazing hosts:
✨ Amanda Reuther, Paeyton’s Mom & BF4U President
✨ Lori Ligorio, Donny’s Mom & BF4U Board Member
✨ Alex Caiola, Ellie’s Mom & BF4U Vice President
📅 Daytime: 11-12 PM PT / 12-1 PM MT / 1-2 PM CT / 2-3 PM ET
👉 Register for the daytime meeting: https://us02web.zoom.us/meeting/register/LOMWy3ZQRhiQkBpshCoiHg
📅 Evening: 5-6 PM PT / 6-7 PM MT / 7-8 PM CT / 8-9 PM ET
👉 Register for the evening meeting: https://us02web.zoom.us/meeting/register/IcMaKWguRDytomQ1kKM19w
After registering, you’ll get a confirmation email with everything you need to join the meeting. Let’s unite, uplift, and understand together!

05/30/2025

Dear HNRNPU Community,

We wanted to let you know that the HNRNPU Community Connect event originally scheduled for May 30th has been rescheduled. We’re working to finalize the new date and will share it with you as soon as possible.

Thank you for your understanding and flexibility as we continue to build connections within our community.
Stay tuned for updates!

Warmly,
The Better Future 4 U Teamhnrnpu | www.betterfuture4u.org