Savian and Brixan - MVID Journey

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Savian and Brixan - MVID Journey This page is to help others follow Savian & Brixan on their journey with Microvillous Inclusion Disease. We love to share our story with others!!

Wow! It’s been almost a year since I’ve posted on here. (I’m sorry!!) Here is a yearly update:March 2026- both boys had ...
07/24/2026

Wow! It’s been almost a year since I’ve posted on here. (I’m sorry!!)

Here is a yearly update:
March 2026- both boys had surgery to have new lines placed due to some issues with their previous lines. After two surgeries for both, because the first line was not the best, they have great functioning lines.
May 2026- Brixan was diagnosed with osteoporosis & has been doing weekly PT appointments with Savian.
July 2026- The boys had a bi-monthly appointment, they are doing really well & continuing to gain good weight. Savian is 58lbs & 47” tall, Brixan is 46lbs & 44” tall. The doctors are very happy with how well they are thriving.

As always, thank you for all of your thoughts and prayers! We are so grateful for everyone in our village. 💙💚

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Moundridge, KS

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