1Boy4Change.org

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Our Story

I am Christopher Carswell and I am 22 years old. I have been fighting since before I was born... I have had multiple hand reconstructive surgeries. I have had tonsil and adenoid surgery - it went wrong and he had a feeding tube for a while. At some point in my life I had a stroke. I have overcome lots of developmental delays and some I am still working on... October 11, 2007 I started having seizures and I went into respiratory/cardiac arrest. I spent several days in PICU and a couple more days in a regular room. I am on medicine that helps control my seizures. I have had lots of tests, x-rays, MRIs, EEGs and EKGs done. I travel to the Florida hospital for Children in Orlando, FL and I have numerous trips to other specialists. I see a cardiologist, neurologist, genetics specialist, orthopedists, ophthalmologist, and a pediatrician. My life has been and continues to be governed by medical challenges. In 2015 I survived another stroke, a brain bleed and brain surgeries to only turn around and be diagnosed with Loeys-Dietz Syndrome 4. There is no cure. I have grown stronger and wiser through all of my challenges. I have seen the kindness of a stranger, a random act of kindness, a kind word, a prayer and I know “first hand” how good it can make you feel. “1 Boy 4 Change” is my website for “change.” Change in the way we see ourselves, our community and our world. I am showing everyone how to “pay it forward, to educate” and “to be kind” – join me and we can all make a difference in at least one life! Chris