The Addison Hutchison Foundation

The Addison Hutchison Foundation To enhance the spiritual, physical and emotional growth of children through education and athletics; raise awareness to SUDEP.

We are so honored to have concluded our year as a chosen charity from Hoptown Brewing. Yesterday was the culminating eve...
03/24/2026

We are so honored to have concluded our year as a chosen charity from Hoptown Brewing. Yesterday was the culminating event.

For new charities are up and raising money for the incoming year. Please go support them!

Hoptown has been running this program for the last five years and has donated over $100,000 to local charities. We are grateful that we got to be a part of it. 💜💜

Today you should be turning 18.A milestone we always knew would come, but one we never imagined we would face without yo...
01/24/2026

Today you should be turning 18.

A milestone we always knew would come, but one we never imagined we would face without you here.

You left us at 11, and somehow the world has kept moving forward, even though ours stopped in so many ways that day.

Now you’re supposed to be grown — choosing colleges, talking about the future, driving yourself places, making plans with friends we’ll never get to meet.

We’ll never know who your best friend would be now.

What subjects you’d love.
What music you’d listen to.
What you’d want to be when you grew up.

If you’d still laugh the same way. If your smile would look different. If you’d be shy or confident or both.

We don’t get to know your favorite coffee order.
We don’t get to help you pick out a prom dress.
We don’t get to watch you stress over exams or celebrate acceptance letters.

We don’t get to see who you’re becoming.
Instead, we hold onto who you were — 11 years of love, laughter, and a bond that death didn’t take with it. You grew up in heaven, but you will always stay the little girl who made us parents.

Happy 18th birthday, our sweet girl.
We miss the life you should have had.
We miss the woman you were supposed to become.

And we miss you — every single day.

The 2025 meeting will be held at the Omni Atlanta Hotel at Centennial Park in Atlanta, GA, on December 4th, 2025, with ...
10/15/2025

The 2025 meeting will be held at the
Omni Atlanta Hotel at Centennial Park in Atlanta, GA, on
December 4th, 2025, with the family session occurring the day
before on December 3rd. The meeting will be held ahead of
the annual Epilepsy Society Conference
(December 5th - 9th, 2025). Check out the program!
https://pameonline.org/event/2025-pame-conference/


SUDEP Action Day on Oct. 15 is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). This...
10/15/2025

SUDEP Action Day on Oct. 15 is a crucial time to raise
awareness about Sudden Unexpected Death in Epilepsy
(SUDEP). This year’s theme, 'Hope Begins with a
Conversation,' empowers all to talk openly about SUDEP
risks and prevention, because every conversation can be a
step toward safety, understanding, and hope. Join us and
our partners in continuing this important conversation. Learn
more: https://pameonline.org/

In a quality improvement survey, 27% of caregivers and individuals with reported learning about SUDEP more than five ye...
10/14/2025

In a quality improvement survey, 27% of
caregivers and individuals with reported learning about
SUDEP more than five years after diagnosis. Yet, 40% said
they would have preferred to hear about SUDEP at the time of
diagnosis.

Early conversations matter. Let’s bridge the gap in epilepsy
education. http://bit.ly/47BjSDh


Epilepsy research reveals that generalized tonic–clonic seizures at night, particularly for individuals sleeping alone,...
10/14/2025

Epilepsy research reveals that
generalized tonic–clonic seizures at night, particularly for
individuals sleeping alone, greatly increase SUDEP risk.
Ongoing data analysis and a recent expert workshop are
driving progress in risk assessment. This is how science
brings prevention within reach. Learn more:
https://www.cureepilepsy.org/research-discoveries/sorting-out
sudep-seeking-the-causes-finding-those-at-risk/


Sudden Unexpected Death in Epilepsy (SUDEP) research has been slowed by inconsistent data collection across studies. Tha...
10/14/2025

Sudden Unexpected Death in Epilepsy
(SUDEP) research has been slowed by inconsistent data
collection across studies. That’s why Epilepsy
launched the Preclinical SUDEP Common Data Elements
(CDEs), a framework designed to standardize SUDEP data
across animal model studies.

By unifying the way researchers collect and report
information—such as seizure activity, posture at time of death,
physiological measures, and neurological findings—these
tools make studies more comparable, transparent, and
impactful.

https://www.cureepilepsy.org/for-researchers/research-resourc
es/sudden-unexpected-death-in-epilepsy-sudep-cdes/


You have the right to life-saving information. Seizure detection devices can help keep you safe by notifying your loved ...
10/14/2025

You have the right to life-saving information.
Seizure detection devices can help keep you safe by notifying
your loved ones during a seizure. Learn more about SUDEP
and explore devices with resources from :
https://www.dannydid.org/devices-technology/. Stay informed
and take steps to protect yourself and those you love.


Safety is a top priority when managing your epilepsy. Building your healthcare team can help reduce your risk for SUDEP....
10/13/2025

Safety is a top priority when managing your
epilepsy. Building your healthcare team can help reduce your
risk for SUDEP. Visit the Epilepsy Society website
to find specialty care and discuss how to reduce risks for
SUDEP: https://my.aesnet.org/findadoctor


In a recent quality improvement survey asking healthcare providers about SUDEP, 36% of healthcare providers said they wo...
10/13/2025

In a recent quality improvement survey
asking healthcare providers about SUDEP, 36% of healthcare
providers said they worry discussing SUDEP might cause
extra stress or anxiety for patients and families.

But many individuals affected by epilepsy say they want
honest, early conversations. Finding the right balance matters.
Thank you, Alliance, for this research.
http://bit.ly/47BjSDh


People living with epilepsy and their families deserve clear, compassionate information about SUDEP and epilepsy-related...
10/13/2025

People living with epilepsy and their families
deserve clear, compassionate information about SUDEP and
epilepsy-related risks. Awareness leads to informed choices
and safer lives.

Danny Did Foundation urges healthcare professionals
to talk about SUDEP early in the care journey and follow up at
future appointments as circumstances and risks evolve.

Talking about SUDEP isn't frightening; it’s a vital step toward
safety and understanding.


Address

Mooresville, NC
28117

Telephone

+14239464071

Website

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