06/09/2026
Thank you Aidan for reaching out and helping us raise awareness-your story matters!
PT1: My name is Aidan, when I was 20 months old, I was diagnosed with Lymphatic Malformation of my left orbital. Since my Diagnosis in 2007, I have lost complete vision in my left eye and have had 12 Sclerotherapy treatments. Due to this very rare disease, treatment was not easy to find initially, requiring consistent travel from NC to Nationwide Children’s Hospital in Columbus Ohio in the early years. Since my last treatment in 2018, I have shown minor symptoms. Although it’s hard to adapt to certain activities due to my lack of vision and hindered depth perception, I’ve been grateful enough to have all the support in the world from friends and family.
Pt2: I am now 20, a rising senior in college who loves to cook and travel. Ive enjoyed spreading my story over the years and to all the new people I get to meet. I have especially loved helping answer questions of families influenced by my rare disease. I am truly grateful for organizations like Kennedys Cause, who spread awareness and the stories of people like me in the LM community.
