Kennedy's Cause

03/19/2026

Meet LM Warrior, Oaklynne! Thank you to her family for sharing a bit of her journey so far to help us raise awareness. Keep SHINING sweet girl! Her family wrote…
“Oaklynne was born with a lymphatic malformation on her neck. She has had 4 scheleropy treatments with the last one causing a 2 month hospital stay as they injected her tongue for the first time and she had an adverse reaction to the treatment. She ended up getting a trach and gtube put in due to swelling not going down as fast as we would like. Shes thriving and doing well right now. We are looking at starting the medication sirolimus to help with the malformation in her cheeks and mouth.”

03/01/2026

More Rare Disease Day awareness! Thanks, MaKenzie!

03/01/2026

Grateful for Gavin and his family for doing such a great job raising awareness every year! ❤️

03/01/2026

CARE ABOUT RARE
Celebrating Carson!! This little LM Warrior has micro and macro cysts making up his lymphatic malformation. Help us say “hello” to this brave cutie! 👋

03/01/2026

CARE ABOUT RARE ❤️

28 de febrero Día mundial de las enfermedades raras o poco frecuentes.

Por un mundo donde la concientización, el respeto, la inclusión y la empatia vivan en cada uno de nosotros y seamos parte de una generación que promueva comunidades en armonía donde las diferencias sean las que nos unan y lo que consideramos raro sea EXTRAORDINARIO ❤️

MATEO nació padeciendo una enfermedad llamada linfangioma cervical en rostro y cuello, este tipo de linfangioma es microquistico es decir está conformado por muchos micro quistes simulando un ramito de uvas, estos invaden su rostro y cuello afectando principalmente su salida de aire por lo cual depende de una cánula de traqueostomia para poder respirar.

En México existen varios casos médicos como el de Mateo por eso es necesario que nuestra sociedad difunda y aprenda acerca de esta condición médica para que sean vistos y puedan desarrollarse más tratamientos médicos en los hospitales públicos así como más recursos y especialistas a los cuales todos puedan tener acceso.

Ayudando a un Guerrero - Mateo estamos muy orgullosos de ser parte de lo que es considerado diferente ya que todos somos únicos, especiales y maravillosos.. ❤️

Comparte si conoces a alguien con alguna enfermedad rara o poco frecuente a alguien EXTRAORDINARIO...

02/28/2026

Today is RARE DISEASE DAY! A day to celebrate and honor the 30 million people in the US-350 million around the globe, living with a rare disease. We are so thankful for the dedication of the clinicians and scientists who continue to improve the lives of those living with lymphatic malformation. We thought what better way to celebrate today than to share some photos from this past year, living large! Thank you to all of our supporters who have walked this journey with us ❤️ National Organization for Rare Disorders, Inc. (NORD)

02/14/2026

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01/05/2026

Help us wish this amazing guy a Happy 13th Birthday!! It’s been a pleasure to watch you grow over the years ❤️

12/15/2025

3 LM Warriors & SANTA!!
Thank you to all who came out to support our Kennedy’s Cause 8th Annual Toy Drive last Sunday! It meant the world to us to meet another LM family-this made our event extra special. A huge shout out to Santa Claus is Coming to South Jersey for once again bringing the magic with his huge heart. Thank you also to those who couldn’t attend and sent Amazon gift cards or dropped toys onto our porch! There will be patients with smiles on their faces at 2 local children’s hospitals because of your efforts-we are so appreciative! ❤️
-if you attended and have pics, please share!

12/06/2025

TOMORROW!! Our Kennedy’s Cause 8th Annual Toy Drive is just a day away! PLEASE JOIN US and help us put smiles on the facing of patients at local children’s hospitals during the holidays and all year! Bring an unwrapped item, for ages birth-young adult, Amazon Gift cards are always needed for specific items to be purchased by hospital staff. Invite friends & neighbors…the more the merrier! This is an outdoor event, dress appropriately, we will have fire pits and heaters and can step inside to warm up!
Please reach out with any questions, thank you!

11/30/2025

7 yrs ago, a day that rattled us a bit but a good reminder that one “man” doesn’t define your character, it reveals theirs. Original post had over 6,000 people sending support and love. We still appreciate all of them! be kind. be proud. shine