APDS Rare Disease Coalition

APDS Rare Disease Coalition Bringing light to a rare condition & strength to those who live with it.

The APDS Rare Disease Coalition provides education, advocacy, resources & community support for individuals and families affected by APDS building awareness, hope & unity worldwide.

Bringing light to a rare condition and strength to those who live with it. đź’™The APDS Rare Disease Coalition was created ...
05/22/2026

Bringing light to a rare condition and strength to those who live with it. đź’™

The APDS Rare Disease Coalition was created to provide education, advocacy, resources, and community support for individuals and families affected by APDS.

Our mission is to build awareness, inspire hope, and create a stronger global community for those navigating this rare disease journey together.

You are not alone.

Liam participated in the Immune Deficiency Foundation Advocacy Day!
04/30/2026

Liam participated in the Immune Deficiency Foundation Advocacy Day!

Check out APDS Advocates Official’s video.

04/07/2026

Good morning I will be putting a flyer and a survey for everyone to do. It does pay $10 after you complete it. The APDS Rare Disease Coalition was awarded the research grant so we wanted to make sure we are doing everything to get numbers back and data so we can continue the fight to bring awareness to APDS.

Hey family and friends we have made great progress on newborn screening. We are fighting everyday to give newborns and ...
04/02/2026

Hey family and friends we have made great progress on newborn screening. We are fighting everyday to give newborns and family members a chance at treatment and care starting out. This takes time and dedication and funds that we have used out of pocket. We are not funded by the One Pharmaceutical Company that makes our treatment for APDS because they are not backing the ONLY coalition that truly helps every patient and their families. We ask that you Google APDScoalition and if you would like to support what we are doing there is a donation tab on there where you can donate and we can give you receipt since we are 501c3 organization. Please feel free to reach out to anyone of us if you have any questions or concerns.

04/02/2026
A snippet of Rare Disease Day at NIH!
03/17/2026

A snippet of Rare Disease Day at NIH!

Watch, follow, and discover more trending content.

03/02/2026

Living with APDS doesn’t have to control what you do. Reach out to us for help and answers # RareDiseaseCommunity

03/02/2026

Good Morning Everyone…we need some more engagement with the page. We are trying each week to see where we can expand and help others in our community but we need your guys help as well

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316 South 100 East
Monticello, UT
84535

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