APDS Rare Disease Coalition

06/12/2026

05/29/2026

We are getting ready to plan for our FIRST EVER APDS AWARENESS 5 K walk in Phoenix, Arizona if you would like to join we have a link on our website. Please free to reach out to me if you have any questions or concerns.

05/27/2026

Today, we continue our mission to raise awareness, build connections, and support individuals and families affected by Activated PI3K Delta Syndrome (APDS).

Every conversation, shared story, and act of advocacy helps bring greater understanding and hope to the rare disease community. 💙💚

05/23/2026

Join us on October 1st as we recognize APDS Awareness Day in beautiful Phoenix 💚💛

The APDS Rare Disease Coalition is proud to continue raising awareness, building connections, and giving a voice to individuals and families affected by Activated PI3K Delta Syndrome (APDS) and rare diseases around the world.

APDS is rare, often misunderstood, and many families spend years searching for answers. Through advocacy, education, awareness events, and community support, we are working to bridge the gap between patients, families, specialists, and resources.

This October 1st, we invite our community to stand with us:
💚 Share your story
💛 Wear green and yellow
💚 Help spread awareness
💛 Support rare disease families
💚 Be part of the movement for earlier diagnosis and stronger support systems

Together, we are reminding the world that even rare diseases deserve recognition, research, and hope.

More details about our Phoenix APDS Awareness Day event will be coming soon. Thank you to every patient, caregiver, advocate, provider, and supporter helping us build this community one connection at a time.

05/22/2026

Bringing light to a rare condition and strength to those who live with it. 💙

The APDS Rare Disease Coalition was created to provide education, advocacy, resources, and community support for individuals and families affected by APDS.

Our mission is to build awareness, inspire hope, and create a stronger global community for those navigating this rare disease journey together.

You are not alone.