The Arc of Alabama

The Arc of Alabama Advocacy, Information and Referral services for people with intellectual and developmental disabilities

06/17/2026

The Trump administration has finalized interagency agreements transferring the Office of Special Education and Rehabilitative Services (OSERS) to the Department of Health and Human Services (HHS) and the Office for Civil Rights (OCR) to the Department of Justice (DOJ). Advocates argue this dismantles crucial educational equity infrastructure.

We See Immediate Impacts of the Reorganization Affecting the following:

🛑• Special Education Oversight: Moving OSERS to HHS risks treating disabilities as strictly medical rather than educational, which could significantly weaken the enforcement of the landmark Individuals with Disabilities Education Act (IDEA).

🛑Civil Rights Protection: Transferring OCR to the DOJ may lead to processing delays and a more punitive or fragmented approach to addressing school discrimination

⚠️Navigating this federal transition requires careful and local attention to ensure compliance with Individualized Education Plans (IEPs):

THE ARC OF ALABAMA SUPPORTS:

âś…Strengthening IEP Enforcement: Advocates like The Arc of Alabama, its partners and its statewide chapters are actively pressing for tighter state-level oversight to hold school districts accountable for delivering federally mandated services.

âś…Protecting the Right to FAPE: The primary goal remains defending a child's right to a Free Appropriate Public Education (FAPE) amid the shifting federal guardrails.

A sneak peak into one of the leading articles in our Monthly Newsletter :  Have you heard about “Narrative Medicine”?  I...
06/16/2026

A sneak peak into one of the leading articles in our Monthly Newsletter : Have you heard about “Narrative Medicine”?
It’s a fascinating new approach to healthcare for people with disabilities. What’s now known as “Narrative Medicine” is seen as a possible shift for better outcomes….

Narrative medicine in disability care focuses on improving health outcomes by centering the patient's lived experience, actively combating ableism, and strengthening the clinician-patient relationship. It bridges gaps in communication and empathy, allowing providers to understand a person's life beyond their impairment. This approach empowers patients and enhances care quality for people with disabilities.

Key Aspects of Narrative Medicine for People with Disabilities

Combating Ableism and Bias: Narrative medicine directly addresses negative biases and ableism in health care by fostering empathy and self-reflection in practitioners. It helps break down the "hidden curriculum" that can lead to inferior care, as noted in studies on Disability and Narrative Medicine.
Empowering Patients and Enhancing Communication: This approach encourages patients to share their stories, helping them feel heard and understood, which is particularly beneficial for neurodivergent individuals and those with intellectual disabilities. It shifts the focus from merely treating symptoms to understanding the whole person.
Redefining the Clinical Encounter: By engaging with patient narratives, clinicians move away from detached, clinical views ("detached concern") toward empathetic, patient-centered care.
Specific Programs and Techniques:
CREATE (Cultivating Reflection, Empathy, and Awareness in Telling Experiences): An arts-based workshop that uses narrative medicine to improve communication for adults with IDDs, as detailed in research from ResearchGate.
Rehabilitation Care: Using storytelling and narrative techniques to assist in the rehabilitation of patients with brain injuries.
Family Workshops: Organizations like Family Voices of Alabama, as noted in this Instagram post, offer workshops that help families of children with disabilities navigate care through storytelling. [
Impact on Care

Improved Quality of Life: By validating their experiences, individuals with disabilities often feel empowered and less isolated.
Better Clinical Decisions: A deeper understanding of a patient's story helps doctors make more comprehensive clinical decisions.
Reduced Burnout: As reported by Neurology Today, this method helps providers reconnect with the human aspect of medicine, combatting burnout.
For more, explore the Disability and Narrative Medicine: Challenges and Opportunities review

Additional Resources

Core Methods and Practices

Originating in 2001 at the Columbia University Division of Narrative Medicine, the field relies on several specific techniques to strengthen listening and observation skills. These are Close Reading, Reflective Writing, and Parallel Charts.

Education and Training

Institutions such as the USC Narrative Medicine Program and Columbia University offer specialized Master of Science degrees and certificate programs.

This and so much more fills our monthly newsletter constructed by Bruce Koppenhoefer, a dedicated board member and strong parent advocate. If you’re interested in receiving our monthly newsletter via email please click on this link and ask to subscribe in the comment section.

The Arc of Alabama 557 S Lawrence St. Montgomery, AL 36104

06/15/2026

Check out this article by Tim Cooper in this months Uniquely You magazine!

N2 Flipbooks

06/09/2026

A 4-year-old autistic boy named Axel, who was nonverbal, was found dead after going missing. His dad called him his best friend and said Axel was the most upbeat, happy, excited kid who lit up every room he entered…

This heartbreaking story comes out of Kansas.

First, my heart is with Axel’s parents. No parent should ever have to experience this kind of loss. Before anyone rushes to judgment, please remember there is a grieving family behind this story who loved their child deeply.
And while this is not about blame, it is about action.
Wandering, also called elopement, can be a very real safety concern for some autistic children and adults. Families should not have to figure this out alone.
So here is something tangible: today, check your safety plan. Do you have a recent photo? Do trusted neighbors know what to do? Have you identified nearby risks like water, woods, roads, or parking lots? Have you considered door alarms, ID bracelets, GPS supports when appropriate, and a written emergency plan shared with school staff, caregivers, and local first responders?
And if you are a neighbor, educator, first responder, or community member, please be part of the village. Learn the signs. Respond quickly. Lead with compassion.
Rest in peace, Axel. You were clearly so deeply loved. In his memory, let’s choose compassion over judgment and make sure more families have the safety supports they need before an emergency happens.

Did you know?
06/09/2026

Did you know?

The Blue Envelope is an awareness program, using standardized logos which alert a first responder there is an individual in the car with a developmental disability and they may have trouble communicating.

06/04/2026

ABLE Act UPDATES:

06/02/2026

📢 Join Us for a Free Benefits Counseling Workshop! 📢

Do you have questions about Social Security benefits and how employment may impact them? We invite individuals with developmental disabilities, family members, caregivers, and community members to attend our upcoming Benefits Counseling Workshop presented by the Alabama Department of Mental Health.

âś… Learn about SSI and SSDI
âś… Understand how work and income can affect benefits
âś… Get answers to common employment and benefits questions
âś… Discover resources for ongoing support and informed financial decisions

đź“… Thursday, June 11, 2026
🕠 5:30 PM – 7:00 PM
📍 Shelby Baptist Health Physician's Center
1010 First Avenue North, Suite 140
Alabaster, AL 35007

🍽️ Dinner Provided
🎟️ Free Workshop – Limited Seating Available
(Limit 3 people per household)

To register, call 205-664-9313, visit thearcofshelby.org, or scan the QR code on the flyer.

Don't miss this opportunity to gain valuable information that can help you make informed decisions about benefits and employment. Share this post with someone who may benefit from attending!

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06/02/2026

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The Americans with Disabilities Act passed in 1990. The man who engineered it wasn't a lawyer. He was a Brooklyn librarian.

Major Owens spent his early career in the stacks of the Brooklyn Public Library. He understood classification. He worked daily with the Dewey Decimal System, a structure designed to ensure every piece of information had a specific, reachable place. He saw how systems categorized knowledge. By extension, he saw how architecture categorized people.

In his 1960s neighborhood, the physical environment was a filter. A library with thirty stone steps at the entrance decided who got to read. A voting booth located on a second floor with no elevator decided who got to be a citizen. A curbside without a concrete cut decided who was allowed to cross the street.

Owens watched patrons in wheelchairs sit on the sidewalk in the Brooklyn winters. They waited for strangers to carry their books down to the street. He watched blind residents navigate intersections using only the sound of idling engines to guess the traffic light. He didn't write speeches about it. He studied the floor plans. He looked at the heavy oak doors that required two hands and a strong shoulder to pull open. He measured the space between the shelves.

Owens was elected to Congress in 1982. He arrived in Washington D.C. as a quiet man in a room full of broadcasting egos. The United States Capitol building itself was a monument to physical exclusion. It was a fortress of marble staircases, steep terraces, and heavy brass doors. It was built exclusively for the able-bodied.

He took over the Select Education Subcommittee. Most politicians used subcommittees to generate press quotes for their home districts. Owens used his to gather data.

He looked at the 43 million Americans living with physical and mental impairments. They had no federal civil rights protections. An employer could legally fire a man because his wheelchair made the office look crowded. A restaurant owner could refuse service to a blind woman because a guide dog disturbed the other patrons. A public university could reject a qualified applicant who was deaf because they did not want to hire a sign language interpreter.

It was perfectly legal. Owens saw it as a massive structural sorting error.

At the time, federal civil rights legislation had historically been built around race, religion, and national origin. The Civil Rights Act of 1964 contained no provisions for physical accessibility. The architectural standard for public buildings in the United States assumed a fully ambulatory public. The committee reviewing Owens’s proposals operated under a framework where physical accommodations were viewed as charitable favors, not civil rights.

The system wasn't hostile. It was indifferent.

The business lobby explained their opposition calmly. They cited cost projections in neat, typed reports. Retrofitting doors, pouring concrete ramps, and widening bathroom stalls would bankrupt small retail stores across the Midwest. The National Federation of Independent Business argued the government had no right to dictate the physical layout of private property.

Transit authorities testified next. They stated that adding mechanical lifts to public buses was mathematically impossible on municipal budgets. The Greyhound bus company sent representatives to explain the logistical nightmare of accommodating wheelchairs on interstate routes.

The logic was neat and actuarial. The cost of altering the physical world was deemed higher than the value of the people excluded from it.

The testimonies piled up on Owens's desk. Sworn statements from veterans of the Vietnam War who had to crawl up courthouse steps to attend their own hearings. Mothers who carried teenage sons up three flights of school stairs every morning because the public school had no elevator. Men who had not left their second-floor apartments in four years. The paperwork smelled of old ink and quiet exhaustion.

Owens did not shout. He organized a disability brain trust. He brought advocates to the Capitol and set them up at the witness table. He worked with Justin Dart, an activist who had traveled to all fifty states collecting firsthand accounts of discrimination. Dart brought boxes of diaries and letters to the hearing room.

Then, Owens stepped back.

He let the activists take the cameras. He stayed behind the dais, tracking the votes. He knew that in Washington, the person on the television screen is rarely the person writing the statute.

He routinely mispronounced the names of his own colleagues during committee markups. He was more focused on the text of the amendments than the social graces of the building.

The legislative grind took years. In 1988, a preliminary version of the bill stalled and died in committee. In 1989, Owens and his staff started over.

Owens understood the math. A standard wheelchair requires 32 inches of lateral clearance. A concrete ramp requires one foot of length for every inch of rise. He spent months negotiating the definitions of "undue hardship" and "readily achievable" with the Chamber of Commerce. The business lobby wanted loopholes. Owens closed them with precise regulatory language. He traded political capital for inches of hallway clearance. He bartered for elevator mandates in commercial buildings.

When the broader legislative coalition fractured over whether to include individuals with HIV/AIDS under the umbrella of disability protections, Owens held the line. The pressure to drop the provision was immense. It was the height of the epidemic, and fear was the dominant political currency. Owens refused to strip the protection. A civil right was either universal or it was a suggestion.

The physical environment was a series of locks. He was cutting the keys. He knew that a fiery speech on the House floor wouldn't widen a bathroom stall. A specific regulatory mandate embedded in a 900-page bill would. He kept his name off the press releases. He focused entirely on the whip count.

The system relied on the fact that the excluded couldn't get into the room to complain.

The Americans with Disabilities Act passed the House and Senate in the summer of 1990. It was the largest expansion of civil rights law in a quarter-century.

The signing ceremony took place on July 26 on the South Lawn of the White House. Over three thousand people attended. The photographs from that day show President George H.W. Bush seated at a desk, flanked by prominent activists.

Major Owens is barely visible in the frames. He is standing far in the back, obscured by the crowd. He is watching the math become the law.

Millions of curb cuts were poured in the following decade. Braille appeared on ATM keypads. The width of an American doorway standardized at 32 inches. Public transit systems redesigned their fleets. The physical landscape of the United States was entirely retrofitted.

Owens retired in 2006. He died seven years later.

Today, in Brooklyn, a patron in a wheelchair can roll through the heavy glass doors of a public library without asking for help. The automatic doors slide open on a motion sensor. The aisles between the shelves are precisely wide enough to navigate.

There is no plaque above the entrance explaining who measured the clearance.

Major Owens: the librarian who redesigned America.

Source: Congressional Records of Representative Major R. Owens.
Verified via: The Library of Congress, The Smithsonian National Museum of American History.
(Some details summarized for brevity.)

Today we honor and remember those who served and gave the ultimate sacrifice for our country.  The more we know….https:/...
05/25/2026

Today we honor and remember those who served and gave the ultimate sacrifice for our country. The more we know….

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25 MAY 2026
MEMORIAL DAY – Did You Know?

• Memorial Day was originally called “Decoration Day” after the American Civil War and began as a tradition of decorating Soldiers’ graves with flowers, flags, and wreaths.

• The first ceremony took place at Arlington National Cemetery on 30 May 1868 where both Union and Confederate Soldiers are buried.

• The National Cemetery Administration, part of the Department of Veterans Affairs, credits Mary Ann Williams of the Ladies Memorial Association of Columbus, Georgia with being the first to express the idea of an annual date to decorate the graves of Civil War veterans with flowers.

• After World War I, the holiday expanded to honor all American military personnel who died in service to our Nation.

• In 1971, Memorial Day became an official federal holiday observed on the last Monday in May.

• Protocol for flying the American flag on Memorial Day includes raising it quickly to the top of the pole at sunrise, immediately lowering it to half-staff until 12:00 noon, and displaying it at full staff from noon until sunset.

• A National Moment of Remembrance is encouraged each Memorial Day at 3:00 PM local time across the United States.

• Memorial Day honors those who died while serving in our Armed Forces, while Veterans Day honors all who served in the military.

Join us for a special Memorial Day Ceremony at the National Infantry Museum on Monday, May 25 at 11:00 AM in Cavezza Hall. This meaningful indoor ceremony will honor the brave men and women who made the ultimate sacrifice in service to our nation through remembrance, reflection, and gratitude.

The ceremony will feature a keynote address from COL (R) Rob Choppa, along with a community gathering dedicated to preserving the legacy of America’s fallen heroes.

Did you know we find we all have more in common when we create accessibility!?  Celebrate by learning more about ways yo...
05/21/2026

Did you know we find we all have more in common when we create accessibility!? Celebrate by learning more about ways you and your organization can become more accessible here….

Thursday, May 15, 2025, help us celebrate the 14th Global Accessibility Awareness Day (GAAD)! The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion, and the more than One Billion people with disabilities/impairments.

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