AVM Research Foundation

06/22/2026

💙 Happy Father’s Day! 💙

Today, the AVM Research Foundation proudly honors and celebrates all fathers—and those who have stepped into a fatherly role in someone's life. Whether you are a father, grandfather, stepfather, mentor, coach, uncle, family friend, or someone who has provided guidance, support, and unconditional care, we celebrate the positive impact you make every day.

Your strength, sacrifice, wisdom, and dedication help shape lives and build stronger families and communities.

We also take a special moment to remember and honor the fathers and father figures who are no longer with us. Though they may be not be physically here with us…their love, lessons, and legacy continue to live on in the hearts of those who cherish them. Today, we celebrate their memory and the lasting influence they have left behind.

To every father and father figure—both here with us and watching over us from above—thank you for the difference you make in our lives.

Wishing you all a Happy Father’s Day filled with love, gratitude, and cherished memories.

— AVM Research Foundation

06/18/2026

💚 TUBE FEEDING FAMILIES – A RESOURCE YOU MAY NOT KNOW ABOUT 💚

If you or a loved one depends on a feeding tube, the Oley Foundation is an incredible nonprofit organization that helps connect patients and caregivers with donated tube feeding formula, supplies, and equipment.

Many families end up with unopened formula, feeding bags, syringes, pumps, and other supplies they no longer need. Through Oley's equipment and supply exchange programs, these items can often be donated to someone who needs them rather than being thrown away.

Whether you're struggling to obtain enough formula, facing insurance delays, or simply looking for support from others who understand the tube-feeding journey, the Oley Foundation is a wonderful resource.

Some ways they can help:
✅ Tube feeding formula exchange
✅ Feeding supplies and equipment donations
✅ Caregiver and patient support
✅ Educational resources
✅ Community connections with other tube-feeding families

Please share this information with anyone who may benefit. No family should have to choose between paying bills and obtaining the nutrition and supplies their loved one needs.

The Oley Foundation: dedicated to enriching the lives of those requiring home intravenous and tube-fed nutrition.

❤️ From one caregiver to another, sometimes the best resources come from people who have walked the same path.

To enrich the lives of those living with home IV nutrition or tube feeding through advocacy, education, community and innovation.

05/10/2026

Happy Mother’s Day to the moms who carry a weight most people will never fully understand — the mothers of children with an AVM.

You have faced fear, uncertainty, hospital rooms, sleepless nights, hard decisions, maybe even the unimaginable loss of a child, and prayers whispered through tears. You have learned how strong love can be when life feels fragile.

Your courage shows up in the quiet moments: advocating for your child, holding their hand through procedures, celebrating every victory, grieving deep losses, and finding hope even on the hardest days.

Today, we celebrate you — not just for what you endure, but for the extraordinary love, strength, and grace you give every single day.

May you feel seen, supported, and deeply appreciated this Mother’s Day. Your child is forever blessed to have you as their mother. 💜

04/30/2026

Please read this family’s story about their son’s AVM journey and keep them in your prayers. We are working incredibly hard to create a safer treatment and have earlier detection!

Son...
Today marks a remarkable milestone - the 11th anniversary of your craniotomy brain surgery on 4/28/15, that lasted 14.5-hour to successfully remove your grade 4 right frontal lobe AVM! Your resilience and unwavering dedication to making every day a little better is genuinely inspiring. Amidst the uncertainty of your seizures, you and Emily face each one you have together and I'm so thankful you have her by your side as your beautiful wife. To the exceptional team of surgeons, compassionate medical staff, kind strangers, loved ones, and friends, along with God and your heavenly angels that stood by and continue to be by your side I'm forever in debt to them for everything they did. Your future shines bright with promise and hope, and I'm so grateful you're here to experience it all. I love you more than words can express, son!! I'm forever grateful to be your mom!

04/23/2026

What is an AVM?

An arteriovenous malformation (AVM) is a tangle of abnormal blood vessels connecting arteries and veins in the brain.

Because of this abnormal connection:
• Blood flow can be disrupted
• Pressure can build
• And in some cases, it can lead to bleeding in the brain (hemorrhagic stroke)

Many people don’t know they have an AVM—until it becomes an emergency.

That’s exactly what happened to our son, Ryan.

In 2015, Ryan suffered a sudden stroke caused by a brain AVM. In an instant, everything changed for our family. What started as a normal day became a fight for his life—and a journey we never expected.

Ryan’s story is the reason the AVM Research Foundation exists.
But we also know we are not alone. There are more families—right now—walking this same unexpected, life-altering path. We wake up every day for them, too.

We are committed to raising awareness so fewer families are caught off guard, and to funding research so one day AVMs can be detected earlier, treated more safely, and ultimately cured.

Awareness can save lives. Ryan’s story—and so many others—are proof.
💙 Help us spread the word.