06/05/2022
I ve looked for help everywhere but I found none. Wen I speak of help here, I'm not talking financial assistance. I ve gotten so much of that from friends and well wishers on and offline. The ones I know and have met and the ones I ve never met. It became very clear to me that no one will help me. I'm on my own. For some years now, I haven't been living 😭 💔, I ve only been existing. I can't say I got myself in a mess cos all my life, I ve known pain much more than most of u know ur surname. I ve known pain before I could even pronounce a word. I ve fought for everything I own and everything I became in life. With the support of my wonderful family members and very good friends.
Painkillers have always been my go to saviour. Yes my mum and siblings have always been doing the prayer parts for me, and sometimes If I have the strength, I utter some prayers to God begging him not to let me die n suffer so much anytime the pains come crashing on me. I was a very active boy growing up. Loved by so many (young & old alike) reason why a bulk of my friends growing up were people older than me. This I owe mostly to the supposed brilliance, intelligent and smart boy everyone says I was. I tried to live like everyone else. I was a strong football aficionado. This brought me lots of fame in my hometown growing up.
I was the BIGGEST Arsenal fan in my area. The go to person for latest football news and gists. I also was the go to person for latest mobile fone browsing cheats. Symbian and java fones and also less technical mobile fone issues. I solve all that problems and I became a bit popular coupled with the fact that I had a phone booth which my late dad helped me set up immediately I finished my SSCE waiting to get into the university before my dad sadly passed away. His death broke me cos those who know my story knows how he was my most efficient painkiller wile growing up. So I tried to live on, like everyone trying to live on I tried to love.
Love! Yeah I tried to love. Maybe someday I will meet someone who like dey say in the movies, live happily ever after with. This was my greatest mistake. I gave my all trying to find this love. I left no stone unturned trying to be the best wen it comes to showing n proving love, forgetting that it will be hard for most people to accept a sick person as a life partner. Maybe I was trying to make up for the good health I don't have by trying to be nicer to dem, but every single one I loved broke me. By this time I was becoming a man already. Not that kid who had notin to worry about.
An African man is expected to grow up to a certain level, get a source of income and then settle down with the love of his life where they keep producing kids that keep on with the dynasty. So I wanted to achieve everything every normal person is supposed to achieve forgetting that there's a little abnormality about me. My cells aren't as viable as those of the other guys. I gave my all to the wrong people...I regret that. So in a bid to shut my head sometimes n to also prove to these people that I'm strong n don't fall sick all the time like dey think, I started running to my painkillers. These painkillers no matter how much pain I'm in, once applied, I forget the whole world and sleep off
I started taking these painkillers in advance. So as not to get pains and fall sick but mostly so I can forget the hurt I feel sometimes. Insomnia was my biggest problem. I couldn't sleep at nyt after the days stress at work and everything. The night was my biggest enemy. While others are sleeping, I'm there worrying and thinking abt my life and wen tins will get better. Tins here I mean wen sickle cell will leave me alone. I tried to stay strong in the day so my kid sister won't notice anything, then at nyt I stay awake all tru. Then I started taking these painkillers to sleep at nyt. Gradually it became a habit. All these started towards the end of 2019.
But here's the tin, since 2014 tru 2018, I have been having issues with avascular necrosis. In 2014, my left shoulder developed avascular necrosis. Those close to me knows this. Then in 2017, my right shoulder got affected with the same avascular necrosis. It was the help of a very painful physiotherapy sessions that I was able to get off these pains. But I still have pains on dem occasionally up till this day. In 2018, my left knee (the now operated one) started swelling and the doctors diagnosed another avascular necrosis on it. So basically, since 2014, I have been having chronic pains (everyday pain) on my innocent body everyday.
All these made my painkillers my best friend. The only tin that helped me exist with a smile. The frequent taking of these painkillers made them less effective, so I started opting for more effective ones. Presently, oral painkillers have notin on me. It has to be injections. And not just injection but the very strong one. Imagine u hurting on ur shoulders and knee everyday. They call us Warriors, but trust me, the strongest Warriors we knew didn't fight their bodies, they fought other people. But we fight everyday with our bodies. Sincerely I want to know how I caused this for myself like some people tell me. Was I born equally like u n I ran to drugs without pains?
Gone are the days I used to feel pains and I pray to God for healing. Nowadays I cry n ask him to end it cos my body is tired. If I'm to be blamed for this, then so be it. But all I wanted to achieve was to live a life like u are living it. Some of u here have never been to the pharmacy not to talk of the hospital. But I'm the most popular guy in the hospital. From the gate man to the ceo, Tony is known. This is not my childhood dreams. I'm deeply hurt. I don't want to remain this way. I wanna be seen and heard. I wanna impact in the lives of others. I promised my dad n mum lots of tins as a naive kid, I haven't been able to achieve any. Instead I spent lots of money on hospital n drugs.
Yes I know lots of people are dead and I should be grateful for life but not like dis. I don't wanna live this way. I wanna be free🙌🙌🙌
June 19th is World Sickle Cell Day. Please help us to preach the gospel. Choose Genotype Compatibility over love everyday. Sickle cell can only be gotten from parents...no other way. Please don't give this life to ur kids. They deserve equal rights and opportunities like their peers and mates. Do not use ur selfish interest to limit them please 🙏🙏🙏🙏.
My parents were ignorant. But u cannot blame it on ignorance in this 21st century. Birthing a child with Sickle Cell now is pure witchcraft.
Everyone deserves a better life. A life free of pains. A life where dey won't have to spend all their life savings in the hospital or buying drugs.
Go for a genotype test. It will cost u notin less than a thousand or a thousands five hundred.
Anyone birthing a sickle cell child this century should be hanged.
It is that serious.
I will live again.
I'm 💯 certain of that. I'm a determined soul. I'm stronger than Sickle Cell 💪💪💪
Sickle Cell is way more than pains and hospital.
It comes with all round emotional, mental, psychological, societal, financial and physical struggle.
It's an all round life torture. But I will LIVE AGAIN🙏🏻
No one is coming to save me so I will save myself.
But if I fall by the way, I ve tried.
P.S: My knee is healing according to the doctor but I still feel some discomforting pains in the area. My shoulders still hurt. The more reason it is so hard for me to go off these painkillers. But i have decided to start by only taking dem for my pains. Just pray for me. I ve gotten over every hurt I feel. And I'm wiser now.
So help me God 🙏
Come June 19th, I will be giving 5 persons in warri the opportunity to know their genotype. Book ur slot now if u are in warri. DM me if u wish to know ur Genotype so we can arrange it. That is how I wish to celebrate world sickle cell day this year.
If u wish to support me, kindly do so by crediting my fcmb Account with ur widow's mite.
Account name: Anthony Orevaoghene Asiemo. Account number: 2266083013 Bank: FCMB
Thank you for taking time to read this....God bless u 🙏🙏🙏
