Brain Injury Alliance of Oregon

11/13/2023

From a vet with PTSD:

I'm sure I still have PTSD. Not from battle but from Hurricane Andrew. Lost everything except my car and my dogs. For years started crying at the drop of a hat over nothing. Still scared sh*tless of violent storms.

I don’t normally do this, but I am going to this time.

I am a Navy veteran and am always here to support anyone who needs it!

As Veterans Day approaches, I feel compelled to remind everyone that just because a Sailor/Marine/Soldier/Airman returns from the war zone doesn't mean that the battles are over.
Who's got my six? I'm going to make a bet, without being pessimistic, that out of my hundreds of friends, that less than 5 will take the time to put this on their wall. You just have to copy it from my wall and paste it to yours. Then type "done" on my wall. I've done this for several friends & family members to spread awareness of Post Traumatic Stress Disorder.
We lose approximately 22 Veterans a day to PTSD. More needs to be done to help Veterans in need. 🇺🇸
Veterans Crisis Line is 1-800-273-8255 Press 1
Brothers and Sisters, I want for all of you to know if you need to vent or just BS about the old days, message me here, I am glad to listen.

10/10/2022

Register for the November 12-13 Pacific NW Brain Injury Conference

10/05/2022

Our group spoke on NPR about how we need Ron Wyden to continue his aggressive work to stop PBMs and their shady tactics so savings go back to the pockets of Oregon Brain Injury Patients.
Thank you to Jefferson Exchange for hosting us along with OSPA.
Listen to our interview below.

The Oregon State Pharmacy Association, a trade group, has been analyzing the drug price provisions of the federal Inflation Reduction Act.

09/13/2022

The Prescription Drug User Fee Act (PDUFA) strengthens the FDA’s ability to review and approve treatments, advances patient perspectives, and enhances medical expertise within the drug review process. This September, the current iteration of PDUFA expires, and Congress must renew this crucial legislation—or risk losing the benefits it provides.

07/26/2022

Attention Jeff Merkley and Ron Wyden. Please immediately oppose the Reconciliation Bill that does NOT address affordability for our patients. Seniors in particular will see NO relief in their prescription drug costs. If Congress is serious about lowering the cost of prescription drugs, it must address reforms, including passthrough PBM rebates, discounts to seniors at the pharmacy, and copay caps on all chronic disease medications.
REFORM IS CRITICAL TO ALL OREGONIANS!

07/21/2022

Dear Honorable Oregon Senators:
Jeff Merkley Ron Wyden
We would like to share several concerns with you regarding the budget reconciliation bill covering prescription drug prices.

We are very concerned that this bill would have negative consequences for patients in Oregon and across the country, without making any real progress on lowering prescription drug costs.

To begin with, the latest bill does not include several provisions that would have improved prices for patients. The $35 copay cap on insulin is not included, even though this would have immediately saved not only money but lives. The rebate rule, which would have required pharmacy benefit managers to share discounts and rebates they negotiate with prescription drug manufacturers with patients is not in this bill.

Finally, the bill also rolls back several improvements in Medicare, such as delaying parts of the Part D redesign until 2025, which also delays when patients would see the benefit from the $2,000 out-of-pocket cap. For legislation that is claiming to bring prices down for patients, this one is missing much of the significant savings that earlier bills included.

Perhaps most concerning is the fact that the reconciliation bill includes government negotiation of drug prices in Medicare. This change will limit treatment options for patients in the program today while simultaneously stifling the innovation pipeline that leads to better treatment options for tomorrow.

When the government is setting artificial prices for drugs it fundamentally alters the risk assessment of investing in drug research and development. If you will not be able to recoup the investment made in developing a drug because government bureaucrats will require it to be sold at a specific cost, it’s no longer worth making investments in complex and risky drug development. This will lead to fewer new drugs; in fact, the Congressional Budget Office has estimated about 15 fewer new drugs over the next 10 years if the government price setting goes into effect.

The budget reconciliation bill is bad for patients, it’s bad for their pocketbooks but it’s also bad for their health. It will restrict access to some of the most cutting-edge treatments available today because they will be too expensive, and it will rob us of future treatments. This reduced access will hurt patients with some of the most complex and hard-to-treat conditions such as Alzheimer’s disease and cancer.

Patients deserve better from Congress, and we hope you will take our concerns into consideration.

Respectfully,

Oregon Bioscience Association
Brain Injury Alliance of Oregon
Oregon Rheumatology Alliance
The Exon 20 Group
ICAN, International Cancer Advocacy Network.
PDL1 Amplifieds

Sent by:
Sherry Stock, ABD/PhD MS VFWA CBIST, Executive Director – Neurogerontologist, Brain Injury Alliance of Oregon

07/21/2022

Attention Senators Ron Wyden and Jeff Merkley

The budget reconciliation bill is bad for patients, it’s bad for their pocketbooks but it’s also bad for their health. It will restrict access to some of the most cutting-edge treatments available today because they will be too expensive, and it will rob us of future treatments.

This reduced access will hurt patients with some of the most complex and hard-to-treat conditions such as brain injuries, Alzheimer’s disease, and cancers.

Patients deserve better from Congress, and we hope you will take our concerns into consideration.

07/14/2022

The new Reconciliation Bill language leaves patients with fewer medications and a lack of choice in treatment options.
Congress must reject harmful price controls!
The latest proposed drug price controls would result in more harm than good for patients.

03/23/2022

REGISTER NOW!
MARCH 26 & 27 2022 BRAIN INJURY WEBINAR CONFERENCE
Modern medicine is advancing at break-neck speed.
Stay on top of new practices that can aid in patient care and professional growth.

REGISTRATION LINK:
https://www.biaoregon.org/brain-injury-conference/conference-registration/

03/23/2022

Come to the Brain Injury Conference March 12-14, 2020. Stay on top of new patient care practices and professional growth.

03/23/2022

Ron Wyden, thank you for drafting legislation that would require to reveal how much of a discount they get from drug manufacturers and the amount passed on to patients. Washington needs to learn from Oregon’s representatives like you by taking meaningful action to rein in the PBMs that drive up so many out-of-pocket costs to patients. In 2021, a Senate Finance Committee report found that the list price of one insulin product rose by 141% despite a 53% decline in net price. Out of pocket costs are going up for patients while PBMs expand their profits from manufacturer rebates. Our lawmakers in Washington, D.C., need to address this problem straightaway.

Congress must pass legislation to increase pharmaceutical pricing transparency and rein-in pharmacy benefit managers.

02/17/2022

19th Pacific Northwest Brain Injury Conference
March 26-27 9am to 6 pm

Register at

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