Now caring for kids with cystic fibrosis foundation

Now caring for kids with cystic fibrosis foundation This foundation helps kids and young adults with cystic fibrosis take care of daily needs .

Caring Now For Kids with Cystic Fibrosis was first founded with a sole focus on providing double lung transplants in people with Cystic Fibrosis (CF). Today, under new management, CNFK has changed its vision to encompass a wide variety of needs in children and adults with CF that range from help with food and utilities to medications and equipment to help with transportation and lodging needs for

doctor/hospital appointments to transplants. Check out the new links to the left and feel free to add to the pages. Remember, we are here to help with any of your Cystic Fibrosis needs.

04/08/2026

Good morning everyone I would just like to let you all know that we are still very much working on getting the cystic fibrosis Benbo club and support group T-shirts completed so we still need your names folks. We are at name number six right now so we have out of the 250 names available we have already used six names meaning six spots are already gone. I hope that you all come and enjoy the opportunity to spread awareness for cystic fibrosis. It is the leading number one killer in children and young adults around the world, and the awareness for cystic fibrosis is very low. If we bring more awareness cystic fibrosis there will be more opportunities for us as patient, including, but not limited to help when we need to get to the hospital help when we need extra food help when we need other emergency items or nonemergency items for that reason I believe that if we keep on working together, we can even get a program like other foundations have like a food bank where they give you a food card to help you out make sure that you have food because it's one of the most important things for cystic fibrosis pat we also know that patients get to die diagnosed and told I'm sorry you can't have Social Security because of just your cystic fibrosis we wanna make that change as well. We wanna work with everyone so again folks help us make cystic fibrosis unknown medical condition not one that's placed on the back burner and let's get these T-shirts out by July 25 of my birthday this year 51 years and fighting cystic fibrosis. I can do it. We can all do it so let's keep up the good work folks for those that have been working with David law I appreciate it and you have done it so gratefully we also wanna make sure that everyone knows that I do help out with IEP programs for schools and 5041C as well if you need help with those programs and no one is there to understand cystic fibrosis I am that person I have helped to write many of them in many of them have been approved through the public school system in the United States so I ask you if you need someone I am here. The cystic fibrosis club and support group hotline is open 24 hours a day seven days a week. My number is 651-206-5226. take care to each of you ... Please everyone take a moment and enter your name down on the bottom area and I will also do my best to keep count right away your brother always cfkid wagner

Call now to connect with business.

04/09/2024

Att everyone please note that my address is now the following
[email protected]

08/24/2020

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Good morning everyone I wanted to give you a update on David s law petition that is sent directly to law makers every ti...
09/21/2018

Good morning everyone I wanted to give you a update on David s law petition that is sent directly to law makers every time a new person signs in support of David’s law currently we are at 18,259 congratulations 🎈 everyone and thanks for your support .

We are seeking a cartoonist artist to help us with a new design for are new t shirts hopefully coming out to have in time for the holidays 2018 if y would like to help us please call me at 612-282-1211 24 hr cf hotline are hope is to draw attention to the shirts and then maybe law makers will start calling us again and maybe even a news media reporter even if it’s only a news paper or a magazine that would be great as well all ideas are welcomed please also note we did get a phone call from another school district superintendent and hopefully when they vote soon that will mean they will use David’s law right after the holidays are over and the 2nd semester starts and that will make many schools very happy including students and families fighting CF and have a less chance of missing more lunch time plus missing class time and this would also mean that a parent would no longer be required to go on all field trip s because they have to give enzymes so thanks again for your support I think all of you as my brothers and my sisters and soon CF will stand for cure found and not cystic fibrosis any longer congratulations to the schools that are currently using David’s law with no issues this year so far plus last year as well great work everyone.

David W
612-282-1211
[email protected]
https://www.petition2congress.com/ctas/davids-law #

12/21/2017

Good afternoon everyone o hope that you are having the best holiday season possible. The cystic fibrosis support group is happy to let everyone know calls from lawmakers are coming in more often now this week we received 3 calls from lawmakers in dc they are very interested in the law more now and this I'm hoping this is great news. So I'm asking everyone to please take 5 mins of your day to call dc lawmakers on the 5 of January 2018 from your state if we call one lawmaker from the Senate and one from the house we then may get even more calls that come through to ask is more questions about Davids law when you call them we ask that you tell them how important the law is to your family as well as the student fighting cystic fibrosis make sure you please tell them the routine the cystic fibrosis student must go through every time they have something that requires an enzyme in order to have this item to eat or drink . if you are one of the families that I have talked to in the past regarding the going back and forth to the school many times per day plus and that only one parent can be at work during the school day the more information we give these lawmakers the better chances of a passage throughout America. Did you know that many states have passed Davids law already and have had no issues with the law in the schools that have passed the law this is great news we have gotten calls from schools telling us how much Davids law has improved the school day for the students and families fighting cystic fibrosis? We have agreed along with the passage of Davids law that we would be on phone standby in case a school needs help please note that if you would like information on Davids law, please contact are 24 hrs cystic fibrosis hotline this line is open to everyone. I would like to wish everyone a very merry Christmas and a very happy new year 2018. Hotline remains open during all holidays with no closure. My thoughts and prayers go out to each of you fighting cystic fibrosis each and every day and I pray that if you are in the hospital that you get to go home and be with your family very soon. You all are my brother or sister in my eyes so that we can win the war on cystic fibrosis as one and then CF will stand for cure found and not cystic fibrosis! Your brother always David Wagner🤗🤗

11/22/2017

Att cystic fibrosis pen pal Club and support group and other s I would like to wish everybody a safe and happy Thanksgiving and to let everyone know that the cystic fibrosis hotline will remain open 24 hrs a day during the holiday please drive safe and make sure everyone is buckled up while you are driving to your family homes for those that are in the hospital I pray that you all will feel better very soon and that your family stops and visit s you firing the holiday as well please also note that we have the zello app and that is like s two way radio that y can download and speak with me right away my user name is fight cf so if you want to try that out it's free to download on your phone at the app store again have a a wonderful Thanksgiving and holiday weekend stay safe everyone if y want to be added to the David s law t shirt back please let me know we need 500 names thanks again for everyone s support and everyone's kind brother hood it means the world to me take care all your brother always David

ladies and gentlemen brothers and sisters I am very happy to announce that the cystic fibrosis pen pal Club in support g...
11/08/2017

ladies and gentlemen brothers and sisters I am very happy to announce that the cystic fibrosis pen pal Club in support group has now found someone to be our artist for David's law T-shirts they are going to be great it's a digital drawing that is going to be on the front of the T-shirt we're working very fiercely to get them done and we do not have a date on when they will be done but they will be done maybe by the end of November possibly longer I want to let you all know that this is a very gifted artist so he is going to be taking his time and I thank you all for all that you guys have done for David's law in the meantime so don't forget we still are looking for volunteers to help us out with getting letters to lawmakers throughout the United States and again we will have T-shirts available as soon as the artist is completed please also know if you are interested in having your name put on the back of that t-shirt you need to contact me at fight fightCf@ yahoo.com with the title t-shirt info with your first and last name and we will place it on the back of the T-shirt when they are done and then they will be up for sale we do not know what the prices will be at this time we will keep everybody informed as updates come in if you have any further questions or you need to speak with me right away please call the cystic fibrosis 24-hour hotline at 612-282-1211 and again we thank you all for your support David's lawn now has a little over 19,000 supporters throughout America and growing each and every day thank you so much again and soon David law will become a federal law throughout the United States thank you

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