ALS Worldwide

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ALS Worldwide Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United States and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

💙 “But the true reality is, perhaps just because of who Ben was and who I am, we made it OK. We laughed, we had fun, we ...
09/30/2026

💙 “But the true reality is, perhaps just because of who Ben was and who I am, we made it OK. We laughed, we had fun, we figured it out. I tried my best, and so did Ben. We definitely had some troubling moments, and bathing and feeding your older brother was not ideal for either of us. But, as Ben always said, ‘it is what it is.’ I cherish those times, and I cherish that experience.”

— Ben’s sister, Rebeccah 💙

Behind every ALS journey are stories of love, family, caregiving, challenges, laughter, and moments that stay with us. 🫶

📖 Learn more about the ALS Worldwide story: https://alsworldwide.org/about-us/

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💙 Stay connected with the latest from ALS Worldwide! 📬Sign up for our e-newsletter to receive updates, stories, informat...
09/29/2026

💙 Stay connected with the latest from ALS Worldwide! 📬

Sign up for our e-newsletter to receive updates, stories, information, and helpful content for people living with ALS, their families, caregivers, and everyone who wants to stay connected to the ALS community. 💙🤝

📩 Subscribe today and have the latest information delivered right to your inbox!

👉 Sign up for the ALS Worldwide e-newsletter: https://mailchi.mp/alsworldwide/enewsletter

💙 Every ALS journey is different. Every story matters. 🫶Sharing your experience can help others feel less alone, create ...
09/28/2026

💙 Every ALS journey is different. Every story matters. 🫶

Sharing your experience can help others feel less alone, create understanding, and give a voice to the realities of living with ALS, caring for someone with ALS, or supporting a loved one through the journey. 💙

📖 If you’re willing to share your story, ALS Worldwide would love to hear from you.

👉 Learn more and share your story: https://alsworldwide.org/share-your-story/

💙 Your story may be the connection someone else needs today.

📖💙 Sometimes, the earliest signs of ALS can be subtle—and easy to explain away.In Shatterproof: A Mother’s Memoir of Lov...
09/26/2026

📖💙 Sometimes, the earliest signs of ALS can be subtle—and easy to explain away.

In Shatterproof: A Mother’s Memoir of Love and Loss, Barbara Byer reflects on the early changes she noticed in her son Ben:

💭 “Lifting his arms, holding a glass, buttoning his shirt challenged his hands. Perhaps he had suffered a mild stroke, I thought.”

Barbara’s memoir offers an intimate and deeply personal account of a mother’s experience as her son faced ALS. 💙

📚 Learn more about Shatterproof and get your copy here:
https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

💙 An ALS diagnosis can bring difficult questions, changing needs, and challenges that can feel overwhelming—for both the...
09/25/2026

💙 An ALS diagnosis can bring difficult questions, changing needs, and challenges that can feel overwhelming—for both the person living with ALS and those who love and care for them. 🤝

Sometimes, having someone knowledgeable and supportive to talk with can make a meaningful difference. ALS Worldwide offers free, individual counseling for people with ALS and their loved ones through online resources, telephone, and email. 💙

Whether you’ve recently received a diagnosis or have been coping with ALS for years, you don’t have to navigate every challenge alone. 🌟

Learn more and schedule a free online visit:
alsworldwide.org/counseling/

💙 Often, people living with debilitating diseases don’t receive enough touch. Family and friends may see them as fragile...
09/24/2026

💙 Often, people living with debilitating diseases don’t receive enough touch. Family and friends may see them as fragile and worry that they could cause discomfort or pain. 🤲

💆‍♀️ Trained massage therapists can provide caring, gentle touch that is adapted to each person’s needs and comfort level. Sometimes, a compassionate touch can offer comfort, connection, and a sense of being cared for. 💙✨

Pathways Through the ALS Storm offers 74 pages of reliable information on ALS treatments, from massage to mental health to medications. Order your copy in paperback or e-book on our home page: https://alsworldwide.org/

📘 Looking for practical information and resources to help navigate ALS? Explore the ALS Protocol eBook for insights, gui...
09/12/2026

📘 Looking for practical information and resources to help navigate ALS? Explore the ALS Protocol eBook for insights, guidance, and tools designed to support individuals and families on their journey. 💙

👉 Download this free guide: https://alsworldwide.org/resource/als-protocol-e-book/

This 2021 law provided $100 million in annual federal funds, and since  it was passed, about 750 people with ALS have re...
09/11/2026

This 2021 law provided $100 million in annual federal funds, and since it was passed, about 750 people with ALS have received promising experimental therapies through the National Institutes of Health ALS Expanded Access program. 👉 Please urge your Representative to support H.R. 8205 today and keep progress moving forward!
https://www.votervoice.net/MDA/Campaigns/136512/Respond

📢 Take action for the ALS community

The ACT for ALS Reauthorization Act of 2026 (H.R. 8205) is here, and we are closer than ever to continuing critical progress for people living with ALS and other rare neurodegenerative diseases.

Since 2021, this law has:
💙 Helped hundreds access investigational treatments
🔬 Advanced research and drug development
🤝 Built powerful public private partnerships
💵 Delivered millions in funding for innovation

But time is running out. These programs expire on September 30, 2026 without action.

We cannot lose this momentum.

👉 Urge your Representative to support H.R. 8205 today and keep progress moving forward.
https://www.votervoice.net/MDA/Campaigns/136512/Respond

💙 What does your support make possible?Every year, your generosity helps ALS Worldwide connect with people affected by A...
09/11/2026

💙 What does your support make possible?

Every year, your generosity helps ALS Worldwide connect with people affected by ALS and provide the information, guidance, and support they need. 🌎🤝

Our 2026 Impact Report offers a snapshot of the difference we were able to make together this past year — and the people behind those numbers. 📊💙

✨ See the impact. See where your support goes. See what we accomplished together.

📥 Download the full ALS Worldwide Impact Report:
👉 https://alsworldwide.org/about-us/

Thank you for being part of our ALS Worldwide family. Together, we bring strength. From that strength comes hope. 💙

💙 You don’t have to face ALS alone.An ALS diagnosis can bring an overwhelming mix of emotions, questions, and uncertaint...
08/13/2026

💙 You don’t have to face ALS alone.

An ALS diagnosis can bring an overwhelming mix of emotions, questions, and uncertainty—not only for the person living with ALS, but for caregivers, family members, and friends, too. 🤝💙

At ALS Worldwide, counseling is available to help people affected by ALS navigate the emotional challenges that come with this journey. Sometimes, having someone who understands what you’re going through can make all the difference. 🫶

Whether you need someone to talk to, help processing difficult emotions, or simply a compassionate person who will listen, support is available. 💙

🌱 Reach out. Talk to someone. You don't have to carry it all alone.

Learn more about ALS Worldwide counseling services:
ALS Worldwide Counseling

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1800 Prospect Avenue, Suite 14A
Milwaukee, WI
53202

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