ALS Worldwide

ALS Worldwide Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United Stat

es and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

💙 Every ALS journey is unique, and every voice matters. Sharing your story can inspire others, create connection, and re...
05/30/2026

💙 Every ALS journey is unique, and every voice matters. Sharing your story can inspire others, create connection, and remind someone facing ALS that they are not alone. ✨🫶

ALS Worldwide invites individuals, families, caregivers, and advocates to share their experiences and help build a stronger, more compassionate community. 🌍📖

Share your story here: https://alsworldwide.org/share-your-story/

💙 Every person living with ALS deserves support, compassion, and hope. Your donation helps ALS Worldwide provide free gu...
05/28/2026

💙 Every person living with ALS deserves support, compassion, and hope. Your donation helps ALS Worldwide provide free guidance, resources, and personalized assistance to individuals and families facing ALS around the world. 🌍🤝

Together, we can remind the ALS community that they are never alone. ✨

Donate today: https://alsworldwide.org/donate/

💙 Living with ALS affects more than the body — it impacts emotional and mental well-being, too. Support, understanding, ...
05/26/2026

💙 Living with ALS affects more than the body — it impacts emotional and mental well-being, too. Support, understanding, and compassionate counseling can make a meaningful difference for individuals and families navigating the ALS journey. 🤝✨

ALS Worldwide offers counseling resources designed to provide comfort, connection, and encouragement during difficult times. 🌿

Learn more: https://alsworldwide.org/counseling/

💙🦸‍♂️ "I have had the privilege of being able to witness what a superhero is in real life: my father. As much as he felt...
05/24/2026

💙🦸‍♂️ "I have had the privilege of being able to witness what a superhero is in real life: my father. As much as he felt obligated to the patients he saw on a daily basis, he felt a higher calling to be a father. He is confined to a wheelchair and needs assistance to do everyday things that we take for granted, but he is still the same superhero to me.

"I would tell him that this is not fair because if there is anyone in this world in my eyes that did not deserve this disease it was him. His reaction, "This is life. It is not easy, but we are a strong family." He made and molded us into a strong family. He laid the foundation through his faith and selflessness. Whatever the future holds, he will always be my superhero. He has taught me more in my 33 years than I could ever imagine." ✨🙏

— F.T.

📖 Read more of F.T.'s story on our website: https://alsworldwide.org/family-story/finley-turner/

🧘‍♀️💙 Mindfulness meditation is good for everyone, but research shows it plays a special role for those living with ALS....
05/22/2026

🧘‍♀️💙 Mindfulness meditation is good for everyone, but research shows it plays a special role for those living with ALS.

A clinical trial was conducted on the efficacy of an ALS-specific meditation program in promoting quality of life. Adults who received a diagnosis of ALS within 18 months were randomly assigned either to a control group (usual care) or to an 8-week meditation training tailored for people with ALS, plus usual care.

The study found that mindfulness meditation is associated with improvements in quality-of-life measures, depression, and anxiety over time, compared with usual care in patients with ALS.

📘✨ Learn more about mindfulness meditation in ALS in Pathways Through the ALS Storm, available in spiral-bound or e-book: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

"Living with ALS can feel overwhelming, but having practical tools and guidance can make daily life a little easier. 💙 T...
05/18/2026

"Living with ALS can feel overwhelming, but having practical tools and guidance can make daily life a little easier. 💙 The ALS Protocol E-Book offers helpful information, strategies, and support for navigating the ALS journey with greater confidence and clarity. 📘✨

Download your free copy today: https://alsworldwide.org/resource/als-protocol-e-book/

"

💙 May is ALS Awareness Month 💙There are real glimmers of hope on the horizon. ✨The discovery of the SOD1 gene as a cause...
05/17/2026

💙 May is ALS Awareness Month 💙

There are real glimmers of hope on the horizon. ✨

The discovery of the SOD1 gene as a cause of familial ALS led to the development of Tofersen, a treatment that can slow progression and, in some cases, improve symptoms. For families affected by the SOD1 gene across generations, this brings hope for a future free from the fear of ALS. 🙏

Researchers are also learning how to better identify different forms of ALS, opening the door to more personalized treatments. Drugs once thought unsuccessful may still help specific groups of patients. We are witnessing the beginning of a whole new era in ALS research and treatment. 🌍🧬

“Families devastated by the SOD1 gene… can see a future for themselves and their children without this dread hanging over them.”
— Barbara Byer, Co-Founder and ALS Parent

Communicating With ALS 💬💙Bulbar symptoms can make communication more difficult, sometimes causing a person’s world to fe...
04/25/2026

Communicating With ALS 💬💙

Bulbar symptoms can make communication more difficult, sometimes causing a person’s world to feel smaller. But technology is opening new doors—making it easier to stay connected beyond traditional tools like alphabet boards ✨

Devices like iPads can be customized with common phrases and even programmed to speak in your own recorded voice. Eye gaze technology is another powerful option, allowing communication through eye movement 👁️

Learn more about communication tools and support in Pathways Through the ALS Storm, available in spiral-bound or e-book at https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00 📘

Keeping movement possible—one small stretch at a time 💙Range of motion exercises can help preserve flexibility, reduce s...
04/23/2026

Keeping movement possible—one small stretch at a time 💙

Range of motion exercises can help preserve flexibility, reduce stiffness, and support everyday comfort for people living with ALS. These gentle movements, often done with a caregiver or loved one, can make a meaningful difference in maintaining mobility and quality of life ✨

Explore simple, guided exercises here: https://alsworldwide.org/resource/range-of-motion-exercises/

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