ALS Worldwide

ALS Worldwide Nonprofit that helps people live better and longer with ALS by providing FREE assistance to all. WHAT IS ALS? So, amyotrophic means “no muscle nourishment”.

The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United Stat

es and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT
Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, and phone. HOW YOU CAN HELP OTHERS
ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at www.alsworldwide.org/donate. Like our page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world.

💙 You don’t have to face ALS alone.An ALS diagnosis can bring an overwhelming mix of emotions, questions, and uncertaint...
08/13/2026

💙 You don’t have to face ALS alone.

An ALS diagnosis can bring an overwhelming mix of emotions, questions, and uncertainty—not only for the person living with ALS, but for caregivers, family members, and friends, too. 🤝💙

At ALS Worldwide, counseling is available to help people affected by ALS navigate the emotional challenges that come with this journey. Sometimes, having someone who understands what you’re going through can make all the difference. 🫶

Whether you need someone to talk to, help processing difficult emotions, or simply a compassionate person who will listen, support is available. 💙

🌱 Reach out. Talk to someone. You don't have to carry it all alone.

Learn more about ALS Worldwide counseling services:
ALS Worldwide Counseling

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💙 A mother’s love sees beyond the diagnosis."The compulsion to explain Ben to the world has passed. I no longer care wha...
08/12/2026

💙 A mother’s love sees beyond the diagnosis.

"The compulsion to explain Ben to the world has passed. I no longer care what anyone thinks. He's my beautiful son with a brilliant mind and a failing body."

— Barbara Byer, ALS Worldwide Co-Founder
October 2004, Shatterproof: A Mother’s Memoir of Love and Loss

📖 Shatterproof is Barbara’s deeply personal memoir about her son Ben’s journey with ALS—and a mother’s journey through love, hope, heartbreak, and loss.

Through her honest words and reflections, Barbara gives readers a glimpse into the reality of loving someone with ALS and the profound ways a diagnosis can change a family.

💙 Read Barbara’s story. Feel the love behind the words. And discover Shatterproof: A Mother’s Memoir of Love and Loss.

📚 Learn more and find the book on our website in ebook or paperback: https://alsworldwide.org/

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08/11/2026

💙 Sometimes the most meaningful advice comes from someone with personal experience.

In this video, Father Sophronios shares practical tips and personal wisdom from his own experience living with ALS. His perspective offers a reminder that while ALS can change so much, there are still ways to adapt, find support, and make each day a little more manageable. 🙏💙

For individuals and families navigating ALS, hearing directly from someone who understands the journey firsthand can provide comfort, encouragement, and a sense that you are not alone. 🤝

🎥 Watch Father Sophronios share his experience and practical tips—and visit his blog for more advice:

🔗 https://alsworldwide.org/family-story/practical-tips-from-one-who-has-als-father-sophronios/

💙 Real experiences. Practical wisdom. A community that understands.

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💙 There’s a lot of information about ALS online—but not all of it is accurate, reliable, or trustworthy.When you’re livi...
08/10/2026

💙 There’s a lot of information about ALS online—but not all of it is accurate, reliable, or trustworthy.

When you’re living with ALS or caring for someone who is, searching for answers can quickly become overwhelming. That’s why having a reliable place to turn matters. 🔎📱

📘 The ALS Protocol E-Book from ALS Worldwide provides a quick, compassionate overview of ALS concerns, medications, and supports. Written by ALS parents and the founders of ALS Worldwide, this 12-page resource covers the basics of ALS and points families toward counseling, support, and additional information.

It’s important to remember that information found online should never replace conversations with your healthcare team. ALS Worldwide encourages families to discuss recommendations with their neurologists, physicians, caregivers, and other medical professionals. 💙🤝

📖 Start with information you can trust. Explore the ALS Protocol E-Book:
ALS Protocol E-Book, available as ebook or spiral bound through the ALS Worldwide website: https://alsworldwide.org/resource/als-protocol-e-book/

💙 Sandy: Cherishing Every Day“While my lifestyle has changed, my mindset hasn’t. Even though I no longer wake up in my o...
08/09/2026

💙 Sandy: Cherishing Every Day

“While my lifestyle has changed, my mindset hasn’t. Even though I no longer wake up in my own home, I awake with the same resilient attitude of hope. I’m walking and talking a little slower and cannot prepare my own meals, but I still crack a joke or two and keep on smiling. 😊

I’m approaching each day as an opportunity. Every day I am grateful to have a family and friends who not only push me but encourage me. There is no way I can exist without their support. ❤️

I’m also thankful for groups like ALS Worldwide that provide information and resources that actually help me. 🤝

My ALS diagnosis is not my death sentence—it’s my awakening to living my life.” 🌟
— Sandy Waller

Sandy’s words are a powerful reminder to cherish each day, lean on the people who support us, and continue to find reasons to smile. 💙

📖 Read more of Sandy’s story on our website: https://alsworldwide.org/family.../sandy-cherishes-each-day/

💙 Did you know? Glutathione is recommended for improved limb strength and may offer several important benefits for peopl...
07/25/2026

💙 Did you know? Glutathione is recommended for improved limb strength and may offer several important benefits for people living with ALS. It helps combat oxidative stress, supports the body's natural detoxification process, strengthens the immune system, and plays an essential role in cell function and repair. 🌿✨

📖💙 Learn more about glutathione in Pathways Through the ALS Storm, and get 74 pges of practical information, hope, and guidance for navigating an ALS diagnosis: https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

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💙 "I visited yesterday with a man who has limb onset, which means that although his arms and legs are virtually useless,...
07/17/2026

💙 "I visited yesterday with a man who has limb onset, which means that although his arms and legs are virtually useless, he can still talk and eat and enjoy his days. Where and how ALS enters the body is a mystery. But not understanding the cause does not mean we can’t have some measure of control by curtailing various symptoms. Visiting with others who have ALS, either in your community or on the internet can help minimize the sense of isolation so many experience both in person and online." 💙

— Barbara Byer, ALS Worldwide Co-Founder & ALS Parent

No one should have to face ALS alone. 🤝💙 Connection, encouragement, and shared experiences can make a meaningful difference for people living with ALS and their loved ones.

📩 Subscribe to our monthly Message of Hope for inspiration, practical resources, and trustworthy information delivered to your inbox every month:
https://mailchi.mp/alsworldwide/enewsletter

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💙 No one should have to navigate an ALS diagnosis on their own.At ALS Worldwide, we're committed to empowering individua...
07/10/2026

💙 No one should have to navigate an ALS diagnosis on their own.

At ALS Worldwide, we're committed to empowering individuals living with ALS, supporting caregivers, and providing families with trusted resources, compassionate counseling, and a caring community every step of the way. 🌎🤝

Everything we do is driven by one mission: to ensure that everyone affected by ALS has access to hope, guidance, and meaningful support.

Discover who we are, what we do, and how we're making a difference every day.

👉 Learn more: https://alsworldwide.org/about-us/

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06/28/2026
💙 Shatterproof is a deeply personal memoir by Barbara Byer that shares the lived experience of being the mother of a you...
06/26/2026

💙 Shatterproof is a deeply personal memoir by Barbara Byer that shares the lived experience of being the mother of a young man diagnosed with ALS. 📖✨

Written through a combination of real-time journaling and reflective memory, the book offers an honest, heartfelt journey through love, humor, heartbreak, grief, and the enduring bond of family. 🤝💔💙

From diagnosis in 2002 through the years that followed, Barbara shares how grief changes over time—but never disappears. Instead, it finds a place in the heart where love and loss coexist, and life continues in a new rhythm. 🌿

This is a story of remembrance, acceptance, and the lasting presence of a beloved son who remains part of the family always. 💙

📚 Shatterproof is available in print and ePub on Lulu:
https://www.lulu.com/search?page=1&sortBy=RELEVANCE&q=Barbara+Byer&pageSize=10&adult_audience_rating=00

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