IPEX Foundation

04/21/2026

Draft Week in Zelienople: Making a Play for Jax! 🏈🍔

Zelienople Main Street is officially on the clock! As the NFL Draft kicks off in Pittsburgh, our community is huddling up for something even bigger. We are dedicating Draft Week (April 23rd–30th) to Jax and the IPEX Foundation to help fund research for a cure.

Jax is a local warrior fighting IPEX Syndrome—a rare autoimmune disease—and we’re drafting YOU to join his team.

Shop Local: Look for "Draft for Jax" signs at participating businesses along Main Street all week long.

Rare is only rare until it's someone you love. Let's make Jax's cure the #1 pick this year.

📍 Where: Zelienople Main Street
📅 When: April 23rd – April 30th

Good Morning America People ABC World News Tonight with David Muir Today Show Missy Kuban Ramirez Be The Match for Jax MrBeast Jen Hamilton

04/17/2026

Let’s chat 🫶 Good Morning America People Be The Match for Jax Taylor Swift Christian McCaffrey Stanford Medicine

04/13/2026

SAVE THE DATE 📅

Plant with a purpose for the IPEX Foundation ❤️

SEE YOU THERE 🫶
PeopleGood Morning AmericaBe The Match for JaxMissy Kuban RamirezThe Perfect Piece Home Furnishings

Mark your calendars and sign up for a great spring event!

03/20/2026

Local and need a dinner idea? Stop over and meet Be The Match for Jax Jax's dad! He will be ready to chat all things about our journey and the mission of the foundation!

Can't wait to see you there! If you can't make it, but want to donate to a cause that is larger than life, head to our URL: https://ipex.foundation/ for ways to donate!

Don't forget to share our mission, our events and help us bridge a $2M dollar gap for clinical research for IPEX!

With love,
The Boys of IPEX

People Unionville Church Missy Kuban Ramirez Be The Match for Jax Good Morning AmericaPeopleNot Gonna Lie with Kylie KelceTaylor Swift

It's a FISH FRY-YAY for IPEX Foundation and Be The Match for Jax!

Proceeds continue to help support our mission to raise awareness, diagnose early and get families to live saving resources!

Local and want to support? Head over to the Unionville Church

Far away and want to support? VENMO: IPEXFOUNDATION

Taylor Swift Not Gonna Lie with Kylie Kelce Missy Kuban Ramirez People CNBC Good Morning America IPEX Foundation MrBeast Dwayne The Rock Johnson

03/14/2026

It's a FISH FRY-YAY for IPEX Foundation and Be The Match for Jax!

Proceeds continue to help support our mission to raise awareness, diagnose early and get families to live saving resources!

Local and want to support? Head over to the Unionville Church

Far away and want to support? VENMO: IPEXFOUNDATION

Taylor Swift Not Gonna Lie with Kylie Kelce Missy Kuban Ramirez People CNBC Good Morning America IPEX Foundation MrBeast Dwayne The Rock Johnson

03/13/2026

I was humbled and honored to take one of the biggest stages and shine a light on IPEX, not just for Jax, but for every family faced with the daily life of this disease.

Our road to bridging a funding gap to a cure is bright when you share this story and help bring IPEX syndrome to the forefront of our community

Be The Match for JaxIPEX Foundation

There are more than 10,000 known rare diseases and only a few hundred have safe, effective treatments. In the United States, rare diseases affect millions of people. On February 27, 2026, NIH will host its annual Rare Disease Day event to raise awareness about these disorders, the people they affect...

03/08/2026

Want to help fund research that impacts the lives of boys with

DM us! Open for collaborations!

Want to DONATE NOW (Venmo) IPEXFOUNDATION
Good Morning AmericaNot Gonna Lie with Kylie KelceToday ShowPeopleCNBCLeverforChangeBe The Match for Jax Harmony Castings LLC

03/06/2026

I cannot wait to see you dahn tahn this weekend! Burghers Brewing Co Good Morning America Taylor Swift Not Gonna Lie with Kylie Kelce Abeille Voyante Tea Co

03/01/2026

Taking the stage for and our boys is a moment I’ll never forget LeverforChange Today Show Good Morning America People CNBC Be The Match for Jax

03/01/2026

A throwback to KNOWING THE SIGNS of in honor of RARE DISEASE WEEKEND 🤍🖤🦓

Research is telling us - it’s not as rare as once believed.

Know the signs, get an early diagnosis and get life saving resources URL: https://ipex.foundation/

Common symptoms include:
• Severe, chronic diarrhea
• Failure to thrive
• Type 1 diabetes (often very early onset)
• Severe eczema or skin rashes
• Recurrent infections
• Thyroid disease
• Food allergies

IPEX causes the immune system to attack the body instead of protecting it.

Early diagnosis can save lives. If something feels off, trust your instincts and push for answers.
💙 Today ShowGood Morning AmericaBe The Match for JaxPeopleCNBC Missy Kuban Ramirez

02/23/2026

Wear your for National Rare Disease Day, Friday, February 27th!

We may be rare, but not invisible! Let's stand together for all those babies who go through more in a lifetime than anyone should!

Taylor Swift Good Morning America Be The Match for Jax Today Show

02/21/2026

The time is NOW to help us fund research to help cure our boys ❤️ It’s starts with you! VENMO: IPEX.foundation or head to IPEX.foundation for more!

Taylor SwiftNot Gonna Lie with Kylie KelcePeopleGood Morning AmericaLeverforChangeMrBeastCNBC