IPEX Foundation

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IPEX Foundation IPEX is a rare, life threatening disease with limited research.

This is a grassroots, nonprofit organization dedicated to finding hope, pushing for research advancements and building a supportive community for our rare disease families.

08/23/2026

🎟️ BRUNO MARS TICKET GIVEAWAY WINNER!🎟️

We have a winner!! 🎉❤️

A HUGE thank you to everyone who entered our Bruno Mars ticket fundraiser and supported the IPEX Foundation. Every entry helped us get one step closer to our goal of raising $2 million for the next phase of IPEX clinical research 🧬💙

And now for the moment you’ve been waiting for…

✨ CONGRATULATIONS, Erica O ✨

You’re going to see Bruno Mars 🎶🙌

From our family to yours, thank you for standing with Jax and every IPEX family fighting for a future. Your support means more than you know. ❤️

We’re not done fighting. Phase Two, here we come.💪🧬

👉 To learn more or support the IPEX Foundation: IPEX.foundation



MrBeast Kelly O's Diner PGH 102.5 WDVE Be The Match for Jax IPEX Foundation Missy Kuban Ramirez CNBC Bruno Mars

08/18/2026

Enter the IPEX Foundation raffle to win Bruno Mars tickets! Support Jax’s fight and fund vital research for IPEX syndrome. Buy your tickets today.

08/17/2026
Great food, killer music, and an amazing cause — what more could you ask for? 🤘✨We're bringing the community together fo...
08/14/2026

Great food, killer music, and an amazing cause — what more could you ask for? 🤘✨

We're bringing the community together for the 6th Annual Rocktoberfest, presented by Kelly O's Diner PGH!

When you get your ticket, you aren't just locking in your spot for a fantastic night — you're raising crucial funds and awareness for the IPEX Foundation. Let’s show up big and make this the best Rocktoberfest yet!

🎟️ Get your tickets below or at any Kelly O's Diner PGH location

Missy Kuban Ramirez Be The Match for Jax WPXI-TV Pittsburgh 102.5 WDVE MrBeast Not Gonna Lie with Kylie Kelce Jatara McGee

08/13/2026

The totals are in and THIS COMMUNITY showed they love a good cause and a good event ❤️

In two hours and some rain, we raised $2500 for the IPEX Foundation ❤️❤️❤️

This is how easy it is - when you put a little love into something, the results are magical 🍾

Who’s ready for the next event?!? 🙋‍♀️

T & M Hardware and Rental Rotary InternationalCNBCMissy Kuban RamirezUnion Brothers SmashedPap & Poppy's Cold Treats The Munching Moose This-That & The Other Thing Delina’s EthioCafe /Mea/ Sierra’s Sips and Treats LLC Papa Joe's W**e Cellar

Eeekkkkkkk! Local and want to grab a ticket for our next event, scan below! Don’t delay! This is a great time!
08/12/2026

Eeekkkkkkk!

Local and want to grab a ticket for our next event, scan below! Don’t delay! This is a great time!

🪩 IT'S OFFICIAL... ROCKTOBERFEST IS BACK! 🪩

Dust off your groove because the 6th Annual Rocktoberfest: Disco for a Cause is coming to OZone Bar & Grill on Saturday, September 19, from 5:00 PM – 9:00 PM!

Join us for an unforgettable evening featuring:

🎶 Live Music by The Dancing Queen Band
🎟️ 50/50 Raffle & Silent Auction
🛍️ Local Vendors
🎨 Face Painting & Family Fun
🍔 Great Food & Drinks
💃 Disco Vibes All Night Long

For the past six years, our incredible community has come together to make a real difference, helping us raise more than $80,000 to support local children, families, individuals, and organizations facing difficult circumstances. This year, we're ready to make an even bigger impact.

🎟️ Tickets are NOW on sale!

$10 Pre-Sale | $15 at the Door

You can purchase tickets in any of the following ways:

🖥️ Online:
https://events.ticketleap.com/tickets/ozonebargrillcom/rocktoberfest-2026-boogie-for-a-cause

📍 In Person:
• OZone Bar & Grill
• Kelly O's Diner – Warrendale
• Kelly O's Diner – North Hills
• Kelly O's Diner – Strip District

🚪 At the Door:
Tickets will also be available the day of the event for $15.

Every ticket purchased, raffle ticket sold, silent auction bid, sponsorship, and donation helps us make a meaningful difference in the lives of those in our community.

🪩 Let's Boogie for a Cause! We can't wait to see you on the dance floor!

Community helping Community - the heart and soul of our mission. Join us at T & M Hardware and Rental this week and join...
08/10/2026

Community helping Community - the heart and soul of our mission.

Join us at T & M Hardware and Rental this week and join so many local vendors showing up to support a family and their mission to raise awareness and bridge a gap in funding for science 💙

Location: T & M Hardware and Rental Harmony, PA
Time: 5 pm

Proceeds benefit the foundation's mission to bring to the forefront and make rare visible.

Aren't local or can't make it? No worries - make a donation here 👇

https://ipex.foundation/pages/how-to-help

Warmly,
The IPEX Syndrome Foundation team

Missy Kuban Ramirez Be The Match for Jax MrBeast People CNBC Jen Hamilton WPXI-TV Pittsburgh Jatara McGee Taylor Swift Not Gonna Lie with Kylie Kelce

We are incredibly honored that we will be making our maiden voyage this Wednesday at T&M Hardware’s Touch-a-Truck Event from 5:00 PM – 7:30 PM!

Even more special, this event benefits IPEX Syndrome Foundation, helping raise awareness and support for an amazing cause Be The Match for Jax

This will be the very first public appearance of our new mobile smash burger trailer, and we couldn’t think of a better event or community to kick things off with.

Come check out the toys, support a fantastic cause, and be among the first to try our fresh smash burgers, crispy fries, and see what Union Brothers Smashed is all about!

We’re excited, humbled, and can’t wait to serve our community in a whole new way. Thank you to T & M Hardware and Rental for inviting us to be part of such a great event, and thank you to everyone who continues to support Union Brothers. We can’t wait to see you there!

08/06/2026
So proud we continue to make waves in the   space! Want to join us in our mission to support families faced with  ? Dona...
08/06/2026

So proud we continue to make waves in the space!

Want to join us in our mission to support families faced with ?

Donate here: ://ipex.foundation/pages/how-to-help

Want to see us in action?

Join us Wednesday, August 12, 2026 for our Touch a Truck Event with T & M Hardware and Rental - all proceeds benefit the boys and their families impacted by this savage disease! Small actions turn into big moments for our families, so see you there!

Location 📍134 Perry Highway, Harmony PA

Time 5 pm

Missy Kuban Ramirez Be The Match for Jax Jen Hamilton Good Morning America MrBeast Taylor Swift People Today Show

Address

Millstadt, IL
62260

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