Complex Regional Pain Syndrome Association - CRPSA

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Complex Regional Pain Syndrome Association - CRPSA CRPSA's mission is to provide support, education, and hope to everyone affected by CRPS. Formerly RSDSA.

“This weekend has been invaluable in learning new skills, meeting new people, building a network, and expanding my abili...
10/08/2026

“This weekend has been invaluable in learning new skills, meeting new people, building a network, and expanding my ability to be independent.” - Adult Weekend Retreat (AWR) Philly Attendee

Thank you to everyone who attended the inaugural The CRPS Connection: CRPSA's Adult Weekend Retreat in Philadelphia! It was a great weekend filled with networking, art therapy, exploring Philly, and much more.

Keep an eye on our new AWR page for details on our spring 2027 AWR: https://crps.org/adult-weekend-retreat/

10/07/2026

Watch our livestream focused on spinal cord stimulators and dorsal root ganglion stimulation with Dr. Kiran Patel.

Dr. Kiran Patel is board certified in Pain Management and Anesthesiology. She completed both her Interventional Pain Medicine fellowship and Anesthesiology residency at the prestigious Columbia University Medical Center-New York Presbyterian Hospital.

She specializes in the treatment of back and neck pain caused by arthritis, degenerative disc disease, spinal stenosis and pain following spine surgery. She also has expertise in treating neuropathic pain, cancer related pain, CRPS, atypical facial pain, pelvic pain, headache and peripheral neuralgias.

*Abbott is an annual sponsor of RSDSA.*

10/05/2026

October CRPS Support Group 💛
This month, our discussion will focus on:
Making the Invisible Visible: Living with CRPS and Other Invisible Illnesses
So much of life with CRPS is unseen by others — pain, fatigue, sensory changes, emotional strain, and the constant adjustments that may be required just to get through the day.
This meeting will be a chance to talk openly about what it is like to live with an invisible illness, how misunderstanding can affect us, and ways we can help others better understand what they cannot see.
📅 Saturday, October 10, 2026
🕐 1–3 PM EST
💻 Virtual meeting
To RSVP and receive the meeting link, email [email protected].
You are welcome to participate as much or as little as you are comfortable with.

The next Maryland CRPS/RSD Support Group meeting is Sunday, October 11th at 2PM Eastern on Zoom. If you're in the DMV ar...
10/02/2026

The next Maryland CRPS/RSD Support Group meeting is Sunday, October 11th at 2PM Eastern on Zoom. If you're in the DMV area, please consider joining!

Join the Facebook Group in order to get access to the link ^

The October 2026 edition of CRPSA's digital newsletter, In Rare Form, is now available: https://bit.ly/4xXfJCXPlease not...
10/01/2026

The October 2026 edition of CRPSA's digital newsletter, In Rare Form, is now available: https://bit.ly/4xXfJCX

Please note that our new email address is [email protected]. You can find our website at crps.org.

🔬 Research + Education 📚

On Wednesday, October 7th at 7PM Eastern we’ll host a Livestream with Dr. Kiran Patel - SCSs and DRGs on the difference between Dorsal Root Ganglion (DRG) Therapy and Spinal Cord Stimulation (SCS). *This event was rescheduled from Tuesday, September 22nd.*

The Complex Regional Pain Syndrome-Relief and Improvement Study for Efficacy (CRPS-RISE) trial by Ambros Therapeutics now has 27 sites across the country. New sites are being added regularly! Click the link in In Rare Form to learn how the trial works and to see if you qualify.

A list of additional CRPS research studies can be found on pages 2 and 7, including a paid virtual opportunity from the University of Bath.

🫂 Support + Community 🎗️
This weekend's The CRPS Connection: CRPSA's Adult Weekend Retreat is sold out! We'll share photos from the inaugural event next week on social media and provide details about our next Adult Weekend Retreat in the coming months so adults with CRPS can come together and meet one another next spring.

The 6th Annual Picklin' for a Cure Awareness and Fundraising Pickleball Tournament will take place at Udall Park in Tucson, Arizona from October 16-18, 2026.

Our 2027 Young Adult Weekend Retreat: Atlanta will take place June 4-7, 2027! Learn more about registering inside this edition.

As always, you can find a link to all of our current in-person, Zoom, Facebook, and peer support groups on page 9. If you want to start your own support group, or if you want to share what's new with your group, send us an email!

If you are interested in sponsoring a future issue of In Rare Form, please contact us at [email protected]

We have big news to share! Today we are formally announcing our rebrand from RSDSA to CRPSA.We are excited to now align ...
09/16/2026

We have big news to share! Today we are formally announcing our rebrand from RSDSA to CRPSA.

We are excited to now align our organization’s name, Complex Regional Pain Syndrome Association, with the updated name of the condition in an effort to reduce confusion amongst the community and physicians.

Our new website URL is crps.org. If you accidentally type in rsds.org, you’ll still have access to all of our amazing content as you’ll automatically be redirected to our new website.

We will eventually update our email addresses, but for now you can still reach us at [email protected]. You can also always contact us through our website and message board.

And finally, we have made changes to our social media handles. You can find us on Facebook, X (formerly known as Twitter), Instagram, LinkedIn and YouTube via . The links to our social channels are also on our website.

We ask that you are patient with us during this transition as we may still have RSDSA listed in a few places across the web, but please help us keep an eye out for anyone who may be pretending to be us under our old name. If you are unsure of something you see online and want confirmation from us, please contact us at [email protected] or give our office a call at 877-662-7737.

Even though we have changed our name, we intend to provide the same support that we’ve shown the CRPS community since 1984.

If you have any questions for us, please leave them in the comments below! And help us spread the word!

Address

PO Box 502
Milford, CT
06460

Telephone

+18776627737

Website

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