Hunter's Wish to Cure Epidermolysis Bullosa, EB

Hunter's Wish to Cure Epidermolysis Bullosa, EB Hunter's Wish to Cure EB is dedicated to raising awareness for Epidermolysis Bullosa, (EB) and to find a cure. Praying, wishing and believing in a cure!

If you are just 'liking' our page, Thank you! But you could be wondering what it's all about. Hunter's Wish to Cure Epidermolysis Bullosa is an foundation I started for my son Hunter, that was diagnosed just a few years ago with EB. It was also created for the families and children battling EB because the support I received from other EB families and friends was a lifesaver for us and I cherish th

eir support, and maybe one day I can be help to someone in return. It's called 'Hunter's Wish' because Hunter always says to me, "I wish I didn't have EB and Mom, if I can have a genie grant me just one wish, it would be not to have EB" That is his wish, and until we find a cure and I can grant him his one wish, I will do my best and do what it takes to raise awareness for EB and support the research being done for a cure! What is EB? Epidermolysis Bullosa (EB) is a very rare genetic connective tissue disorder, affecting 1 out of every 20,000 live births. There are many variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Daily wound care, bandaging and pain management are a daily routine. There is no cure yet.

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Milford, CT
06460

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+12036454252

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