AbbyStrong

10/15/2026

Please share a picture with and #𝗟𝗶𝗴𝗵𝘁𝗙𝗼𝗿𝗡𝗶𝗲𝗺𝗮𝗻𝗻𝗣𝗶𝗰𝗸…it’s such a simple and meaningful gesture to all the beautiful souls we’ve lost and are losing. Help us build hope by showing support.

💙 🕯️ 𝗢𝗖𝗧𝗢𝗕𝗘𝗥 𝟭𝟱 | 𝗦𝗛𝗜𝗡𝗘 𝗔 𝗟𝗜𝗚𝗛𝗧 𝗙𝗢𝗥 𝗡𝗜𝗘𝗠𝗔𝗡𝗡-𝗣𝗜𝗖𝗞 𝗗𝗜𝗦𝗘𝗔𝗦𝗘
𝗢𝗻𝗲 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆. 𝗢𝗻𝗲 𝗟𝗶𝗴𝗵𝘁. 𝗢𝗻𝗲 𝗪𝗼𝗿𝗹𝗱 𝗨𝗻𝗶𝘁𝗲𝗱 𝗶𝗻 𝗛𝗼𝗽𝗲.

Tonight, we invite the global Niemann-Pick community to come together in a powerful moment of remembrance, solidarity, and hope.

At 𝟳:𝟬𝟬 𝗽.𝗺. 𝘆𝗼𝘂𝗿 𝗹𝗼𝗰𝗮𝗹 𝘁𝗶𝗺𝗲, light a candle as part of the Global Wave of Light to honor those living with Niemann-Pick disease, remember the loved ones we have lost, and shine a light on the families whose strength and resilience inspire us every day.

🕯️ Light a candle.
💙 Share a photo or video of your light.
🌎 Use #𝗟𝗶𝗴𝗵𝘁𝗙𝗼𝗿𝗡𝗶𝗲𝗺𝗮𝗻𝗻𝗣𝗶𝗰𝗸 to connect with families around the world.

Together, our lights will travel across time zones, illuminating the Niemann-Pick community and reminding every family that they are seen, supported, and never alone.

𝗘𝘃𝗲𝗿𝘆 𝗟𝗶𝗴𝗵𝘁 𝗧𝗲𝗹𝗹𝘀 𝗮 𝗦𝘁𝗼𝗿𝘆. 𝗘𝘃𝗲𝗿𝘆 𝗦𝘁𝗼𝗿𝘆 𝗠𝗮𝘁𝘁𝗲𝗿𝘀. 𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿, 𝗪𝗲 𝗦𝗵𝗶𝗻𝗲.

For more information about Niemann-Pick disease visit nnpdf.org.

10/08/2026

www.bonfire.com/childhooddementia

10/02/2026

Today we announced Topline Results from the Pivotal Phase 3 TransportNPC™ Study of Trappsol® Cyclo™ in Niemann-Pick Disease Type C (NPC). Read full announcement: https://cyclotherapeutics.com/news/

10/02/2026

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AbbyStrong

10/01/2026

09/27/2026

Most childhood dementia disorders are passed down the same way — it’s called autosomal recessive. And about 2 in 3 are inborn errors of metabolism.

We made this to help families understand the basics. 💗

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