Cdh1andus/Cdh1&us

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Cdh1andus/Cdh1&us Advocacy, education, outreach and research on the effects of the CDH1 mutation on marginalized commun

Thereโ€™s an epidemic in the world today, one that seeps into every level of the social strata. Education is no protection...
06/05/2022

Thereโ€™s an epidemic in the world today, one that seeps into every level of the social strata.

Education is no protection and nor is wealth. While there are ways to reduce the possibility that a person will be one of the almost 2 million people per year that are affected by it, the causes of this plague are only poorly understood.

Every year 450 men and women out of every 100,000 are diagnosed with one of the dozens of kinds of cancer, and 171 men and women die from it.Many survivors go on to fulfill their dreams and find joy and happiness once again.

Cancer Survivor Day is for those who have faced off against this most dread of ailments and risen again to live full, happy lives. Itโ€™s a time for people with similar stories and experiences to come together and celebrate their strength and perseverance.

Itโ€™s no easy feat and a milestone to be recognized and appreciated. Itโ€™s the idea that thereโ€™s not only hope for a brighter future but to demonstrate that life after a cancer diagnosis can be a reality. -daysoftheyear.com

๐ŸŽ‰๐ŸŽˆ๐ˆ๐“'๐’ CDH1ANDUSโ€™ 2nd ๐๐ˆ๐‘๐“๐‡๐ƒ๐€๐˜!๐ŸŽˆ๐ŸŽ‰Two years ago I decided to create CDH1ANDUS with not only myself and my family in mind,...
05/16/2022

๐ŸŽ‰๐ŸŽˆ๐ˆ๐“'๐’ CDH1ANDUSโ€™ 2nd ๐๐ˆ๐‘๐“๐‡๐ƒ๐€๐˜!๐ŸŽˆ๐ŸŽ‰

Two years ago I decided to create CDH1ANDUS with not only myself and my family in mind, but other marginalized groups (age, ethnicity, gender, type of cancer, etc) as well.

โ€œOurโ€ 1st birthday, we werenโ€™t feeling well or up to celebrating but couldnโ€™t let this one go by without acknowledging it!

05/09/2022

How my 9th dilation was different than the 1st eight (dilations). Plus a reminder to report any and all (chronic) constant reoccurring symptoms to your doctor ASAP

A day to reflect on:โ€ขthose weโ€™ve lostโ€ขthose who are battling โ€ขthose who are thriving when and as best they can Letโ€™s not...
02/04/2022

A day to reflect on:
โ€ขthose weโ€™ve lost
โ€ขthose who are battling
โ€ขthose who are thriving when and as best they can

Letโ€™s not forget that though itโ€™s a day, cancer has been around for centuries, it isnโ€™t developed in oneโ€™s body in one day and itโ€™ll take the world, as a collective, to continuously fight the battle against cancer 24/7/365 ๐Ÿ’ช๐Ÿฝ

๐•๐ž๐ซ๐ฒ ๐ข๐ฆ๐ฉ๐จ๐ซ๐ญ๐š๐ง๐ญ ๐๐ข๐ฌ๐œ๐จ๐ฏ๐ž๐ซ๐ฒ๐Ÿ” ใƒปใƒปใƒปRead the JAMA Surgery article to learn more at the link in their bio! Reference: Gamble et ...
01/12/2022

๐•๐ž๐ซ๐ฒ ๐ข๐ฆ๐ฉ๐จ๐ซ๐ญ๐š๐ง๐ญ ๐๐ข๐ฌ๐œ๐จ๐ฏ๐ž๐ซ๐ฒ

๐Ÿ”
ใƒปใƒปใƒป
Read the JAMA Surgery article to learn more at the link in their bio!

Reference: Gamble et al. JAMA Surg. 2021 Oct 13;e215118. PMID: 34643667.

The journey of:*Finding out your genetic risk or lack thereof can be stressful, scary and confusing    ๐ƒ๐จ๐ง'๐ญ ๐ ๐จ ๐ญ๐ก๐ซ๐จ๐ฎ๐ ๐ก ...
01/12/2022

The journey of:

*Finding out your genetic risk or lack thereof can be stressful, scary and confusing
๐ƒ๐จ๐ง'๐ญ ๐ ๐จ ๐ญ๐ก๐ซ๐จ๐ฎ๐ ๐ก ๐ญ๐ก๐ž ๐ญ๐ž๐ฌ๐ญ๐ข๐ง๐  ๐จ๐ซ ๐Ÿ๐ข๐ง๐๐ข๐ง๐  ๐จ๐ฎ๐ญ ๐ญ๐ก๐ž ๐ซ๐ž๐ฌ๐ฎ๐ฅ๐ญ๐ฌ ๐š๐ฅ๐จ๐ง๐ž. ๐‹๐ž๐š๐ง ๐จ๐ง ๐ฒ๐จ๐ฎ๐ซ ๐ฅ๐จ๐ฏ๐ž๐ ๐จ๐ง๐ž๐ฌ ๐จ๐ซ ๐ฒ๐จ๐ฎ๐ซ ๐ก๐ž๐š๐ฅ๐ญ๐ก๐œ๐š๐ซ๐ž ๐ญ๐ž๐š๐ฆ

*Going through all of the preliminary exams may be physically and/or emotionally taxing
๐…๐ข๐ง๐ ๐ฐ๐š๐ฒ๐ฌ ๐ญ๐จ ๐๐ž๐œ๐จ๐ฆ๐ฉ๐ซ๐ž๐ฌ๐ฌ ๐š๐ง๐ ๐›๐ซ๐ข๐ง๐  ๐ฒ๐จ๐ฎ๐ซ๐ฌ๐ž๐ฅ๐Ÿ ๐ฃ๐จ๐ฒ ๐š๐ง๐ ๐ฉ๐ซ๐š๐ญ๐ข๐œ๐ž ๐ฌ๐ž๐ฅ๐Ÿ ๐ ๐ซ๐š๐œ๐ž. ๐“๐š๐ค๐ž ๐ž๐š๐œ๐ก ๐ž๐ฑ๐š๐ฆ ๐ข๐ง ๐ฌ๐ญ๐ซ๐ข๐๐ž. ๐ƒ๐ข๐š๐ ๐ง๐จ๐ฌ๐ข๐ฌ ๐ข๐ฌ ๐š ๐ค๐ž๐ฒ ๐œ๐จ๐ฆ๐ฉ๐จ๐ง๐ž๐ง๐ญ

*If youโ€™re faced with making a long term or short term choice in recommended treatment, be it chemotherapy and/or a total gastrectomy
๐‘๐ž๐ฆ๐ž๐ฆ๐›๐ž๐ซ ๐ญ๐ก๐š๐ญ ๐ญ๐ก๐ž ๐›๐ข๐ ๐ ๐ž๐ฌ๐ญ ๐ซ๐ข๐ฌ๐ค ๐ข๐ฌ ๐ญ๐ก๐ž ๐จ๐ฏ๐ž๐ซ๐š๐ฅ๐ฅ ๐ญ๐ซ๐ž๐š๐ญ๐ฆ๐ž๐ง๐ญ ๐›๐ฎ๐ญ ๐ญ๐ก๐ž ๐›๐ข๐ ๐ ๐ž๐ฌ๐ญ ๐ซ๐ž๐ฐ๐š๐ซ๐ ๐œ๐š๐ง ๐›๐ž ๐ฆ๐š๐ง๐ฒ, ๐ฆ๐š๐ง๐ฒ ๐ฆ๐จ๐ซ๐ž ๐›๐ข๐ซ๐ญ๐ก๐๐š๐ฒ๐ฌ ๐š๐ง๐ ๐š ๐ฅ๐จ๐ง๐ ๐ž๐ซ ๐ฅ๐ข๐Ÿ๐ž๐ฌ๐ฉ๐š๐ง

*Donโ€™t harp on anyone elseโ€™s good or bad journey. What may or may not happen to someone else, may or may not happen to you.
๐‰๐ฎ๐ฌ๐ญ ๐ค๐ง๐จ๐ฐ ๐ญ๐ก๐š๐ญ ๐ญ๐ก๐ž๐ซ๐ž ๐š๐ซ๐ž ๐ฆ๐š๐ง๐ฒ ๐ซ๐ž๐จ๐ฎ๐ซ๐œ๐ž๐ฌ, ๐จ๐ซ๐ ๐š๐ง๐ฎ๐ณ๐š๐ญ๐ข๐จ๐ง๐ฌ/๐š๐ฌ๐ฌ๐จ๐œ๐ข๐š๐ญ๐ข๐จ๐ง๐ฌ, ๐š๐ง๐ ๐œ๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ข๐ž๐ฌ (๐ž๐ฌ๐ฉ๐ž๐œ๐ข๐š๐ฅ๐ฅ๐ฒ ๐ก๐ž๐ซ๐ž ๐จ๐ง ๐ˆ๐†) ๐ญ๐ก๐š๐ญ ๐œ๐š๐ง ๐›๐ž ๐จ๐Ÿ ๐ ๐ซ๐ž๐š๐ญ ๐ก๐ž๐ฅ๐ฉ ๐ข๐ง ๐ญ๐ก๐ข๐ฌ ๐ฃ๐จ๐ฎ๐ซ๐ง๐ž๐ฒ, ๐Ÿ๐ซ๐จ๐ฆ ๐ฌ๐ญ๐ž๐ฉ ๐จ๐ง๐ž

๐ŸŽŠ๐‡๐š๐ฉ๐ฉ๐ฒ ๐๐ž๐ฐ ๐˜๐ž๐š๐ซ!๐ŸŽŠWith the onset of a new year comes, for most,  new resolutions. Resolutions that includes new goals/vis...
01/12/2022

๐ŸŽŠ๐‡๐š๐ฉ๐ฉ๐ฒ ๐๐ž๐ฐ ๐˜๐ž๐š๐ซ!๐ŸŽŠ

With the onset of a new year comes, for most, new resolutions. Resolutions that includes new goals/visions and working towards a better physical life.

If being tested for the CDH1 gene has been something that youโ€™ve repeatedly said, โ€œIโ€™ll do it next yearโ€, and youโ€™ve never made it happenโ€”- I encourage you to make 2022 ๐“๐‡๐„ ๐ฒ๐ž๐š๐ซ (whether you make resolutions or not)!

Gastric and Breast Cancer have been around for since ancient times.

The CDH1 genetic mutation wasnโ€™t documented to be discovered until the 20th century.

Here in the 21st century, stomach related diagnoses are still on the rise, especially among those below the age of 50.

Total gastrectomies have been performed since the 19th century.

If youโ€™ve put off getting genetic testing orโ€ฆ.

For those of you who know your genetic status and have been informed that a total gastrectomy would be the best recommended course of treatment for youโ€ฆ

๐Œ๐š๐ค๐ž 2022 ๐ญ๐ก๐ž ๐ฒ๐ž๐š๐ซ ๐ญ๐ก๐š๐ญ ๐ฒ๐จ๐ฎ ๐ญ๐š๐ค๐ž ๐œ๐ก๐š๐ซ๐ ๐ž ๐จ๐Ÿ ๐ฒ๐จ๐ฎ๐ซ ๐ฉ๐ก๐ฒ๐ฌ๐ข๐ฅ๐จ๐ ๐ข๐œ๐š๐ฅ ๐ก๐ž๐š๐ฅ๐ญ๐ก!

What a coincidence that I took that photo, a year a go today, at MSKCC makes this post today! It was the opportunity of ...
11/11/2021

What a coincidence that I took that photo, a year a go today, at MSKCC makes this post today! It was the opportunity of a lifetime to help others. ๐Ÿ™๐Ÿฝ
Repost
ใƒปใƒปใƒป
Ceji was only fifteen when her father died of . In 2019, it was confirmed that the disease runs in her family. A short time later, Ceji made the decision to undergo in order to understand what preventative measures she may need to take to live a long, happy life. For more on genetic testing, how it works, and all of the benefits that can come with it, visit the link in our bio and read Cejiโ€™s story in Bridges, our newsletter for survivors.

This was me, on Wacky Sock Day, right before the shutdown. Thatโ€™s what the kids remember; that I had a hurt leg. It was ...
10/27/2021

This was me, on Wacky Sock Day, right before the shutdown.

Thatโ€™s what the kids remember; that I had a hurt leg. It was actually that I was recovering from my 1st foot surgery.

A foot surgery, that because I didnโ€™t follow the doctorโ€™s orders, caused me much longer to heal. Due to not healing, I couldnโ€™t get cleared to work out, and I ended up being the biggest Iโ€™ve ever been.

(Another major blessing in disguise. Could you imagine me losing 70 pounds at my current size?!)

Now that Iโ€™m still seeing/reuniting with kids -in person- for the first time, since they were 2 grades โ€œyoungerโ€, all they keep asking/saying is:

โ€œMs. Bridges! Is your leg (foot) better now?โ€

โ€œAre you feeling better now?โ€

โ€œMs. Bridges, your curls are different.โ€

VS what some adults have said to me, after seeing me for the first time:

โ€œOh my gosh! You look so good now!โ€

โ€œWhat diet did you go on?! I want to try it.โ€

โ€œNow that youโ€™ve lost all that weight, you might want to do something about that loose skin.โ€


๐–๐ก๐ฒ ๐ข๐ฌ ๐ข๐ญ ๐ญ๐ซ๐ข๐œ๐ค๐ฒ?Though invasive lobular carcinoma (ILC) is the second most common form of invasive breast cancerโ€”accoun...
10/20/2021

๐–๐ก๐ฒ ๐ข๐ฌ ๐ข๐ญ ๐ญ๐ซ๐ข๐œ๐ค๐ฒ?

Though invasive lobular carcinoma (ILC) is the second most common form of invasive breast cancerโ€”accounting for 10 to 15 percent of invasive breast cancer diagnoses and affecting nearly 40,000 people each yearโ€”it has unfortunately been understudied and misunderstood.
ILC, also known as lobular breast cancer, originates in the milk-producing glands of the breast and presents differently than other invasive breast cancers, making it more difficult to detect by traditional screening and self-exam.

Recent research has not only shown that ILC is its own distinct subtype of breast cancer, but also that it may not respond as well to standard treatments, recur later, and metastasize in unusual ways.

๐’๐ฒ๐ฆ๐ฉ๐ญ๐จ๐ฆ๐ฌ ๐จ๐Ÿ ๐‹๐จ๐›๐ฎ๐ฅ๐š๐ซ ๐๐ซ๐ž๐š๐ฌ๐ญ ๐‚๐š๐ง๐œ๐ž๐ซ:

Symptoms might not be noticed, at first, but they can include:

* Thickening or hardening in the breast (rather than a distinct lump)

* An area of swelling or fullness

* A change to the texture of skin on breast or ni**le, like dimples or an irritated, red, or scaly area

* A ni**le that turns inward

* Pain in breast or ni**le

* Unusual ni**le discharge

* A lump located under the arm

๐‹๐จ๐›๐ฎ๐ฅ๐š๐ซ ๐๐ซ๐ž๐š๐ฌ๐ญ ๐‚๐š๐ง๐œ๐ž๐ซ ๐‚๐š๐ฎ๐ฌ๐ž๐ฌ ๐š๐ง๐ ๐‘๐ข๐ฌ๐ค ๐…๐š๐œ๐ญ๐จ๐ซ๐ฌ:

Experts arenโ€™t sure exactly what causes breast cancer. It happens when cells change and start to grow out of control.

Things that can make ILC more likely include:
* Age. Your risk goes up as you get older.

* Gender. Women who test positive for the CDH1 mutation is the only gender that could potentially develop ILC

* Lobular carcinoma in situ (LCIS)

* Use of combination estrogen-progestin hormone replacement therapy after menopause

* Hereditary diffuse gastric cancer syndrome (CDH1), a disorder passed down from your parents

๐–๐ก๐ž๐ง ๐ข๐ญ ๐œ๐จ๐ฆ๐ž๐ฌ ๐ญ๐จ ๐‹๐จ๐›๐ฎ๐ฅ๐š๐ซ ๐๐ซ๐ž๐š๐ฌ๐ญ ๐‚๐š๐ง๐œ๐ž๐ซ, ๐๐ž๐ญ๐ž๐œ๐ญ๐ข๐ง๐  ๐ข๐ญ ๐ข๐ง ๐ข๐ญ'๐ฌ ๐ž๐š๐ซ๐ฅ๐ข๐ž๐ฌ๐ญ, ๐ฆ๐จ๐ฌ๐ญ ๐ญ๐ซ๐ž๐š๐ญ๐š๐›๐ฅ๐ž ๐ฌ๐ญ๐š๐ ๐ž๐ฌ ๐ข๐ฌ ๐ข๐ฆ๐ฉ๐ž๐ซ๐š๐ญ๐ข๐ฏ๐ž--๐ž๐ฏ๐ž๐ซ๐ฒ ๐๐š๐ฒ. ๐€๐ฌ ๐ข๐ฌ ๐ญ๐ก๐ž ๐š๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐จ๐Ÿ ๐‹๐จ๐›๐ฎ๐ฅ๐š๐ซ ๐๐ซ๐ž๐š๐ฌ๐ญ ๐‚๐š๐ง๐œ๐ž๐ซ, ๐ฅ๐ข๐ค๐ž ๐š๐ฅ๐ฅ ๐›๐ซ๐ž๐š๐ฌ๐ญ ๐œ๐š๐ง๐œ๐ž๐ซ๐ฌ, ๐ฌ๐ก๐จ๐ฎ๐ฅ๐ ๐›๐ž ๐„๐•๐„๐‘๐˜๐ƒ๐€๐˜!

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Middle Island, NY
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