Cdh1andus/Cdh1&us

Cdh1andus/Cdh1&us Advocacy, education, outreach and research on the effects of the CDH1 mutation on marginalized commun

There’s an epidemic in the world today, one that seeps into every level of the social strata. Education is no protection...
06/05/2022

There’s an epidemic in the world today, one that seeps into every level of the social strata.

Education is no protection and nor is wealth. While there are ways to reduce the possibility that a person will be one of the almost 2 million people per year that are affected by it, the causes of this plague are only poorly understood.

Every year 450 men and women out of every 100,000 are diagnosed with one of the dozens of kinds of cancer, and 171 men and women die from it.Many survivors go on to fulfill their dreams and find joy and happiness once again.

Cancer Survivor Day is for those who have faced off against this most dread of ailments and risen again to live full, happy lives. It’s a time for people with similar stories and experiences to come together and celebrate their strength and perseverance.

It’s no easy feat and a milestone to be recognized and appreciated. It’s the idea that there’s not only hope for a brighter future but to demonstrate that life after a cancer diagnosis can be a reality. -daysoftheyear.com

🎉🎈𝐈𝐓'𝐒 CDH1ANDUS’ 2nd 𝐁𝐈𝐑𝐓𝐇𝐃𝐀𝐘!🎈🎉Two years ago I decided to create CDH1ANDUS with not only myself and my family in mind,...
05/16/2022

🎉🎈𝐈𝐓'𝐒 CDH1ANDUS’ 2nd 𝐁𝐈𝐑𝐓𝐇𝐃𝐀𝐘!🎈🎉

Two years ago I decided to create CDH1ANDUS with not only myself and my family in mind, but other marginalized groups (age, ethnicity, gender, type of cancer, etc) as well.

“Our” 1st birthday, we weren’t feeling well or up to celebrating but couldn’t let this one go by without acknowledging it!

05/09/2022

How my 9th dilation was different than the 1st eight (dilations). Plus a reminder to report any and all (chronic) constant reoccurring symptoms to your doctor ASAP

A day to reflect on:•those we’ve lost•those who are battling •those who are thriving when and as best they can Let’s not...
02/04/2022

A day to reflect on:
•those we’ve lost
•those who are battling
•those who are thriving when and as best they can

Let’s not forget that though it’s a day, cancer has been around for centuries, it isn’t developed in one’s body in one day and it’ll take the world, as a collective, to continuously fight the battle against cancer 24/7/365 💪🏽

𝐕𝐞𝐫𝐲 𝐢𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐭 𝐝𝐢𝐬𝐜𝐨𝐯𝐞𝐫𝐲🔁 ・・・Read the JAMA Surgery article to learn more at the link in their bio! Reference: Gamble et ...
01/12/2022

𝐕𝐞𝐫𝐲 𝐢𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐭 𝐝𝐢𝐬𝐜𝐨𝐯𝐞𝐫𝐲

🔁
・・・
Read the JAMA Surgery article to learn more at the link in their bio!

Reference: Gamble et al. JAMA Surg. 2021 Oct 13;e215118. PMID: 34643667.

The journey of:*Finding out your genetic risk or lack thereof can be stressful, scary and confusing 𝐃𝐨𝐧'𝐭 𝐠𝐨 𝐭𝐡𝐫𝐨𝐮𝐠𝐡 ...
01/12/2022

The journey of:

*Finding out your genetic risk or lack thereof can be stressful, scary and confusing
𝐃𝐨𝐧'𝐭 𝐠𝐨 𝐭𝐡𝐫𝐨𝐮𝐠𝐡 𝐭𝐡𝐞 𝐭𝐞𝐬𝐭𝐢𝐧𝐠 𝐨𝐫 𝐟𝐢𝐧𝐝𝐢𝐧𝐠 𝐨𝐮𝐭 𝐭𝐡𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬 𝐚𝐥𝐨𝐧𝐞. 𝐋𝐞𝐚𝐧 𝐨𝐧 𝐲𝐨𝐮𝐫 𝐥𝐨𝐯𝐞𝐝 𝐨𝐧𝐞𝐬 𝐨𝐫 𝐲𝐨𝐮𝐫 𝐡𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞 𝐭𝐞𝐚𝐦

*Going through all of the preliminary exams may be physically and/or emotionally taxing
𝐅𝐢𝐧𝐝 𝐰𝐚𝐲𝐬 𝐭𝐨 𝐝𝐞𝐜𝐨𝐦𝐩𝐫𝐞𝐬𝐬 𝐚𝐧𝐝 𝐛𝐫𝐢𝐧𝐠 𝐲𝐨𝐮𝐫𝐬𝐞𝐥𝐟 𝐣𝐨𝐲 𝐚𝐧𝐝 𝐩𝐫𝐚𝐭𝐢𝐜𝐞 𝐬𝐞𝐥𝐟 𝐠𝐫𝐚𝐜𝐞. 𝐓𝐚𝐤𝐞 𝐞𝐚𝐜𝐡 𝐞𝐱𝐚𝐦 𝐢𝐧 𝐬𝐭𝐫𝐢𝐝𝐞. 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐢𝐬 𝐚 𝐤𝐞𝐲 𝐜𝐨𝐦𝐩𝐨𝐧𝐞𝐧𝐭

*If you’re faced with making a long term or short term choice in recommended treatment, be it chemotherapy and/or a total gastrectomy
𝐑𝐞𝐦𝐞𝐦𝐛𝐞𝐫 𝐭𝐡𝐚𝐭 𝐭𝐡𝐞 𝐛𝐢𝐠𝐠𝐞𝐬𝐭 𝐫𝐢𝐬𝐤 𝐢𝐬 𝐭𝐡𝐞 𝐨𝐯𝐞𝐫𝐚𝐥𝐥 𝐭𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭 𝐛𝐮𝐭 𝐭𝐡𝐞 𝐛𝐢𝐠𝐠𝐞𝐬𝐭 𝐫𝐞𝐰𝐚𝐫𝐝 𝐜𝐚𝐧 𝐛𝐞 𝐦𝐚𝐧𝐲, 𝐦𝐚𝐧𝐲 𝐦𝐨𝐫𝐞 𝐛𝐢𝐫𝐭𝐡𝐝𝐚𝐲𝐬 𝐚𝐧𝐝 𝐚 𝐥𝐨𝐧𝐠𝐞𝐫 𝐥𝐢𝐟𝐞𝐬𝐩𝐚𝐧

*Don’t harp on anyone else’s good or bad journey. What may or may not happen to someone else, may or may not happen to you.
𝐉𝐮𝐬𝐭 𝐤𝐧𝐨𝐰 𝐭𝐡𝐚𝐭 𝐭𝐡𝐞𝐫𝐞 𝐚𝐫𝐞 𝐦𝐚𝐧𝐲 𝐫𝐞𝐨𝐮𝐫𝐜𝐞𝐬, 𝐨𝐫𝐠𝐚𝐧𝐮𝐳𝐚𝐭𝐢𝐨𝐧𝐬/𝐚𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐢𝐨𝐧𝐬, 𝐚𝐧𝐝 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐢𝐞𝐬 (𝐞𝐬𝐩𝐞𝐜𝐢𝐚𝐥𝐥𝐲 𝐡𝐞𝐫𝐞 𝐨𝐧 𝐈𝐆) 𝐭𝐡𝐚𝐭 𝐜𝐚𝐧 𝐛𝐞 𝐨𝐟 𝐠𝐫𝐞𝐚𝐭 𝐡𝐞𝐥𝐩 𝐢𝐧 𝐭𝐡𝐢𝐬 𝐣𝐨𝐮𝐫𝐧𝐞𝐲, 𝐟𝐫𝐨𝐦 𝐬𝐭𝐞𝐩 𝐨𝐧𝐞

🎊𝐇𝐚𝐩𝐩𝐲 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫!🎊With the onset of a new year comes, for most, new resolutions. Resolutions that includes new goals/vis...
01/12/2022

🎊𝐇𝐚𝐩𝐩𝐲 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫!🎊

With the onset of a new year comes, for most, new resolutions. Resolutions that includes new goals/visions and working towards a better physical life.

If being tested for the CDH1 gene has been something that you’ve repeatedly said, “I’ll do it next year”, and you’ve never made it happen—- I encourage you to make 2022 𝐓𝐇𝐄 𝐲𝐞𝐚𝐫 (whether you make resolutions or not)!

Gastric and Breast Cancer have been around for since ancient times.

The CDH1 genetic mutation wasn’t documented to be discovered until the 20th century.

Here in the 21st century, stomach related diagnoses are still on the rise, especially among those below the age of 50.

Total gastrectomies have been performed since the 19th century.

If you’ve put off getting genetic testing or….

For those of you who know your genetic status and have been informed that a total gastrectomy would be the best recommended course of treatment for you…

𝐌𝐚𝐤𝐞 2022 𝐭𝐡𝐞 𝐲𝐞𝐚𝐫 𝐭𝐡𝐚𝐭 𝐲𝐨𝐮 𝐭𝐚𝐤𝐞 𝐜𝐡𝐚𝐫𝐠𝐞 𝐨𝐟 𝐲𝐨𝐮𝐫 𝐩𝐡𝐲𝐬𝐢𝐥𝐨𝐠𝐢𝐜𝐚𝐥 𝐡𝐞𝐚𝐥𝐭𝐡!

What a coincidence that I took that photo, a year a go today, at MSKCC makes this post today! It was the opportunity of ...
11/11/2021

What a coincidence that I took that photo, a year a go today, at MSKCC makes this post today! It was the opportunity of a lifetime to help others. 🙏🏽
Repost
・・・
Ceji was only fifteen when her father died of . In 2019, it was confirmed that the disease runs in her family. A short time later, Ceji made the decision to undergo in order to understand what preventative measures she may need to take to live a long, happy life. For more on genetic testing, how it works, and all of the benefits that can come with it, visit the link in our bio and read Ceji’s story in Bridges, our newsletter for survivors.

This was me, on Wacky Sock Day, right before the shutdown. That’s what the kids remember; that I had a hurt leg. It was ...
10/27/2021

This was me, on Wacky Sock Day, right before the shutdown.

That’s what the kids remember; that I had a hurt leg. It was actually that I was recovering from my 1st foot surgery.

A foot surgery, that because I didn’t follow the doctor’s orders, caused me much longer to heal. Due to not healing, I couldn’t get cleared to work out, and I ended up being the biggest I’ve ever been.

(Another major blessing in disguise. Could you imagine me losing 70 pounds at my current size?!)

Now that I’m still seeing/reuniting with kids -in person- for the first time, since they were 2 grades “younger”, all they keep asking/saying is:

“Ms. Bridges! Is your leg (foot) better now?”

“Are you feeling better now?”

“Ms. Bridges, your curls are different.”

VS what some adults have said to me, after seeing me for the first time:

“Oh my gosh! You look so good now!”

“What diet did you go on?! I want to try it.”

“Now that you’ve lost all that weight, you might want to do something about that loose skin.”


𝐖𝐡𝐲 𝐢𝐬 𝐢𝐭 𝐭𝐫𝐢𝐜𝐤𝐲?Though invasive lobular carcinoma (ILC) is the second most common form of invasive breast cancer—accoun...
10/20/2021

𝐖𝐡𝐲 𝐢𝐬 𝐢𝐭 𝐭𝐫𝐢𝐜𝐤𝐲?

Though invasive lobular carcinoma (ILC) is the second most common form of invasive breast cancer—accounting for 10 to 15 percent of invasive breast cancer diagnoses and affecting nearly 40,000 people each year—it has unfortunately been understudied and misunderstood.
ILC, also known as lobular breast cancer, originates in the milk-producing glands of the breast and presents differently than other invasive breast cancers, making it more difficult to detect by traditional screening and self-exam.

Recent research has not only shown that ILC is its own distinct subtype of breast cancer, but also that it may not respond as well to standard treatments, recur later, and metastasize in unusual ways.

𝐒𝐲𝐦𝐩𝐭𝐨𝐦𝐬 𝐨𝐟 𝐋𝐨𝐛𝐮𝐥𝐚𝐫 𝐁𝐫𝐞𝐚𝐬𝐭 𝐂𝐚𝐧𝐜𝐞𝐫:

Symptoms might not be noticed, at first, but they can include:

* Thickening or hardening in the breast (rather than a distinct lump)

* An area of swelling or fullness

* A change to the texture of skin on breast or ni**le, like dimples or an irritated, red, or scaly area

* A ni**le that turns inward

* Pain in breast or ni**le

* Unusual ni**le discharge

* A lump located under the arm

𝐋𝐨𝐛𝐮𝐥𝐚𝐫 𝐁𝐫𝐞𝐚𝐬𝐭 𝐂𝐚𝐧𝐜𝐞𝐫 𝐂𝐚𝐮𝐬𝐞𝐬 𝐚𝐧𝐝 𝐑𝐢𝐬𝐤 𝐅𝐚𝐜𝐭𝐨𝐫𝐬:

Experts aren’t sure exactly what causes breast cancer. It happens when cells change and start to grow out of control.

Things that can make ILC more likely include:
* Age. Your risk goes up as you get older.

* Gender. Women who test positive for the CDH1 mutation is the only gender that could potentially develop ILC

* Lobular carcinoma in situ (LCIS)

* Use of combination estrogen-progestin hormone replacement therapy after menopause

* Hereditary diffuse gastric cancer syndrome (CDH1), a disorder passed down from your parents

𝐖𝐡𝐞𝐧 𝐢𝐭 𝐜𝐨𝐦𝐞𝐬 𝐭𝐨 𝐋𝐨𝐛𝐮𝐥𝐚𝐫 𝐁𝐫𝐞𝐚𝐬𝐭 𝐂𝐚𝐧𝐜𝐞𝐫, 𝐝𝐞𝐭𝐞𝐜𝐭𝐢𝐧𝐠 𝐢𝐭 𝐢𝐧 𝐢𝐭'𝐬 𝐞𝐚𝐫𝐥𝐢𝐞𝐬𝐭, 𝐦𝐨𝐬𝐭 𝐭𝐫𝐞𝐚𝐭𝐚𝐛𝐥𝐞 𝐬𝐭𝐚𝐠𝐞𝐬 𝐢𝐬 𝐢𝐦𝐩𝐞𝐫𝐚𝐭𝐢𝐯𝐞--𝐞𝐯𝐞𝐫𝐲 𝐝𝐚𝐲. 𝐀𝐬 𝐢𝐬 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐨𝐟 𝐋𝐨𝐛𝐮𝐥𝐚𝐫 𝐁𝐫𝐞𝐚𝐬𝐭 𝐂𝐚𝐧𝐜𝐞𝐫, 𝐥𝐢𝐤𝐞 𝐚𝐥𝐥 𝐛𝐫𝐞𝐚𝐬𝐭 𝐜𝐚𝐧𝐜𝐞𝐫𝐬, 𝐬𝐡𝐨𝐮𝐥𝐝 𝐛𝐞 𝐄𝐕𝐄𝐑𝐘𝐃𝐀𝐘!

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