EB Hope Foundation

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EB Hope Foundation

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Visit www.ebhope.org for more details. Most who suffer from EB are covered from head-to-toe in blisters, inside and outside of their bodies.

The EB Hope Foundation is a 501(c)3 nonprofit organization whose mission is to spread awareness about Epidermolysis Bullosa (EB), support EB organizations and families, and raise funds for research and treatments. Epidermolysis Bullosa (EB) is a rare genetic skin disease characterized by extremely fragile skin that blisters from minor friction or trauma. There is no cure for EB. Since 2008, the EB Hope Foundation has raised a total of over $300,000 to help financially support organizations committed to research and the care of EB patients and their families, including:
* Cincinnati Children's Hospital Medical Center - EB Center
* EB Research Partnership
* EB Medical Research Foundation (EBMRF)
* Dystrophic Epidermolysis Bullosa Research Association (debra) of America

In addition, the EB Hope Foundation has helped to spread great awareness about this widely unknown, debilitating skin disease. The EB Hope Foundation achieves its mission in a variety of ways. The Walk for EB is the primary program -- a free, family friendly fundraising and awareness event. Other efforts include speaking engagements and community events. We believe awareness about EB will change lives … awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure. Thank you for your support!

10/03/2026

Live music all day at the featuring The Dry Fork Ramblers with an opening performance by the Concrete Stallions Country Rock Band. Tomorrow, October 4 from 2-5pm at Kuliga Park. Details at www.ebhope.org/fallfest/

10/02/2026

History of the …
Along with her family and friends, Emily Beck started a Fall Fest in 2021 to feature the music students from her ETB Music and Fine Arts Center. She designated all donations and proceeds from the day’s activities to benefit the EB Hope Foundation.

With Emily’s continued leadership and help from her family and friends, the Fall Fest for EB is now hosted annually by the EB Hope Foundation. This year’s event is Sunday, October 4 from 2-5pm at Kuliga Park on the Westside of Cincinnati. Event Details at www.ebhope.org/fallfest

Extra Fun Fact…Emily was Carson’s piano teacher years ago and Kolbe continues to take drum lessons at Emily’s Etbmusic and Fine Arts Center.

09/30/2026

The Pumpkin Relay Race…Balloon Creations by Henry…and the Pumpkin Pie Eating Contest are just a few of the crowd favorites at the annual ! This Sunday, October 4 from 2-5PM at Kuliga Park. Event is free to attend. Donations accepted to benefit the EB Hope Foundation.
More info at: https://www.ebhope.org/fallfest/

09/23/2026

Less than 2 weeks until the on Sunday, October 4! The event runs from 2:00-5:00pm at Kuliga Park on the Westside of Cincinnati. Kids activities, Pumpkin relays, Fall Crafts, Pumpkin pie eating contest, Balloons Creations, Face painting, FREE Food and drinks and more! https://www.ebhope.org/fallfest/

09/17/2026

This year’s Fall Fest for EB is Sunday, October 4 from 2:00 - 5:00pm at Kuliga Park on the Westside of Cincinnati. Lots of fun for the whole family - food, kids games, fall crafts, live music, balloon creations and more! Donations to benefit the EB Hope Foundation. All the details at https://www.ebhope.org/fallfest/

08/18/2026

🌻 SAVE THE DATE! 🌻

SIPS IN SUNFLOWERS 2026

Get it on your calendar and tell your family and friends to do the same! 💛

Two amazing events. One beautiful fall weekend. One great cause!

📅 SEPTEMBER 25 & 26, 2026
📍 Burwinkel Farms

🍽️ Friday, September 25
Sips in Sunflowers Dinner
W**e & craft b**r • Delicious food • Live music • Silent auction • Sunsets in the sunflowers

🌻 Saturday, September 26
Sunset Sips in Sunflowers Hayride
Hayride • Sunflowers • Corn maze • Drinks • Sunset

✨ Join us for a special weekend supporting the EB Hope Foundation! ✨

🎟️ Tickets & full event details coming soon! 🌻

06/24/2026

One week to go for this year's Pedals for EB and Uncle Dan needs our help! Please consider supporting this year's campaign. Learn more at https://www.ebhope.org/pedalsforeb/

05/25/2026

Pedals for EB is BACK in 2026!!!
Dan Kuhlmann – aka “Uncle Dan” – is once again putting his cycling skills to work for EB Hope Foundation. After taking a year off in 2025, Uncle Dan is back this year taking on the Pedals for EB challenge. He’s set his sights on riding 400 miles in the month of June and raising $10,000 for the EB Hope Foundation!
The donation page is powered by GiveCentral, an online giving provider. Support Uncle Dan and the EB Hope Foundation at:
https://www.givecentral.org/customizable-online-giving/1455/event/43777

Address

PO Box 810
Miamitown, OH
45041

Website

http://www.EBhope.org/

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