The EB Hope Foundation is a 501(c)3 nonprofit organization whose mission is to spread awareness about Epidermolysis Bullosa (EB), support EB organizations and families, and raise funds for research and treatments. Epidermolysis Bullosa (EB) is a rare genetic skin disease characterized by extremely fragile skin that blisters from minor friction or trauma. There is no cure for EB. Since 2008, the EB
Hope Foundation has raised a total of over $300,000 to help financially support organizations committed to research and the care of EB patients and their families, including:
* Cincinnati Children's Hospital Medical Center - EB Center
* EB Research Partnership
* EB Medical Research Foundation (EBMRF)
* Dystrophic Epidermolysis Bullosa Research Association (debra) of America
In addition, the EB Hope Foundation has helped to spread great awareness about this widely unknown, debilitating skin disease. The EB Hope Foundation achieves its mission in a variety of ways. The Walk for EB is the primary program -- a free, family friendly fundraising and awareness event. Other efforts include speaking engagements and community events. We believe awareness about EB will change lives … awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure. Thank you for your support!
