EB Hope Foundation

EB Hope Foundation Visit www.ebhope.org for more details. Most who suffer from EB are covered from head-to-toe in blisters, inside and outside of their bodies.

The EB Hope Foundation is a 501(c)3 nonprofit organization whose mission is to spread awareness about Epidermolysis Bullosa (EB), support EB organizations and families, and raise funds for research and treatments. Epidermolysis Bullosa (EB) is a rare genetic skin disease characterized by extremely fragile skin that blisters from minor friction or trauma. There is no cure for EB. Since 2008, the EB

Hope Foundation has raised a total of over $300,000 to help financially support organizations committed to research and the care of EB patients and their families, including:
* Cincinnati Children's Hospital Medical Center - EB Center
* EB Research Partnership
* EB Medical Research Foundation (EBMRF)
* Dystrophic Epidermolysis Bullosa Research Association (debra) of America

In addition, the EB Hope Foundation has helped to spread great awareness about this widely unknown, debilitating skin disease. The EB Hope Foundation achieves its mission in a variety of ways. The Walk for EB is the primary program -- a free, family friendly fundraising and awareness event. Other efforts include speaking engagements and community events. We believe awareness about EB will change lives … awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure. Thank you for your support!

Rock Academy Westwood onstage at the !
10/05/2025

Rock Academy Westwood onstage at the !

10/05/2025

Cowboys Country Rock Band on stage now at the !
10/05/2025

Cowboys Country Rock Band on stage now at the !

is today! The fun starts at 12noon and goes until 3pm at Kuliga Park on the Westside of Cincinnati. Free to attend, bu...
10/05/2025

is today! The fun starts at 12noon and goes until 3pm at Kuliga Park on the Westside of Cincinnati. Free to attend, but donations accepted to benefit the EB Hope Foundation.
Donations can be made at the event, online at www.ebhope.org/fallfest/ or via Venmo (search for in the charity listings).

The Pumpkin Pie Eating Contest at the ...a chance for the kids (and brave adults) to show their eating skills! This yea...
10/04/2025

The Pumpkin Pie Eating Contest at the ...a chance for the kids (and brave adults) to show their eating skills! This year's contest will take place around 2pm at the event. More info about the Fall Fest for EB at https://www.ebhope.org/fallfest/

Excited to have Carson's great friend, Henry, with TwistyTopper's Balloon Creations at the on Sunday, October 5! Henry...
10/04/2025

Excited to have Carson's great friend, Henry, with TwistyTopper's Balloon Creations at the on Sunday, October 5! Henry has some amazing creations and brings lots of joy to the little ones at the event. Details about this year's Fall Fest for EB are at https://www.ebhope.org/fallfest/

History of the ...Along with her family and friends, Emily Beck started a Fall Fest in 2021 to feature the music studen...
10/04/2025

History of the ...Along with her family and friends, Emily Beck started a Fall Fest in 2021 to feature the music students from her ETB Music and Fine Arts Center. She designated all donations and proceeds from the day’s activities to benefit the EB Hope Foundation.

With Emily’s continued leadership and help from her family and friends, last year’s fall fest was the first official year for the event to be presented by the EB Hope Foundation. The event continues to raise thousands to provide support to EB organizations and EB families. Info about this year's event is at https://www.ebhope.org/fallfest/

The Pumpkin Relay Race is always a kid-favorite activity at the ! This year's event is Sunday, October 5 from 12noon-3p...
10/04/2025

The Pumpkin Relay Race is always a kid-favorite activity at the ! This year's event is Sunday, October 5 from 12noon-3pm at Kuliga Park. More info at https://www.ebhope.org/fallfest/

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PO Box 810
Miamitown, OH
45041

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