Not These Ovaries

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An ovarian cancer nonprofit working to quickly fund research and trials.

10/16/2026

“It’s probably stress.” “Let’s wait and see.” If you’ve heard these, you’re not alone.

Try these at your next appointment: What else could this be? Which tests would rule out something serious? Can you note in my chart that I raised this concern?

Asking questions isn’t being difficult. It’s being your own best advocate. Save this for your next visit and send it to someone who needs it.

10/14/2026

She was 26, played adult-league ice hockey, and kept getting sent home. One doctor suggested she find a less stressful job. Another handed her Gas-X. It took a middle-of-the-night collapse and a 12-hour ER wait before an ultrasound tech spotted the mass.

Abbey Dufoe’s diagnosis, a borderline ovarian tumor, put her in a space many patients know all too well: not quite healthy, not quite what people picture when they hear “cancer.” Seven years on, she lives scan to scan, and she’s still advocating for herself and others.

Her story is worth a read, especially if you’ve ever been told it’s “probably nothing”: https://www.nottheseovaries.org/abbey-dufoe/

10/12/2026

Chemo has a schedule. Surgery has a date on the calendar. But what comes after? For many women with ovarian cancer, maintenance therapy is the part of treatment nobody explains well. It can last months or even years, and the right approach depends on your tumor, not on what works for the average patient.

Our new guide covers how maintenance therapy works, why testing comes first, how low-grade serous and borderline tumors differ, and the questions worth bringing to your next appointment. Ask early, ask specifically, and speak up when something feels off.

https://www.nottheseovaries.org/ovarian-cancer-maintenance-therapy/

10/09/2026

Every ovarian cancer treatment offered today was once tested in a clinical trial, made possible by women who volunteered to try it first.

Still, many patients hesitate to consider a trial, often because of one fear: getting a placebo instead of real treatment. In ovarian cancer trials, that's rarely how it works. Participants in control groups typically receive at least the standard of care, so everyone is actively treated.

Trials can also open the door to therapies not yet available elsewhere, including new targeted treatments and immunotherapies, along with closer monitoring from a dedicated team of specialists. Experimental treatments are often provided free or at reduced cost, and extra visits are frequently covered.

Because most women with advanced ovarian cancer experience a recurrence within three years, it's worth asking about trials early, including at first recurrence, alongside other treatment planning. Start the conversation with your gynecologic oncologist, or search ClinicalTrials.gov by diagnosis, stage, and location.

Joining a trial is a personal decision, and there's no wrong answer. Participation is always voluntary, and you can leave at any time.

10/07/2026

"Resistant" is one of the hardest words to hear in an oncologist's office. It sounds like a door closing.

It isn't. Platinum resistance describes timing: how long your cancer stayed away after your last dose of carboplatin or cisplatin. That number helps your care team decide what to try next, and the options on that list look very different than they did just three years ago.

Our new guide explains what "platinum resistant" and "platinum sensitive" actually mean, why the six-month rule doctors have relied on for decades is starting to blur, and the questions worth bringing to your next appointment. Because the first answer you're given doesn't have to be the last word.

https://www.nottheseovaries.org/platinum-resistant-ovarian-cancer/

10/05/2026

There is no routine screening test for ovarian cancer. Not a Pap smear, not a blood test, not a scan. So how do you protect yourself from a disease that often goes unnoticed until it's advanced?

It starts with understanding your own risk. Some factors, like age and family history, are out of your hands. Others, like reproductive history and lifestyle, are more within your influence. And some may surprise you: certain types of ovarian cancer tend to appear in women far younger than most people expect.

Only about 20% of ovarian cancers are found at an early stage. When they are, about 94% of patients live longer than five years. Closing that gap means listening to our bodies, speaking up when something feels off, and funding research for better early detection.

Here's what every woman should know about her risk: https://www.nottheseovaries.org/ovarian-cancer-risk-factors/

10/02/2026

You finished treatment. The appointments thinned out. Everyone assumes you've bounced back. But you're still exhausted, and it's not the kind of tired a good night's sleep fixes.

You're not imagining it. A 2025 analysis of nine studies found that cancer-related fatigue affects roughly 77% of ovarian cancer patients. It's a recognized medical problem, and it can linger for months after the last chemo cycle. For about 1 in 4 survivors of gynecologic cancers, it becomes long-term.

What the research says helps:
🔹 Gentle movement, even a ten-minute walk, which is one of the best-supported treatments
🔹 Pacing yourself by planning around your energy instead of pushing through
🔹 Treating poor sleep, anxiety, and low mood as medical issues, because they're treatable
🔹 Asking your care team to check for fixable causes like anemia, thyroid problems, or menopause symptoms
🔹 Leaning on people who understand, since social support is protective

No blood test measures fatigue, so your own description is what counts. Tell your team when it started, how it's changed, and what it keeps you from doing. Then keep bringing it up until someone looks for the cause.

10/01/2026

More than 60% of U.S. counties have no gynecologic oncologist in the county or next door. For patients who live there, the right specialist can be a long drive, or a flight, away.

Our new guide looks at what telehealth can and can't do in ovarian cancer care, from second opinions to side effect check-ins, and why the people who could benefit most are often the least likely to be offered it. It also includes a checklist for walking into your first virtual visit prepared.

Read the guide: https://www.nottheseovaries.org/telehealth-for-ovarian-cancer/

09/25/2026

A normal Pap smear tells you nothing about your ovaries. A clean family history doesn't protect you either.

In one study, only 5.1% of women correctly identified the most common ovarian cancer myths as false. Ovarian cancer has no reliable screening test for women at average risk, so what you believe about this disease can decide how early it gets caught. When it's found early, five-year survival is nearly 92%. After it spreads, it drops to about 32%.

We looked at 11 of the most persistent myths, from the "silent killer" label to the idea that only older women are at risk, and at what the evidence actually shows.

https://www.nottheseovaries.org/ovarian-cancer-myths/

09/24/2026

“Why won’t this bloating go away?”

Three weeks later. “Why do I feel full after two bites?”

Month five. “Is it an ovarian cyst?”

Month nine. “Am I being dramatic?”

Month fourteen. “Doctor doesn’t believe me, what do I do?”

Somewhere in year three, she finally typed the words that came back with an answer.

Most women with rare ovarian cancers spend a long time searching before anyone gives them the right term to search for. We built our site so those searches land somewhere useful: plain answers, no signup, no upsell.

If you’re the one typing right now: start here. You’re not being dramatic. Learn more at https://www.nottheseovaries.org/.

Address

411 Walnut Street, Suite 8863
Miami, FL
32043

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+17868141700

Website

https://www.nottheseovaries.org/

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