Glioblastoma Research Organization

Glioblastoma Research Organization 501(c)3 nonprofit organization raising awareness and funds for glioblastoma research.

The Glioblastoma Research Organization is a 501(c)(3) nonprofit organization raising awareness and funds for cutting-edge research to find a cure for Glioblastoma, a rare malignant, fast-growing tumor affecting the brain or spine. The organization was established in 2018 and, to date, has provided support to doctors and researchers through eight fully funded projects, donating over $425,000 in the

last few years. For more information about the organization, funding and partners, please visit www.gbmresearch.org/.

Today we honor the life and legacy of Professor Richard Scolyer AO.Professor Scolyer was a pioneering pathologist, resea...
06/08/2026

Today we honor the life and legacy of Professor Richard Scolyer AO.

Professor Scolyer was a pioneering pathologist, researcher, mentor, and advocate whose work helped transform melanoma care and save countless lives. As Co-Medical Director of Melanoma Institute Australia, he helped shape advances in research, diagnosis, and treatment that changed outcomes for patients around the world.

One of the country's most respected medical minds, Professor Scolyer became a national treasure. In 2024, he was named Australian of the Year alongside Professor Georgina Long. Their work on advanced melanoma, once considered a death sentence, has saved countless lives, and the encouraging findings from treating Professor Scolyer's brain tumour have helped trigger an early-stage clinical trial in the United States.

After being diagnosed with glioblastoma in 2023, Professor Scolyer chose to face his own illness with extraordinary courage and generosity. Drawing from melanoma research breakthroughs, he became the world’s first brain cancer patient to receive pre-surgery combination immunotherapy, helping open new conversations around what may be possible in brain cancer treatment.

He also shared his journey publicly, giving hope, insight, and visibility to a disease that urgently needs more awareness and progress. In doing so, he continued to contribute to the future of cancer research, even in the face of his own diagnosis.

We extend our deepest condolences to his family, loved ones, colleagues, and all those impacted by his passing. His legacy will live on through the lives he changed, the science he advanced, and the hope he gave to so many.

Rest in peace, Professor Richard Scolyer.

Research takes time and for good reason.Every breakthrough moves through multiple stages and each step has to be proven ...
06/08/2026

Research takes time and for good reason.

Every breakthrough moves through multiple stages and each step has to be proven and validated.

Treatments must be safe, effective, and proven through data.

At the Glioblastoma Research Organization, we support projects that can meaningfully advance how GBM is detected, treated, and understood, because what we fund shapes what moves forward.

Every study. Every trial. Every data point. Brings us closer to better options for patients. 🩶

Today, June 7, we recognize National Cancer Survivors Day. 🩶For the glioblastoma community, survivorship is not one stor...
06/07/2026

Today, June 7, we recognize National Cancer Survivors Day. 🩶

For the glioblastoma community, survivorship is not one story, it’s many. It’s strength, resilience, and courage in the face of one of the most aggressive cancers. It’s showing up, every day, in ways big and small.

To those living with GBM, navigating treatment, in remission, or carrying this experience with them, we see you. We honor you.

And to the families, caregivers, and loved ones who stand beside them, your strength matters too.

If you’d like to learn more, support research, or get involved, visit the link below:
🔗https://www.gbmresearch.org/

Brain Bytes 🧠✨In this post, we’re breaking down why swelling happens in glioblastoma, and why it matters.As you’ll see, ...
06/06/2026

Brain Bytes 🧠✨

In this post, we’re breaking down why swelling happens in glioblastoma, and why it matters.

As you’ll see, GBM grows in the brain, a space that can’t expand. This can lead to fluid buildup (edema), causing swelling and increased pressure.

That pressure can affect how the brain works and lead to symptoms.

Our goal with this series is to make complex topics like this easier to understand, one concept at a time.

Save this for later, follow along, and let us know what you want us to explain next. 🤍

Source: NIH
🔗 https://www.cancer.gov/types/brain/patient/adult-brain-treatment-pdq

Awareness doesn’t end in May. 🩶Brain Tumor Awareness Month may be over, but the work continues every day for patients, c...
06/06/2026

Awareness doesn’t end in May. 🩶

Brain Tumor Awareness Month may be over, but the work continues every day for patients, caregivers, families, researchers, and everyone impacted by glioblastoma.

Thank you to every person who showed up throughout May: everyone who donated, shared, fundraised, attended an event, honored a loved one, supported a collaboration, or helped bring more awareness to GBM.

Your support helped turn awareness into action, and that momentum matters.

As we move into June, we’re carrying this mission forward with the same urgency: funding research, raising awareness, and pushing for better answers, better treatments, and more hope.

Thank you for standing with the GBM community. Let’s keep going. 🩶

Research update 🧠We are proud to share we have received acceptance  for the first Key LARGO baseline paper reporting on ...
06/05/2026

Research update 🧠

We are proud to share we have received acceptance for the first Key LARGO baseline paper reporting on the first year of enrollment in The Glioblastoma BioBank Project in Neuro-Oncology Practice.

Formally known as Key LARGO, The Glioblastoma BioBank Project is a global study designed to better understand glioblastoma by collecting biological samples and detailed surveys from people impacted by GBM.

This publication marks an important milestone for the project, helping share early progress with the broader neuro-oncology community and strengthening the foundation for future research.

We’re grateful to everyone helping move this work forward and remain committed to supporting research that can lead to better understanding, better answers, and more hope for those impacted by glioblastoma.

The Glioblastoma BioBank Project is co-funded by the GBMRO and StacheStrong.

Enrollment is still open for eligible patients. To learn more, visit the link in our bio and go to The Glioblastoma BioBank Project on our website.

Enrollment is still open for eligible patients. To learn more, visit the following link:
🔗 https://www.gbmresearch.org/our-projects/the-glioblastoma-biobank-project

12,000 a year.About 32 every day.But numbers don’t tell the full story.Each one is a person. A family. A life that chang...
06/05/2026

12,000 a year.
About 32 every day.

But numbers don’t tell the full story.

Each one is a person. A family. A life that changes instantly.

This is the reality behind the numbers.

Learn more. Share this. Start the conversation. Because awareness is where change begins.

Source: Barrow Neurological Institute
🔗 https://www.barrowneuro.org/condition/glioblastoma-multiforme/

Interested in running the Tokyo Marathon with the GBMRO? 🏃‍♀️🩶We only have 2 spots left for runners to join the Glioblas...
06/04/2026

Interested in running the Tokyo Marathon with the GBMRO? 🏃‍♀️🩶

We only have 2 spots left for runners to join the Glioblastoma Research Organization and help turn every mile into support for critical GBM research.

By running with GBMRO, you’ll help raise awareness for glioblastoma while supporting our mission to fund research for better answers, better treatments, and more hope.

Interested in learning more? Email [email protected] to claim one of the final spots.

  | This week’s Glioblastoma-related term is Bevacizumab (Avastin)Bevacizumab is a cancer therapy designed to target VEG...
06/04/2026

| This week’s Glioblastoma-related term is Bevacizumab (Avastin)

Bevacizumab is a cancer therapy designed to target VEGF, a protein involved in angiogenesis, the process of forming new blood vessels. Tumors can use this process to help build the blood supply they need to grow and survive.

In glioblastoma care, bevacizumab may be used in certain cases, often when the tumor returns after prior treatment. Rather than attacking the tumor directly like traditional chemotherapy, it works by interfering with the tumor’s ability to form new blood vessels. This may help reduce swelling and support symptom management for some patients.

Source: NIH

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