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ICP Care

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501(c)(3) nonprofit to provide patient support, education, raise awareness, and support research.

Dedicated to supporting pregnant women with the rare liver disease Intrahepatic Cholestasis of Pregnancy to have healthy happy babies. ICP Care 501(c)(3) charity's mission is is to provide patient support and education, raise public awareness, support the advancement of research and improve health care practices. ICP Care helps to connect, support, educate and empower those affected by ICP – Intrahepatic Cholestasis of Pregnancy. This high risk pregnancy condition with often the only symptom noticed is itching. ICP carries an increased risk of fetal distress, meconium staining, preterm labor and stillbirth. Please help us raise ICP awareness and “Follow” our page & share this page with friends, family and health care professionals. Visit the website for evidence based information on symptoms, diagnosis, treatment and educational brochures for both patients and healthcare providers.

10/13/2026

💔 “There is no heartbeat.” Words no parent should ever have to hear.

The ICP Faces of Loss — this is a high risk pregnancy with the devastating risk of stillbirth.

Each of our ICP warriors lived through the loss of their loved baby. Every baby is forever loved, deeply missed, and never forgotten.

-Aireen’s first pregnancy with her daughter Laylee Joy passed away at 36 in 2020.
-Amparo’s fourth pregnancy with her son Kian passed away at 33 weeks in 2016.
-Emily’s first pregnancy with her daughter Addison passesd away three days after birth in 2013.
-Donna’s first pregnancy with her son Jorden passed away at 37 weeks & 5 days in 2003.

Each of these precious babies is forever loved and deeply missed. Their stories remind us why awareness, education, and stillbirth prevention are so important.

Know the Symptoms of ICP:
• Moderate to intense itching, often without a rash
• Right upper abdominal pain
• Dark urine or pale stools

ICP is a liver condition that can pose serious risks to an unborn baby, including stillbirth. Don't ignore itching during pregnancy. Contact your healthcare provider and ask about blood test, including bile acids.

Help ICP Care educate families, support those affected, and advance stillbirth prevention.

Learn more and support our mission:
https://icpcare.org/event/october-pregnancy-and-infant-awareness-month/

Every story matters. Every baby matters. Awareness can save lives.

10/10/2026

October 10th is World Mental Health Day. 1 in 5 women around the world will suffer from a maternal mental health complication. Perinatal Mood and Anxiety Disorders (PMAD) include postpartum depression, postpartum anxiety, postpartum obsessive compulsive disorder, postpartum bipolar, and postpartum psychosis. Anyone can be at risk for these disorders whether you have had previous mental health issues in the past. Experiencing a miscarriage, stillbirth, babies in the NICU, and high risk pregnancy conditions increases the risk of developing PMAD.

This World Mental Health Day individuals are called to speak out about their lived experiences. If you have or have had ICP and have experienced PMAD, please consider sharing your story here: https://docs.google.com/forms/d/e/1FAIpQLSduUNIwSTtofyOR6Bz-zya1qx3FqQPeAEw30SdkYHaHf7J_Cg/viewform

10/08/2026

Why do we need the ICP Care Patient Registry?

Because ICP is rare, researchers need data from many patients to better understand the condition, improve care, and help prevent complications in future pregnancies.

By sharing your pregnancy experience and filling out the surveys, your voice can help shape the future of ICP care.

Participation is voluntary, secure, and open internationally. Your information is kept confidential, and data shared with researchers is de-identified.
Add your voice. Help advance research. Help improve care.

Join the ICP Care Patient Registry today:
ICP Care Patient Registry https://icpcare.org/icp-community/patient-registry

https://icpcare.org/icp-community/patient-registry

10/06/2026

October is Pregnancy & Infant Loss Awareness Month.

Today, we are honored to share a powerful story of loss, resilience, and hope.

Twenty-nine years ago, her mother was pregnant with twins. She didn’t know she had ICP, and sadly, her twin sister passed away in the womb. Years later, her family learned that ICP was connected to the loss.

Twenty-nine years later, at 25 years old, she became pregnant with her first baby — never knowing that she, too, could experience ICP.

She began experiencing unbearable itching, especially on her hands and feet. After testing her bile acids, she was diagnosed with Intrahepatic Cholestasis of Pregnancy (ICP).

Knowing her family history made the diagnosis even more terrifying. She spent her pregnancy facing constant monitoring, sleepless nights, fear, and eventually an early induction due to the risks associated with ICP.

But after everything she endured, she finally held her baby in her arms.

She says:

“It was worth every itch. Every sleepless night, every tear, every fear, and every painful moment was worth it when I finally held my baby in my arms.”

She is sharing her story so that another mom experiencing these symptoms knows she is not alone.

If you are pregnant and experiencing intense itching, especially on your hands or feet, please talk to your healthcare provider and ask about ICP and bile acid testing.

Thank you for sharing your story and helping us raise awareness about ICP and the families whose lives have been forever impacted by it.

10/01/2026

October is Pregnancy and Infant Loss Awareness Month.

At ICP Care, we remember and honor every precious baby whose life was lost, and we hold their families close in our hearts. There are no words that can erase the pain of loss, but you are not alone. Our ICP Care community stands with you in remembrance, love, and support.

Intrahepatic Cholestasis of Pregnancy (ICP) can carry a devastating risk when not properly recognized and managed: stillbirth.

One of the most common symptoms of ICP is moderate to severe itching during pregnancy, often without a rash. Itching in pregnancy should never be ignored. Talk to your healthcare provider about your symptoms and ask about ICP.

Know the signs.
Speak up about the itch.
Help spread awareness.

This month, help us honor the babies we have lost by sharing lifesaving information with someone who may need it.

Together, we can raise awareness, support families, and work toward a future where fewer families experience the heartbreak of pregnancy loss. Fight the itch. Save a life.

Learn more about ICP and Pregnancy & Infant Loss Awareness Month — link in bio.
https://icpcare.org/event/october-pregnancy-and-infant-awareness-month/

09/30/2026

Having ICP is NOT your fault.

You didn’t cause it, and you’re not alone. ICP is a pregnancy-related liver disorder that deserves awareness, proper care, and support.

It’s not your fault. You are not alone.

09/24/2026

Itching during pregnancy? Listen to your body

Intense itching—especially on the **palms of your hands and soles of your feet, and often without a rash—can be a symptom of **Intrahepatic Cholestasis of Pregnancy (ICP).

ICP is more than an uncomfortable pregnancy symptom. Recognizing the signs and getting the appropriate testing can help protect moms and babies.

If you’re experiencing persistent or unusual itching during pregnancy, talk to your healthcare provider and ask about bile acid testing.

✨ Know the symptoms.
✨ Ask questions.
✨ Advocate for yourself and your baby.

Fight the itch. Save a life.

Share this Reel with an expecting mom. Awareness matters.

Learn more, find evidence-based resources, and get support at icpcare.org

09/22/2026

Itching during pregnancy isn’t always just part of pregnancy.

Intense itching—especially without a rash—can be a warning sign of Intrahepatic Cholestasis of Pregnancy (ICP), a liver disorder that can increase risks for both mom and baby.

Knowing the signs and asking for the right testing can make a difference.

If you’re experiencing persistent itching during pregnancy, talk to your healthcare provider and ask about bile acid testing and liver function tests.

Your symptoms deserve to be heard. Your baby deserves to be protected.

Fight the itch. Save a life.

For more information, resources, and support, visit icpcare.org

📲 Save this post and share it with an expecting mom—you never know who may need to see it.

09/19/2026

Today is National Stillbirth and Prevention Awareness Day. ICP Care remembers and honors all of the babies lost to stillbirth today.

ICP Care is dedicated to protecting pregnancies, families, and their unborn babies from Intrahepatic Cholestasis of Pregnancy (ICP) through raising awareness and encouraging advocacy for moms and their health care providers.

We can prevent stillbirth by continuing to shine a light on this condition in sharing our stories, being a support to one another, and promoting research. Consider sharing your story with ICP Care.

https://icpcare.org/icp-community/pregnancy-stories/

Fight the Itch. Save a Life.
•

09/17/2026

FREE ICP CARE EDUCATIONAL BROCHURES ARE AVAILABLE!

Whether you’re newly diagnosed with Intrahepatic Cholestasis of Pregnancy (ICP) or a healthcare provider caring for someone who has experienced ICP, having reliable information matters.

ICP Care offers two FREE educational brochures and infographics, available to order in packages of 15:

1. Intrahepatic Cholestasis of Pregnancy — Patient Brochure
A helpful guide covering ICP symptoms, diagnosis, treatment, pregnancy management, and important long-term health considerations.

2. Considerations After an ICP Pregnancy — Healthcare Provider Brochure
A resource for healthcare providers covering future health risks, conditions associated with ICP, and considerations for follow-up and screening after pregnancy.

3. ICP Infographics - A one-page visual graphic containing clickable links to facts and information regarding Intrahepatic Cholestasis of Pregnancy.

Order your FREE brochures today:
https://icpcare.org/shop

Share this post with someone who could benefit from these resources.

ICP Care — Connect. Support. Educate. Empower.

Address

500 NW 2nd Avenue #12896
Miami, FL
33101

Opening Hours

Monday	9am - 7pm
Tuesday	9am - 7pm
Wednesday	9am - 7pm
Thursday	9am - 7pm
Friday	9am - 7pm
Saturday	9am - 5pm
Sunday	9am - 5pm

Telephone

+13205669427

Website

https://icpcare.org/

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