Olivia's Heart

Olivia's Heart RSVP to our event: http://www.facebook.com/event.php?eid=253609301335907 It is the recovery between surgeries, or interstage care, that is the most difficult.

At 36 weeks into her pregnancy, Melanie is going to go up to Philadelphia to wait for her daughter Olivia's arrival. Olivia has been diagnosed with Hypoplastic Left Heart Syndrome (HLHS) so she will be facing her first open heart surgery at 5 days old. After surgery, Brett and Melanie, will have to work dilligently to weigh, and measure everything to get her weight up for her second open heart sur

gery at 6 months. Finally with her 3rd surgery at 3 years old, Olivia will finally have a chance to start living a normal life and running around like a normal kid. Brett and Melanie expect to spend almost 2 months in Philadelphia for the first surgery, and two or three weeks for the second surgery. After each surgery the HLHS child gets more oxygen in their blood and do better and better. Since HLHS babies rely more on their lungs, simple colds or congestion can be fatal.

Vote for Olivia to win the 2013 HLHS Costume Contest, click on the photo and then like it.
11/05/2013

Vote for Olivia to win the 2013 HLHS Costume Contest, click on the photo and then like it.

Olivia
2 Years

07/15/2013

When I first started participating in social media, my goal was to share ideas and network with other individuals.  While that is still one of my primary goals, today I would like to try and do something else that will have a positive impact on the lives of others in need.

08/25/2011

Olivia's Heart on WWL Medical Report Tonight for 5PM News with Meg Farris!!! (Channel 3 or 4)

08/17/2011

We twittered some Saints and Hornets players in hopes some of them might come to the event or retweet to their followers. Maybe even send in a cool auction item. After all the saints will be 1-0 the night of the fundraiser.

08/16/2011

August 29 - 31st we will go to Children's of Philadelphia for a whirlwind of appointments all day long on Aug 30th. We will finally find out how bad her HLHS is. HLHS is a syndrome so there are different things that make up the syndrome. So fr all we know is her left ventricle is so small it is basically non-existent (which puts it on the worse side). We hope to find out more when we go. Just trying to find a hotel not on the bedbug registry, lol.

We are trying to help with meals for Brett, Nathan, and Delilia when Melanie is out of town. Join the Meal Train!
08/14/2011

We are trying to help with meals for Brett, Nathan, and Delilia when Melanie is out of town. Join the Meal Train!

A meal train has been created for Brett and Melanie Williams. meal Train simplifies the process of giving and receiving meals. Be the first to contribute!

08/10/2011

Hi everyone, we are really in need of some great food donations. If you know anyone who owns a restaurant and would like to donate a tray or two of food, or some dessert trays, please let us know. Thanks!

08/06/2011

Tentative band lineup, all of these bands have confirmed, i'm crazy excited:
Imaginary Frenz at the Patron Party 6:30 - 7:30
Wiseguys 7:30 - 8:30
Louisiana Spice 8:30 - 9:30
Hot 8 Brass Band 9:30 - 10:30
Weathered 10:30 - 11:30

08/05/2011

Melanie wrote many state representatives about CHD and HLHS awareness. Dan Claitor responded, "I like your idea about the Congenital Heart Day in Louisiana. I already have that in the works for you and Olivia, your family and others in
the same boat. It's a great idea and something I can actually do."

08/04/2011

Wiseguys are confirmed. Waiting on Louisiana Spice, Hot 8 Brass Band, and Mixed Nuts

08/04/2011

The American Heart Association directs only $0.30 of every dollar toward research. The remainder goes toward administration, education and fundraising. Of the $0.30 that goes to research only $0.01 goes toward pediatric cardiology for CHD. This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Out of the 40,000 CHD babies born a year 4-8% born with CHD have Hypoplastic Left Heart Syndrome. Source: Children’s Heart Foundation.

08/04/2011

Hi everyone, we need auction items, food and liquor donations for the fundraiser in september. Please forward this information to anyone you think may be able to help. You can also post any ideas you have to help spread the word. Thank you all!

Address

Metairie, LA
70002

Alerts

Be the first to know and let us send you an email when Olivia's Heart posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Olivia's Heart:

Share