Emily's Entourage

Directions Website Contact the organization

Emily's Entourage It started as a small-scale fundraiser for a local cystic fibrosis stair climb by a group of people who love Emily and are desperate for a CF cure.

Emily's Entourage is an innovative 501(c)3 organization that accelerates research for individuals in the final 10% of the cystic fibrosis population that do not benefit from existing mutation-targeted therapies. It didn’t take long to realize that traditional fundraising efforts could only go so far. To really make an impact, it takes a community of people with a common goal. That’s where Emily’s Entourage comes in. Emily’s Entourage is made up of people who have had enough of this deadly disease. Join our team as we take a stand against CF. Together, we can make a difference.

💜 For 90% of the cystic fibrosis community, groundbreaking treatments have transformed lives. But for the final 10%, the...
10/14/2026

💜 For 90% of the cystic fibrosis community, groundbreaking treatments have transformed lives. But for the final 10%, the breakthrough they're waiting for has yet to come.

We're honored to see Emily's Entourage featured in CNBC Cures, spotlighting the urgent need for lifesaving therapies for those still left behind.

Through Emily’s personal story, the feature underscores the urgency of our mission and the critical need to accelerate lifesaving breakthroughs for the final 10% of the CF community.

As Emily shared, “We don’t have time to wait.”

A heartfelt thank you to CNBC and reporter Gerry Smith , Brad Quick , and Becky Quick for amplifying the voices of the final 10% and shining a light on why our work is far from over.

📖 Read the full feature today: https://cnb.cx/4jl89i2

10/13/2026

Paula is a valued member of the EE community, and we’re so grateful for her leadership as we plan for an unforgettable evening on Thursday, October 22, 2026, at the Fairmount Park Horticulture Center.

Together, we’ll celebrate the progress we’ve made, connect with our incredible community, and look ahead to what’s possible for the final 10%.

We hope you’ll join Paula and the EE community for a night to remember! 🥂

🎟️ Get your tickets today: https://www.emilysentourage.org/phillygala26/

Hello from Atlanta! 👋🎉 Emily’s Entourage is on the ground at , and our team is eager to connect with the incredible c...
10/09/2026

Hello from Atlanta! 👋🎉

Emily’s Entourage is on the ground at , and our team is eager to connect with the incredible community!

From research funding and clinical trial initiatives to CF Clinical Trial Connect (CTC) and opportunities for collaboration, there’s plenty to talk about.

How can you spot us? Look for our pins: “100% or Bust!” And we mean it. 💜

If you see us around the conference, stop by and say hi! We’d love to connect and share how we’re working to accelerate lifesaving breakthroughs for the final 10% of people with .

10/09/2026

We're excited to have Evan Benn joining us for the 2026 Emily’s Entourage Gala!

On Thursday, October 22, we'll gather at the beautiful Fairmount Park Horticulture Center for an unforgettable evening celebrating the progress we've made and the breakthroughs still urgently needed.

Together, we're building momentum toward a future where everyone with CF has a lifesaving therapy.

✨ Join Evan and the EE community for an evening filled with connection and purpose!

🎟️ Get your tickets today: http://emilysentourage.org/phillygala26

🌱✨ Real progress happens when bold ideas are met with bold support. We're proud to recognize our 2026 Purple Level Spons...
10/08/2026

🌱✨ Real progress happens when bold ideas are met with bold support.
We're proud to recognize our 2026 Purple Level Sponsors of the Emily's Entourage Gala:

•Anagram Therapeutics
• Arcturus Therapeutics
• Eisenberg Winkler Jeck Schwartz Schoenhaus & Sherry, P.C.
• J. Cohen CPAs & Advisors
• Lovely Bride Philadelphia
• Nestlé Health Science
• Saddlehill Foundation
• Sionna Therapeutics
• Tito's Handmade Vodka
• Wawa

Their steadfast support helps to create a future where everyone with has a lifesaving therapy of their own. There are no words to express the depths of our gratitude. 💜

We’re honored to share that Emily’s Entourage has been nominated by a member of our community and selected as one of thr...
10/07/2026

We’re honored to share that Emily’s Entourage has been nominated by a member of our community and selected as one of three featured organizations in GEN3 Electric & HVAC’s October GEN3 Cares campaign! The organization with the most votes wins a $1,000 donation.

At Emily’s Entourage, we accelerate research and drug development for the final 10% of the cystic fibrosis community who do not benefit from existing mutation-targeted therapies. Being part of GEN3 Cares is an opportunity to raise awareness, rally our community, and bring even more momentum to the urgent need for lifesaving breakthroughs.

Cast your vote today: https://generation3electric.com/vote

10/05/2026

✨ A little BTS from the home of the 2026 Emily’s Entourage Gala.

We’re getting things ready at the Fairmount Park Horticulture Center and trust us, you’re going to want to see what we have planned.

From the beautiful greenhouse to the details coming together behind the scenes, this year’s Gala is shaping up to be a spectacular night to remember.

📅 Thursday, October 22, 2026
🎟️ Tickets are available here: https://www.emilysentourage.org/phillygala26/

We can’t wait to welcome you!

10/02/2026

Calling all researchers! Emily’s Entourage is opening its 2026 grant funding cycle to accelerate promising research toward the clinic for the final 10% of the CF community.

We’re looking for proposals for projects with a clear, credible paths to clinic, including gene editing and delivery, ASOs, anti-infective approaches, and other mature technologies that already show promise.

🗓️Applications open October 1, 2026
🚀Deadline: November 15, 2026 at 11:59 p.m. PT
💜Projected start: April 2027

The final 10% can’t afford to wait. If your research has the potential to deliver what’s next for people with CF who are still waiting for a breakthrough, we want to hear from you.

Learn more and apply: https://bit.ly/3W2FWma

09/30/2026

Danielle is a longtime friend of Emily’s Entourage, and she’ll be joining us at this year’s gala! 💜

On Thursday, October 22, 2026, we’re bringing the EE community together at our new indoor venue, the Fairmount Park Horticulture Center, for an inspiring evening of connection and celebration, all in support of accelerating lifesaving breakthroughs for the final 10%.

Come join Danielle and the EE community for an unforgettable night of hope, momentum, and making a difference for the CF community.

🎟️ Get your tickets today: https://www.emilysentourage.org/phillygala26/

09/29/2026

🎶 The EE Gala is getting a soundtrack!

We're thrilled to share that The Tonics will be bringing the music to this year's Emily's Entourage Gala!

Join us on Thursday, October 22 at the Fairmount Park Horticulture Center for an unforgettable evening of connection, inspiration, and momentum for the final 10% of the CF community—with The Tonics helping set the tone for the night.

We can't wait to see you there!

🎟️ Get your tickets today: https://www.emilysentourage.org/phillygala26/

Address

PO Box 71
Merion Station, PA
19066

Website

Alerts

Be the first to know and let us send you an email when Emily's Entourage posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Emily's Entourage:

Shortcuts

Share

Category