Wisconsin Rare Disease Alliance

03/13/2026

Thank you to everyone who submitted photos from the WI Rare Disease Day events. We've compiled them on our website. If you have photos you would like us to showcase, feel free to send them to us!

03/12/2026

Today is World Kidney Day. Did you know? Climate change can increase kidney disease risk? Learn more: https://worldkidneyday.org/2026-campaign

World Kidney Day – 12 March 2026 Kidney Health For All – Caring for People, Protecting the Planet Are Your Kidneys OK? Take this quiz! Kidney Health for All Caring for People, Protecting the Planet Chronic kidney disease (CKD) is a major and growing global health challenge, affecting 1 in 10 peo...

03/02/2026

March is Developmental Disabilities Awareness Month!

March is Developmental Disabilities Awareness Month! Governor Tony Evers has officially proclaimed March as Developmental Disabilities Awareness Month in Wisconsin! The month/proclamation is meant to raise awareness about the contributions people with developmental disabilities make in all areas of community life, as well as awareness to the barriers that people with disabilities still face in connecting to their communities. You can read the full proclamation below.

We will be sharing posts on our social media to celebrate DDAM so stay tuned.

Proclamation:https://wi-bpdd.org/wp-content/uploads/2026/02/030126_Proclamation_DDAM.pdf

Alt Text: A picture of the proclamation document from the Governor's office for Developmental Disabilities Awareness Month 2026.

02/28/2026

Together we move forward. Small actions create big impact. Remember, for families... every day is rare disease day.

02/28/2026

Looking forward to seeing everyone at the Madison Children's Museum today for the Rare Disease Event! Just tell them you're with WI Rare at the ticket counter.

02/28/2026

Don't forget about the Zebra Hop at Component Brewing Company today in Milwaukee!

02/27/2026

Looking forward to learning more about rare disease awareness this afternoon at the University of Wisconsin-Madison. If you are a student or faculty, we hope to see you there!

02/27/2026

Policy accelerates innovation. The 21st Century Cures Act (2016) Accelerated innovation, centered patience, and advanced treatments for rare diseases.

02/26/2026

Why the Zebra? It stems from the medical adage, "When you hear hoofbeats, think horses, not zebras," which teaches doctors to look for common illnesses, but the rare disease community adopted the zebra to symbolize their unique, often overlooked, and "invisible" conditions.