Adult Congenital Heart Association

09/03/2026

Another one of our first walks back after summer is quickly approaching...the DC Metro Walk for 1 in 100! We can't wait to see our DMV CHD community in just a couple of weeks. Register or donate today by visiting www.walk1in100.org.

09/02/2026

How can you plan for aging in a way that reflects your priorities, goals, and values? Join ACHA for the upcoming live webinar, “Aging Well with CHD,” on September 16, 2026.

You’ll hear personal stories from three adults with CHD—one ACHA staff member and two ACHA Patient & Family Advisory Board members—and gain practical skills that can help you develop care plans to support the life you want as you age.

📅 Register now to save your spot: https://ow.ly/A4W550ZHVJE

09/01/2026

Coming soon...ACHA's Fall Walk for 1 in 100 season! The Connecticut Walk for 1 in 100 is one of our first walks back after a summer break. Show up and show out for the CT CHD community. Register at the link in our bio or visit www.walk1in100.org.

08/31/2026

More people with congenital heart disease (CHD) are living into adulthood—and that means the need for specialized adult congenital heart disease (ACHD) care is growing.

A new Cardiovascular Business article and video interview explores why dedicated ACHD programs are becoming increasingly important, featuring insights from Dan Halpern, MD, Director of the NYU Adult Congenital Heart Program. Dr. Halpern highlights the importance of multidisciplinary care, collaboration between general cardiologists and ACHD specialists, and consistent standards for comprehensive ACHD programs. ACHA Accreditation has helped establish those standards, including the staffing and support services needed to care for the complex needs of adults living with CHD.

At ACHA, we're working to help ensure that people with CHD have access to the specialized care they need throughout their lives.

Read the full article: https://ow.ly/qK9N50ZHtxJ

Learn more about the ACHA ACHD Accreditation Program at www.achaheart.org/accreditation.

More than 95% of congenital heart patients now survive into adulthood, leaving clinicians with much more ground to cover than ever before. Providing high-quality care for these patients requires specialty care as well as collaborations with general cardiologists.

08/27/2026

Why do we walk? We Walk for the 1 in 100 stories just like Tim's.

Walk for 1 in 100 helps to support ACHA's programs and advocacy efforts, which directly impact our CHD community. Donate to a Walk event today by visiting www.walk1in100.org.

08/26/2026

🫀 Stroke research, education, and care matters to the congenital heart disease (CHD) community. Adults with CHD are at higher risk for stroke than the average American and, strikingly, are at much higher risk at younger ages than people without a CHD—which makes prevention, timely treatment, and specialized care especially important.

This is why the Adult Congenital Heart Association (ACHA) is proud to endorse the Stroke Act, legislation introduced by U.S. Senator Ben Ray Luján, which would strengthen stroke research, emergency response, rehabilitation, telestroke care, data collection, and public education. As advocates for the CHD community, ACHA believes that improving access to high-quality care and advancing policies that support better health outcomes are critical to helping people with CHD thrive throughout their lives.

👉 Learn more about ACHA’s advocacy work and how you can get involved: www.achaheart.org/advocate

08/25/2026

Learn, connect, and thrive with ACHA! Our webinars bring experts and the congenital heart disease (CHD) community together to explore topics like heart health, quality of life, healthy living, and self-advocacy—and many include live Q&As, too!

📅 Upcoming:
• Aging Well with CHD on Sept. 16, 2026
• Caring for the CHD Caregivers on Nov. 18, 2026

🎥 Can't attend live? Browse our free webinar library for recordings on topics including arrhythmias, mental wellbeing, insurance, lifelong care, and more.

Explore all ACHA webinars at www.achaheart.org/webinars.

08/18/2026

What happens when you combine good food, great friends and a passion for the congenital heart disease (CHD) community? ❤️

ACHA Patient & Family Advisory Board (PFAB) Co-Chair Meredith Rahn-Oakes hosted a Turkish breakfast fundraiser through ACHA Your Way and raised $1,500 to support our mission! Meredith turned something personal to her into an opportunity to give back.

That’s what makes ACHA Your Way special: Your fundraiser can be as unique as you are. Share your experiences, interests, and passions with the people in your life, and make an impact for the CHD community along the way.

Ready to connect your passion to the ACHA mission? Start your own ACHA Your Way fundraiser today: https://support.achaheart.org/campaign/2026-acha-your-way/c740459

08/17/2026

Many adults with CHD struggle to find information they can trust—but the ACHA Adult Congenital Heart Disease (ACHD) Patient Resource Directory is one trusted place where those resources exist. Now, help us build it out so that it’s even more robust!

Know of a great scholarship, insurance resource, or financial assistance program? Share it with us so we can add it to the directory. One minute of your time = support and assistance for many others. Submit a resource at https://ow.ly/31gw50Zz4Ln

08/14/2026

Join us on October 17 for the inaugural Pittsburgh Lace Up for 1 in 100! 👟

Run, walk, and fundraise in support of the more than 2.5 million people living with congenital heart disease (CHD). Your participation helps ACHA advance resources, education, advocacy, and specialized care for the CHD community.

• Register for $25 through August 31
• Event T-shirt included
• October 17 at the North Park Boathouse

Register or donate now at https://bit.ly/PittLaceUp