Cure MITO Foundation

Cure MITO Foundation The Cure Mito Foundation is dedicated to advancing education and research for Leigh Syndrome and Mitochondrial Disease.

Everyone can share this !!!
06/24/2026

Everyone can share this !!!

06/23/2026

Many children in our community rely on feeding tubes to receive the nutrition they need. In this video, Libby shares how she changes her daughter Quincy’s G-tube at home.

Thank you, Libby, for giving us a glimpse into your family’s everyday life and helping raise awareness of the realities many families navigate each day.

06/21/2026

To the dads who learn medication schedules, sleep in hospital chairs, carry, advocate, comfort, and somehow keep showing up with steady hands and soft hearts.

This one is for you.

oneshot.curemito.org

We are thrilled to announce a grant from the Rare Village Foundation to Dr. Qinglan Ling, Assistant Professor at UMass C...
06/19/2026

We are thrilled to announce a grant from the Rare Village Foundation to Dr. Qinglan Ling, Assistant Professor at UMass Chan Medical School, to advance gene therapy research for individuals with MT-ATP6 m.8993T>G and m.8993T>C mutations. We are excited to support this important work and look forward to following its progress.

We are honored to have our Leigh Syndrome Global Patient Registry featured by CNBC Cures.Thank you to Brad Quick and CNB...
06/19/2026

We are honored to have our Leigh Syndrome Global Patient Registry featured by CNBC Cures.

Thank you to Brad Quick and CNBC Cures for highlighting our efforts to build a registry that provides meaningful insights back to patients and families, while helping researchers and industry better understand Leigh syndrome. The article also highlights new initiatives such as our public registry dashboard and AI-powered Registry Assistant, designed to make participation easier and more valuable for our community.

If your family is affected by Leigh syndrome, we encourage you to join the registry or update your information. If you are a researcher or industry representative, we welcome opportunities to collaborate and accelerate progress for the Leigh syndrome community.

Read the full story:
https://link.cnbc.com/public/46229524

Need a reason to join the Leigh Syndrome Global Registry—or update your information? Here are a few.Most importantly, ev...
06/18/2026

Need a reason to join the Leigh Syndrome Global Registry—or update your information? Here are a few.

Most importantly, every person counts. Your participation helps ensure that the experiences and priorities of our community are heard, and Cure Mito is committed to sharing findings back so families are never left wondering what was learned from the data.

As a thank you, the first 20 people to enroll or update their information (including the new questions) will receive a $25 Visa gift card.

Meet Ryker—a kind, active little boy living with SURF1 Leigh syndrome. Ryker has very few symptoms so far and is a prett...
06/16/2026

Meet Ryker—a kind, active little boy living with SURF1 Leigh syndrome. Ryker has very few symptoms so far and is a pretty typical almost 4-year-old who loves being outside, riding his bike, and swimming. 💙 Learn more about his journey:
https://www.curemito.org/stories-ryker/

📣 New Resource for Families: Leigh Syndrome Registry AI AssistantWe’re excited to introduce a new AI assistant that can ...
06/15/2026

📣 New Resource for Families: Leigh Syndrome Registry AI Assistant

We’re excited to introduce a new AI assistant that can help explain registry questions, guide you through the enrollment process, and answer common questions about the Leigh Syndrome Global Patient Registry.

It works in any language, making it easier for families around the world to participate.

🔗 Try it here: tinyurl.com/lsregistryhelp

Already enrolled? We recently added 10 new questions about priorities related to new treatments and clinical trial participation. We would be very grateful if you could take a few minutes to log in and update your responses.

06/12/2026

Looking for more ways to fundraise? 💚

We'll be sharing even more fundraising ideas soon, but here are some of the things AJ's family has planned in the near future!

👇 Comment below with fundraising ideas you've used, or tell us what's worked well for you in the past. We'd love to hear your suggestions and experiences!

Oneshot.curemito.org

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McKinney, TX
75071

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+16464837073

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