Cure MITO Foundation

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Cure MITO Foundation The Cure Mito Foundation is dedicated to advancing education and research for Leigh Syndrome and Mitochondrial Disease.

10/15/2026

We are so excited to share a glimpse of ACT4LS (Accelerating Treatments & Cures for Leigh Syndrome)!

Experts came from around the world to collaborate and advance research. It was so meaningful to be in the room with so many brilliant minds who care deeply about our kids—and to share our perspectives as parents about what it means to live with this disease.

Stay tuned to meet some of the experts and hear more insights from the meeting. 💚

Today, we are sharing the heartbreaking news of the passing of Elena, a beautiful little girl who lost her battle with L...
10/13/2026

Today, we are sharing the heartbreaking news of the passing of Elena, a beautiful little girl who lost her battle with Leigh syndrome.

We are honored to share these precious memories from Elena’s mom, Adriana:

“Elena was a girl with a beautiful smile; everywhere she went, everyone loved her. She was a very brave, strong, and loving girl. She loved wearing her older sister's clothes, even though they didn't fit her. She loved eating chocolate cake, and she loved to dance and sing. She loved sleeping with her mom and her sister, and her favorite things were Barbies and cooking in her toy kitchen.

She loved it when we sang ‘Las Mañanitas’ to her, even if it wasn't her birthday.”

Our latest Leigh Syndrome Global Patient Registry poster was presented at ACT4LS: Accelerating Cures and Treatments for ...
10/13/2026

Our latest Leigh Syndrome Global Patient Registry poster was presented at ACT4LS: Accelerating Cures and Treatments for Leigh Syndrome!

The poster highlights findings from our recent questions on treatment experiences and research priorities. 💙 Thank you to everyone who shared their experiences!

Every patient counts, and every voice matters! Help advance Leigh syndrome research by joining the registry today.

🔗 https://www.curemito.org/leighsyndromeregistry/

What happens when experts from different fields come together with one shared goal: accelerating treatments and cures fo...
10/12/2026

What happens when experts from different fields come together with one shared goal: accelerating treatments and cures for Leigh syndrome? 💚

On October 8–9, Cure Mito Foundation hosted ACT4LS: Accelerating Cures and Treatments for Leigh Syndrome at the Broad Institute in Cambridge, Massachusetts.

This first-of-its-kind workshop brought together more than 30 experts and stakeholders from basic science, clinical medicine, drug development, and regulatory science for two days of meaningful discussions, collaboration, and strategic planning.

Together, we explored the challenges, opportunities, and priorities that can help move Leigh syndrome research forward and bring us closer to effective treatments.

We are incredibly grateful to everyone who contributed their time, expertise, and ideas to this important gathering.

The workshop may be over, but the work is just beginning! We look forward to sharing key takeaways and next steps with our community.

10/09/2026

They had no idea how much they had in common. 🤍

Different families. Different stories. Different parts of the world.

But one tiny gene mutation brought them together. 🧬

For the first time, these sweet SURF1 kids got to meet each other — the kids who understand this fight in a way that no one else can.

Watching them meet, play, laugh, and simply be kids was something we’ll never forget. 🥹💚

This is why we keep fighting.
This is why we keep raising awareness.
This is why we keep pushing science forward.

Because behind every gene therapy, every study, every fundraiser and every dollar raised… there are kids.

And they deserve a future. 💚

10/06/2026

POV: You’re a mito mama about to meet other families whose children have the SAME rare gene mutation. 🥹💚

Hi, I’m Megan, and I’m a content creator for Cure Mito. We had the incredible opportunity to travel to Dallas to participate in a SURF1 biomarker study, meet other families living with SURF1 Leigh syndrome, AND meet the doctor working to make a potential gene therapy a reality.

This GRWM captures my real, raw feelings before walking into a room filled with families who understand a part of our lives that very few people ever could.

Excited. Nervous. Emotional. Hopeful.

There’s something incredibly powerful about meeting the people who don’t need an explanation. They just… get it. 💚

10/05/2026

We’re almost ready to share the final numbers from our September match, and we can’t wait to show you what this community made possible! Your generosity deserves a big reveal, and it’s coming soon! 🎉

Until then, Sandy is here with a thank-you to everyone who helped make it such an incredible month. We’re beyond grateful to the generous donor whose match sparked so much momentum, and to everyone who fundraised, donated, and shared.

There’s still more to raise to advance SURF1 gene therapy closer to clinical trial. Let’s keep going together, and stay tuned for the final numbers! 💚

Donate here: http://oneshot.curemito.org

Last chance to DOUBLE YOUR DONATION for SURF1 Gene Therapy! DOUBLE your impact now!!! Visit oneshot.curemito.org to lear...
09/30/2026

Last chance to DOUBLE YOUR DONATION for SURF1 Gene Therapy! DOUBLE your impact now!!! Visit oneshot.curemito.org to learn more and donate!

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McKinney, TX
75071

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+16464837073

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