06/29/2025
Please help me to be able to reach out to or politicians to get them to help get funding reinstated. You can copy and paste this , change the names to fit your state, thanks.
President of the United States Donald Trump
Director of the National Institutes of Health Dr. Jay Bhattacharya
Alabama Governor Kay Ivey
Alabama Congressman Gary Palmer
Alabama Senator Tommy Tuberville
Alabama Senator Katie Britt
Alabama Senator April Weaver
I am requesting assistance in restoring and expanding funding. The United States government has eliminated all federal funding for spinal cord injury research this year. Last year, $40 million supported over 60 research projects through the Spinal Cord Injury Research Program (SCIRP). However, there is no funding allocated for this year.
This issue affects children with spinal cord injuries, such as Emily and many others, who are now facing a lack of support. Pediatric spinal cord injury research already struggles to secure funding, as private donors tend to focus on adult and veteran cases. Federal programs were among the few supporting pediatric trials, including those focused on early recovery, nerve regeneration, and neuromodulation.
As a result, several clinical trials, including phase II/III studies for children, have been paused or canceled, which is concerning. By the time Emily is eligible for adult programs or access proven therapies, she will have lived with her injury for too long to qualify. The opportunity for recovery is immediate, and it has now been lost for a generation of children.
This issue impacts families, veterans, accident victims, children, and anyone who might face similar circumstances in the future.
Thank you,
Chairman of the Mike L. Jezdimir Transverse Myelitis Foundation