Daniella Maria Arturi Foundation

Daniella Maria Arturi Foundation We are working to find the cure for Diamond Blackfan Anemia. Learn more and join us. http://www.diamo

The Daniella Maria Arturi Foundation (DMAF) was founded by Marie and Manny Arturi in early 1996 shortly after the loss of their daughter, Daniella, who was afflicted with a rare bone marrow failure disorder called Diamond Blackfan Anemia (DBA). DBA is a red cell disorder that usually appears in the first year of life and leads to severe anemia, which may eventually be life-threatening. There curre

ntly is no cure for DBA other than stem cell (bone marrow) transplantation, and the treatments have limitations. For patients living with DBA, the primary treatments include repeated blood transfusions or corticosteroids, which carry side effects and risks that significantly impair the child’s quality of life. Unfortunately, Daniella’s death was the result of treatment related to an effort to control or arrest the disorder. Manny and Marie’s experience revealed the difficult reality and devastating consequences of very limited information and experienced doctors that many families face when caring for children with extraordinarily rare disorders. They became determined to try to prevent the lack of information and alternative treatment protocols from affecting any other child suffering with DBA. With this goal, Manny and Marie created the Foundation in order to improve the DBA clinical care environment, advance family and physician access to up to date DBA information, raise public awareness, and support and stimulate research initiatives that would work toward improved treatment options and a cure for DBA.

12/21/2023

It's not Giving Tuesday ... but it IS appreciation Thursday. The Arturi Family and the Daniella Maria Arturi Foundation have sent in support to the Diamond Blackfan Anemia Foundation today in gratitude for the tireless effort of Dawn Hollstein-Baumgardner. As many know, The DMAF was largely research, and the DBAF was family support AND research.
We (at the Daniella Maria Arturi Foundation) have been honored and have happy hearts witnessing the professionalism displayed in the continued DBA Conferences.

Dawn, your continued efforts for all of the DBA families is awe-inspiring. I know you may not want or like this shout-out... but it is very well deserved. Thank you for all you do - today and always.

Thank you for yesterday, today, tomorrow, and always for your tireless work on behalf of everyone in the DBA world!
03/01/2021

Thank you for yesterday, today, tomorrow, and always for your tireless work on behalf of everyone in the DBA world!

Check out my Buncee!

12/05/2020

Wishing all of the attendees at the virtual American Society of Hematology Conference today the very, very best. Our love and Congratulations go to our dear friend Mohandas Narla as he receives the prestigious . His life long effort in red cell physiology and pathology has advanced scientific research in many important ways. He has authored 340 peer-reviewed publications and 100 review articles and book chapters.
Again, Congratulations on his huge body of work Mohan.

Throughout 2020 we will be speaking with scientists changing the world one project at a time. The intention is to offer ...
01/11/2020

Throughout 2020 we will be speaking with scientists changing the world one project at a time. The intention is to offer the Buncees they can share with their students encouraging a love of science and

We are kicking off our with this interview that Eda Charmaine Gimenez had with Dr. Leonard Zon at Harvard this week. We couldn't be more grateful that Dr. Zon shared his time discussing his work on Zebrafish.

Thank you to all of the remarkable scientists in the community. It is exciting to be able to distill some of this complex work in a fun and visual way!

Check out my Buncee!

Here's to hope and blessings in the New Year! Happy, Happy New Year!
12/31/2019

Here's to hope and blessings in the New Year!
Happy, Happy New Year!

12/06/2019

Thinking about our little angel today (and always) as well as our community. Sending love and good wishes for a successful meeting at

12/08/2018
Sending love and appreciation to the and all the dedicated and remarkable members of the Community at
12/03/2018

Sending love and appreciation to the and all the dedicated and remarkable members of the Community at

12/03/2018

The DBAF is all smiles as we welcome David M. Bodine, Ph.D., Chief & Senior Investigator in the Genetics and Molecular Biology Branch of the National Human Genome Research Institute to the ASH Booth. Dr. Bodine stated, "I really like coming to the Booth to link up to the rest of the team. The team is really important to me." We are pleased Dr. Bodine is a part of our team!

A huge day for a dear friend of the the and all of the efforts on behalf of . Vic Hadfield jersey has been retired. ...
12/03/2018

A huge day for a dear friend of the the and all of the efforts on behalf of . Vic Hadfield jersey has been retired. #11 NYRangers- We Are Blueshirt Nation NYRangers

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