The International 22q11.2 Foundation

08/25/2026

Dr. Hany Ale and Kristina B. are spreading awareness about 22q differences in the Sunshine State!

2,717 Followers, 196 Following, 0 Posts

07/14/2026

The International 22q11.2 Foundation is incredibly grateful to be part of the 14th Biennial International 22q11.2 Society Scientific Meeting.

Day one of learning about the latest research in has been nothing short of inspiring!

What an incredible opportunity to come together and see researchers, clinicians, advocates, and parent organizations united with one shared goal: improving the lives of individuals and families affected by 22q11.2 deletion syndrome.

The collaboration, innovation, and commitment to advancing research, clinical care, and family support are truly inspiring. We’re honored to be part of these important conversations and look forward to the discoveries and connections the rest of the meeting will bring.

06/21/2026

Happy Father’s Day to all the incredible dads and special men in the lives of our 22q community!

Today, and every day, we celebrate the strong, resilient, and devoted fathers, grandfathers, stepfathers, brothers, uncles, mentors, and caregivers who walk the journey of 22q11.2 differences with unwavering love and determination. Your support, advocacy, and endless dedication to individuals with 22q—of all ages—shine as a beacon of hope and strength.

Through every challenge and every milestone, you are the steady foundation families rely on. Your sacrifices, perseverance, and unconditional love embody the true spirit of fatherhood and compassionate care.

To all the fathers and remarkable men facing unique challenges alongside their loved ones, please know that your dedication is seen, your struggles are honored, and your love is deeply felt. You are appreciated beyond words.

On behalf of the International 22q11.2 Foundation, thank you for all that you do. We stand with you on Father’s Day and every day.

💙 Happy Father’s Day! 💙

06/08/2026

📰 Hot Off the Press! 📰
Our latest newsletter is here and packed with information, updates, and resources for the 22q11.2 community!
Inside you'll find:
✅ Highlights and photos from 22q at the Zoo – Worldwide Awareness Day
✅ Part 1 of our important series on Puberty and 22q11.2
✅ Research updates
✅ Helpful resources and important links for families and individuals
If you missed Awareness Day, be sure to check out some of the amazing group locations from around the world!
📖 Click the link below to read the full newsletter and stay connected with the latest news from the International 22q11.2 Foundation.
🔗 Click here to read: https://22q.org/news/newsletter/
https://22q.org/wp-content/uploads/2026/06/Foundation-newsletter-20260607.pdf

06/05/2026

Puberty Series…… This newest series in Health Conditions Explained talks about body changes, behavioral challenges, and sexual health concerns that teenagers may have. We are also providing links to additional resources to help parents talk to their teens about various issues.

Many thanks to Joanne Loo, PhD, Programmatic and Educational Tool Developer and Natalie Blagowidow, MD, Obstetrician/Gynecologist for developing and reviewing the Puberty Series. We also thank Samantha D’Arcy, MHSc, RD, Registered Dietitian; Nikolai Gil D. Reyes, MD, Neurologist; and Maude Schneider, PhD, Psychologist and Psychotherapist for reviewing specific subtopics.

Here are the first three topics: https://22q.org/symptoms-care/health-conditions-explained/ more topics will be available in late 2026.
• Girls’ Body Changes During Puberty
• Boys’ Body Changes During Puberty
• Staying Clean and Healthy

05/28/2026

FIND YOUR PHOTOS!

If you attended the 16th Annual 22q at the Zoo – Worldwide Awareness Day, we NEED your photos NOW! Sacramento, CA – Boca Raton – FL – Melbourne, FL – Indianapolis, IN – Kansas City, MO – Columbus, OH – Sioux Falls, SD – Seattle, WA – Kingwood, WV……

Whether you were at the zoo, a park, or gathering with family and friends to raise awareness for 22q11.2 differences — send us your pictures!

We are still collecting photos from around the world and don’t want to miss YOUR location or memories. Keep them coming! Don’t forget Toronto, Canada and Perth, Australia are going to the Zoo in June…..

Atlanta, Georgia - Pittsburgh, Pennsylvania - Brookfield, Illinois - St. Paul, Minnesota your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/28/2026

If you love 🖼️, take a look below and submit your work!

Submit your art by June 1 for a chance to be featured in our NYC gallery! This July, Positive Exposure will exhibit art made by you: individuals with a connection to rare disease.

Email [email protected] when your work is completed to receive instructions on how to send it in the mail.

DETAILS: https://positiveexposure.org/submit-your-art-for-rare-disease-showcase-at-pe-gallery

05/26/2026

FIND YOUR PHOTOS!

If you attended the 16th Annual 22q at the Zoo – Worldwide Awareness Day, we NEED your photos NOW!

Whether you were at the zoo, a park, or gathering with family and friends to raise awareness for 22q11.2 differences — send us your pictures!

We are still collecting photos from around the world and don’t want to miss YOUR location or memories. Keep them coming!

Copenhagen, Denmark, Dublin, Ireland, Cork, Ireland, Western New York, Beaumont, Texas, San Antonio, Texas, Asheboro, North Carolina your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.
Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/25/2026

This Memorial Day, the International 22q11.2 Foundation honors and remembers all who served and sacrificed for our freedom. ❤️🤍💙

05/22/2026

Find your PHOTOS! 👀

It’s Friday another round of amazing group photos from the 16th Annual 22q at the Zoo – Worldwide Awareness Day!

Tampa Bay, FL, St. Louis, MO, Austin, TX, Dallas, TX, Belgium, Northern Ireland and Sweden your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!