The International 22q11.2 Foundation

06/08/2026

📰 Hot Off the Press! 📰
Our latest newsletter is here and packed with information, updates, and resources for the 22q11.2 community!
Inside you'll find:
✅ Highlights and photos from 22q at the Zoo – Worldwide Awareness Day
✅ Part 1 of our important series on Puberty and 22q11.2
✅ Research updates
✅ Helpful resources and important links for families and individuals
If you missed Awareness Day, be sure to check out some of the amazing group locations from around the world!
📖 Click the link below to read the full newsletter and stay connected with the latest news from the International 22q11.2 Foundation.
🔗 Click here to read: https://22q.org/news/newsletter/
https://22q.org/wp-content/uploads/2026/06/Foundation-newsletter-20260607.pdf

06/05/2026

Puberty Series…… This newest series in Health Conditions Explained talks about body changes, behavioral challenges, and sexual health concerns that teenagers may have. We are also providing links to additional resources to help parents talk to their teens about various issues.

Many thanks to Joanne Loo, PhD, Programmatic and Educational Tool Developer and Natalie Blagowidow, MD, Obstetrician/Gynecologist for developing and reviewing the Puberty Series. We also thank Samantha D’Arcy, MHSc, RD, Registered Dietitian; Nikolai Gil D. Reyes, MD, Neurologist; and Maude Schneider, PhD, Psychologist and Psychotherapist for reviewing specific subtopics.

Here are the first three topics: https://22q.org/symptoms-care/health-conditions-explained/ more topics will be available in late 2026.
• Girls’ Body Changes During Puberty
• Boys’ Body Changes During Puberty
• Staying Clean and Healthy

05/28/2026

FIND YOUR PHOTOS!

If you attended the 16th Annual 22q at the Zoo – Worldwide Awareness Day, we NEED your photos NOW! Sacramento, CA – Boca Raton – FL – Melbourne, FL – Indianapolis, IN – Kansas City, MO – Columbus, OH – Sioux Falls, SD – Seattle, WA – Kingwood, WV……

Whether you were at the zoo, a park, or gathering with family and friends to raise awareness for 22q11.2 differences — send us your pictures!

We are still collecting photos from around the world and don’t want to miss YOUR location or memories. Keep them coming! Don’t forget Toronto, Canada and Perth, Australia are going to the Zoo in June…..

Atlanta, Georgia - Pittsburgh, Pennsylvania - Brookfield, Illinois - St. Paul, Minnesota your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/28/2026

If you love 🖼️, take a look below and submit your work!

Submit your art by June 1 for a chance to be featured in our NYC gallery! This July, Positive Exposure will exhibit art made by you: individuals with a connection to rare disease.

Email [email protected] when your work is completed to receive instructions on how to send it in the mail.

DETAILS: https://positiveexposure.org/submit-your-art-for-rare-disease-showcase-at-pe-gallery

05/26/2026

FIND YOUR PHOTOS!

If you attended the 16th Annual 22q at the Zoo – Worldwide Awareness Day, we NEED your photos NOW!

Whether you were at the zoo, a park, or gathering with family and friends to raise awareness for 22q11.2 differences — send us your pictures!

We are still collecting photos from around the world and don’t want to miss YOUR location or memories. Keep them coming!

Copenhagen, Denmark, Dublin, Ireland, Cork, Ireland, Western New York, Beaumont, Texas, San Antonio, Texas, Asheboro, North Carolina your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.
Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/25/2026

This Memorial Day, the International 22q11.2 Foundation honors and remembers all who served and sacrificed for our freedom. ❤️🤍💙

05/22/2026

Find your PHOTOS! 👀

It’s Friday another round of amazing group photos from the 16th Annual 22q at the Zoo – Worldwide Awareness Day!

Tampa Bay, FL, St. Louis, MO, Austin, TX, Dallas, TX, Belgium, Northern Ireland and Sweden your photos are here, and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/21/2026

Find your PHOTOS!

Another day, another round of amazing group photos from the 16th Annual 22q at the Zoo – Worldwide Awareness Day!

Serbia, Finland, Arizona, North Carolina, Italy, Massachusetts, and New Jersey — your photos are here and more are still coming in. Keep following along as we continue sharing families and friends from around the world raising awareness for 22q11.2 Differences.

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/19/2026

The International 22q11.2 Foundation proudly thanks every family, volunteer, caregiver, healthcare professional, support organization, and 22q Centers of Excellence who helped bring this incredible event to communities around the world.

From hometown zoos to parks and gathering places big and small, your dedication continues to raise awareness, build lifelong friendships, and shine a light on 22q11.2 Differences.

Together, we are creating a stronger global 22q community — one family, one event, and one voice at a time.

Thank you for making the 16th Annual “22q at the Zoo — Worldwide Awareness Day” so meaningful and unforgettable!

If you haven’t already, please send your group photos to [email protected] along with your location and zoo name so we can celebrate and share the amazing worldwide support for the 22q community.

Thank you for helping raise awareness for 22q11.2 differences across the globe!

05/17/2026

A huge THANK YOU to Maria and the team for officially kicking off the 16th Annual 22q at the Zoo – Worldwide Awareness Day!

Now it’s time for families and friends around the world to join in and fill social media with photos raising awareness for 22q11.2 Differences. Let’s show the strength, love, and spirit of our incredible 22q community one photo at a time!

Post your pictures, tag your locations, wear your red, and tag to help spread awareness across the globe. We can’t wait to see all the smiles from zoos everywhere!